Natalie- Chronically Crafty's Avatar

Natalie- Chronically Crafty

@gritwithglitter.bsky.social

I'm a chronically ill and crafty! Also have raging ADHD, teenage twin daughters, and a constantly shifting hyper focus!

34 Followers  |  42 Following  |  36 Posts  |  Joined: 20.01.2025  |  2.3865

Latest posts by gritwithglitter.bsky.social on Bluesky

Holding Pattern Yesterday, just a few hours before my life-altering surgery to get a permanent ostomy, I was anxious but ready. I had been doing the mental and emotional work in therapy, I had physically prepared which involved not eating for more than 24 hours, taking mega-doses of antibiotics that made me extremely nauseous, and taking multiple showers in which I spent excessive amounts of time scrubbing my abdomen with a special anti-microbial wash.

Yesterday, just a few hours before my life-altering surgery I got the call that my surgery would have to be postponed.

21.02.2025 17:09 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Facing Life Altering Surgery Again: Embracingย Change I find myself once again facing a life-altering surgery and the one thing I know for certain is that the only guarantee is change. But we aren't strangers, change and I. I have had a series of unique and bizarre health challenges over the last 12 years and they have essentially altered what I know to be true about myself. Throughout that time, I was able to be open and vulnerable and transparent about a lot of it, but after years of (relatively) good health, I stopped wanting to share when things started to go downhill again.

I have a secret weapon, an advantage I didn't have 10 years ago. I already learned what it means to be a survivor, how to go through the worst in life and pick yourself back up, and I have done it more in the last 12 years than many experience in a lifetime.

12.02.2025 20:51 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Is it just me or do Kendrick Lamar's jeans look like my favorite bootcuts from college in the 90's??

10.02.2025 01:32 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This one is so good!!

31.01.2025 00:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Anyone else have a love/hate relationship with therapy? Like you love the results of the work but hate doing it? #ctpsd #trauma #chronicillness

28.01.2025 02:12 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Great idea! I never thought of just not being sick!

24.01.2025 23:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

This breaks my heart. So much love and know there are people out there who see you and care!!

24.01.2025 14:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Big hugs take your space and protect your mental healthโค๏ธโ€๐Ÿฉนโค๏ธโ€๐Ÿฉน

24.01.2025 04:16 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It is so terrible to feel dismissed by "specialists" I felt this way for years. i am lucky I was able to get into the Mayo clinic system. The florida clinic has an EDS specialist that does virtual consultations (a long waitlist) but worth a try, you can send in your own records- that's what I did โค๏ธโ€๐Ÿฉน

24.01.2025 03:48 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Thank you!! It feel like at least I am taking some control of my quality of life. So much is out of our hands but this choice while hard makes me feel empowered!

23.01.2025 15:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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This week has put me on the struggle bus mentally, emotionally, and physically. If you need to hop on you are welcome we have heating pads and cozy blankets for everyone!!

23.01.2025 14:22 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

The chronic illness fam are some of the strongest people I know!

23.01.2025 06:04 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Congrats! I think only another spoonie can understand why surgery can actually be a relief. I get a permanent ostomy Feb 20 and I can't wait to be rid of the pain I am currently in. โค๏ธโ€๐Ÿฉน

23.01.2025 06:02 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

I am brand new here, how do I do that?

22.01.2025 23:56 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Monet Monet X Change GIF ALT: Monet Monet X Change GIF

Folksโ€ฆ itโ€™s just going to continue, especially early. They want us to see headline after headline. They want us to feel crippled under the weight of their power. They want to snuff out any hint of push back. So right now itโ€™s just a matter of taking the wave and preparing to reapply pressure.

22.01.2025 19:07 โ€” ๐Ÿ‘ 213    ๐Ÿ” 19    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 1

My digestive system: um you ate what did you expect?!?!

22.01.2025 23:53 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Doing something with your hands is fantastic for anxiety! I personally love me some crochet, what about you?

22.01.2025 22:52 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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My ADHD gremlins like to make me believe that a new notebook will fix anything and that I must keep them all "just in case!"

21.01.2025 01:42 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I have often thought that like degrees, we should be able to add diagnosis initials after our names, they are hard earned after all!! I'll go first..
Natalie IBD, EDS, ADHD

21.01.2025 01:31 โ€” ๐Ÿ‘ 5    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Hi!! New here too and looking for my people!

21.01.2025 01:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I qualify on a couple of these but particularly love mammas healing their traumas!! Hi!!

21.01.2025 01:23 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Seriously the best comparison yet!

20.01.2025 23:52 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I love that I can order things online completely forget they exist and then when they arrive it's a surprise present from past me!

20.01.2025 22:56 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Sounds like we have bunches in common!! Hi new friend!

20.01.2025 22:44 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I like to try and pick a soundtrack so it is more than one song and it takes me longer to wear it out. Currently it's the Mean Girls musical

20.01.2025 22:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

ADHd meds gave me the ability to make a meal plan for the week and buy groceries

Did not give me the ability to use that plan before I forgot the food was there it expired and I had to throw it out and eat cereal!

20.01.2025 22:39 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

One of the hardest thing I have ever done was to step away from work I loved because of my health. But it just might save my life. I can always go back to work...

20.01.2025 22:27 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

In a chronic illness flare that has me feeling terrible and nauseous. But seems like that's kind of the vibe today anyway, thanks for joining me!

20.01.2025 22:24 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I use crafting as a way to feel accomplished when I am too sick to do anything else, totally get this!!

20.01.2025 22:13 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0


I have felt this a lot lately, my health means a lot of time in bed and by myself!

20.01.2025 22:08 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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