Iβm very sorry for your loss
31.07.2025 03:40 β π 1 π 0 π¬ 0 π 0@lupusdnadoc.bsky.social
Global lupologist, pediatrician, mother, avid reader. Writing good science and bad poetry. Citizen of earth. Runner. Seeking truth and excellent ice cream. Views are my own and do not reflect my employer #Rheumsky
Iβm very sorry for your loss
31.07.2025 03:40 β π 1 π 0 π¬ 0 π 0Hello, I am a scientist in a film. All my liquids are brightly coloured. The time it takes to perform tests and experiments is dependent on plot requirements, not biology or chemistry. Also, my safety glasses are extremely stylish.
27.07.2025 13:29 β π 1057 π 99 π¬ 24 π 51Texas with a heart
Iβve been trying to find the words to express my sadness at the loss of precious life in Texas, but there are none. My heart is with all the victims of the flood and those who love them π
10.07.2025 12:58 β π 0 π 0 π¬ 0 π 0π
09.07.2025 10:08 β π 0 π 0 π¬ 0 π 0We are so excited to share our manuscript describing the genetic architecture in a diverse, international cohort of childhood-onset lupus patients.
-We found that cSLE patients have a high burden of BOTH common and rare SLE risk variants
π§¬π¬π¦
#lupus #genomics #cSLE
lupus.bmj.com/content/12/1...
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24.06.2025 16:28 β π 0 π 0 π¬ 0 π 0Same to you on both counts! I regret that we forgot to get a photo of us together. Looking forward to continuing our exciting collaboration in #cSLE! 𧬠π¬π§«π§ͺ
14.06.2025 09:01 β π 1 π 0 π¬ 0 π 0Dr Lewandowski stands at a podium presenting her talk.
Honored to be invited to speak about #lupus genetics in global populations at #EULAR25, alongside the incredible Drs. Belot and Vinuesa! So much exciting data, and we are just beginning! π§¬π¬π
14.06.2025 08:34 β π 13 π 1 π¬ 2 π 1Congratulations to Dr Eve Smith for EULAR abstract award-Clinical Science for our collaboration in childhood-onset #lupus! Thankful to FOREUM-RRF for funding this exciting international collaboration to advance clinical research for cSLE! More great things ahead! #EULAR25 #lupus
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Great to meet you after all this time knowing you in the virtual space! π
13.06.2025 16:12 β π 1 π 1 π¬ 0 π 0So great to meet @lupusdnadoc.bsky.social in person for the first time today! @eular.org #eular2025
13.06.2025 13:52 β π 6 π 1 π¬ 2 π 0Thanks @georgearobinson.bsky.social! Exciting times ahead indeed! π§¬π¬ππΌ
12.06.2025 22:39 β π 4 π 0 π¬ 0 π 0My hero, economist Claudia Goldin, doggedly using data to show that many women continue to be paid less than they deserve, like sheβs been doing for the past 30 goddamn years #econsky
www.nytimes.com/2025/06/06/o...
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31.05.2025 00:05 β π 0 π 0 π¬ 0 π 0Great meeting!
Great science!
Great people!
Great city!
So good to connect with you at #LUPUS2025! π
2 lupus doctors smile and wear purple clothing to raise lupus awareness
Today we #PutOnPurple together at LUPUS2025! So excited to meet up with Dr. Edens and continue our advocacy for our amazing patients with #lupus ππ¦
23.05.2025 18:12 β π 8 π 3 π¬ 1 π 0Thank you to the #LupusChat Team for your powerful advocacy and dedication to the lupus community ππππ
11.05.2025 00:22 β π 3 π 2 π¬ 1 π 0π Happy #WorldLupusDay! Today is all about spreading #LupusAwareness. Thank you to every organization, advocate, caregiver, and supporter working daily to educate the masses about the effects of #Lupus. Let's continue working together to champion the Patient voice.π #LupusChat
10.05.2025 15:30 β π 11 π 7 π¬ 1 π 1π Itβs #WorldLupusDay! π Tonight, Cardiff Castle, witness to nearly 2000 years of history, will shine purple to mark it. Huge thanks to @cardiffcouncil.bsky.social for the support. I canβt wait to see it! π° #Lupus #LupusAwareness #CardiffCastle
10.05.2025 10:39 β π 8 π 2 π¬ 0 π 0Itβs #WorldLupusDay! π Like Izzy, show your support and help make lupus visible by rocking a purple outfit or accessories today! πβ¨ Join the global lupus community & take action.
πΈ Drop a pic of yourself in purple in the replies or post on your own page with #WorldLupusDay!
A group of doctors, nurses, and students wearing purple clothes and wigs smiles in a group photo.
May 10 is #WorldLupusDay! As a pediatric rheumatologist, I join many colleagues, patients and caregivers as we #putonpurple to raise #lupusawareness ππ¦
11.05.2025 00:19 β π 8 π 1 π¬ 0 π 0Ever wondered how advocacy actually works on Capitol Hill? Join us LIVE to learn what advocacy really means, how #lupus warriors are driving change in D.C., and how you can use your voice to make an impact from home. π
πΊ Watch now and get inspired: buff.ly/WuN93Ab #lupusadvocacy
Clinical research drives progress in #lupus care - and your voice makes it possible! π Hear from experts at AstraZeneca, Biogen, and Genentech plus advocates like Olga making an impact.
πΊ Watch the livestream: buff.ly/WuN93Ab #lupusadvocacy
πͺ Advocacy in action! Dr. Karen Costenbader & Dr. Gary Gilkeson share how #lupusadvocacy is making an impact at the CDC, OMH, and DoD. π Tune in to see how these programs support people with #lupus - and how YOU can help drive change.
πΊ Watch now: buff.ly/WuN93Ab
Today is lupus virtual advocacy day! Use the links below to contact your reps- it is a fast yet effective way to join the community effort to raise #lupusawareness ππͺπ½
06.05.2025 13:02 β π 3 π 0 π¬ 0 π 0π The energy is high at the National #LupusAdvocacy Summit in Washington! #Lupus warriors from across the U.S. are sharing where theyβre from & how theyβre raising their voices for change. Watch now to celebrate advocates showing up to make lupus visible: buff.ly/WuN93Ab
05.05.2025 13:48 β π 6 π 2 π¬ 1 π 0Get ready for the National Lupus Advocacy Summit today! If you're participating online, the livestream starts at 9:30am EST. Looking forward to seeing you there: buff.ly/rrzDean #lupusadvocacy
05.05.2025 12:30 β π 2 π 2 π¬ 0 π 0Did this really happen
04.05.2025 02:17 β π 5 π 0 π¬ 1 π 0Sending spooky thoughts and vibes to both of you π»
07.04.2025 00:05 β π 5 π 0 π¬ 0 π 0Haha- I had to get a full debrief when I visited MA recently. And whoa! Buckle up- itβs a wild ride!!!! π³
25.03.2025 18:12 β π 0 π 0 π¬ 0 π 0