Yesterday, just a few hours before my life-altering surgery I got the call that my surgery would have to be postponed.
21.02.2025 17:09 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0@gritwithglitter.bsky.social
I'm a chronically ill and crafty! Also have raging ADHD, teenage twin daughters, and a constantly shifting hyper focus!
Yesterday, just a few hours before my life-altering surgery I got the call that my surgery would have to be postponed.
21.02.2025 17:09 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I have a secret weapon, an advantage I didn't have 10 years ago. I already learned what it means to be a survivor, how to go through the worst in life and pick yourself back up, and I have done it more in the last 12 years than many experience in a lifetime.
12.02.2025 20:51 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Is it just me or do Kendrick Lamar's jeans look like my favorite bootcuts from college in the 90's??
10.02.2025 01:32 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0This one is so good!!
31.01.2025 00:19 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Anyone else have a love/hate relationship with therapy? Like you love the results of the work but hate doing it? #ctpsd #trauma #chronicillness
28.01.2025 02:12 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Great idea! I never thought of just not being sick!
24.01.2025 23:42 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0This breaks my heart. So much love and know there are people out there who see you and care!!
24.01.2025 14:45 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Big hugs take your space and protect your mental healthโค๏ธโ๐ฉนโค๏ธโ๐ฉน
24.01.2025 04:16 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0It is so terrible to feel dismissed by "specialists" I felt this way for years. i am lucky I was able to get into the Mayo clinic system. The florida clinic has an EDS specialist that does virtual consultations (a long waitlist) but worth a try, you can send in your own records- that's what I did โค๏ธโ๐ฉน
24.01.2025 03:48 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Thank you!! It feel like at least I am taking some control of my quality of life. So much is out of our hands but this choice while hard makes me feel empowered!
23.01.2025 15:11 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0This week has put me on the struggle bus mentally, emotionally, and physically. If you need to hop on you are welcome we have heating pads and cozy blankets for everyone!!
23.01.2025 14:22 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0The chronic illness fam are some of the strongest people I know!
23.01.2025 06:04 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Congrats! I think only another spoonie can understand why surgery can actually be a relief. I get a permanent ostomy Feb 20 and I can't wait to be rid of the pain I am currently in. โค๏ธโ๐ฉน
23.01.2025 06:02 โ ๐ 2 ๐ 0 ๐ฌ 2 ๐ 0I am brand new here, how do I do that?
22.01.2025 23:56 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Folksโฆ itโs just going to continue, especially early. They want us to see headline after headline. They want us to feel crippled under the weight of their power. They want to snuff out any hint of push back. So right now itโs just a matter of taking the wave and preparing to reapply pressure.
22.01.2025 19:07 โ ๐ 213 ๐ 19 ๐ฌ 9 ๐ 1My digestive system: um you ate what did you expect?!?!
22.01.2025 23:53 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0Doing something with your hands is fantastic for anxiety! I personally love me some crochet, what about you?
22.01.2025 22:52 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0My ADHD gremlins like to make me believe that a new notebook will fix anything and that I must keep them all "just in case!"
21.01.2025 01:42 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0I have often thought that like degrees, we should be able to add diagnosis initials after our names, they are hard earned after all!! I'll go first..
Natalie IBD, EDS, ADHD
Hi!! New here too and looking for my people!
21.01.2025 01:26 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I qualify on a couple of these but particularly love mammas healing their traumas!! Hi!!
21.01.2025 01:23 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Seriously the best comparison yet!
20.01.2025 23:52 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I love that I can order things online completely forget they exist and then when they arrive it's a surprise present from past me!
20.01.2025 22:56 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Sounds like we have bunches in common!! Hi new friend!
20.01.2025 22:44 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I like to try and pick a soundtrack so it is more than one song and it takes me longer to wear it out. Currently it's the Mean Girls musical
20.01.2025 22:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0ADHd meds gave me the ability to make a meal plan for the week and buy groceries
Did not give me the ability to use that plan before I forgot the food was there it expired and I had to throw it out and eat cereal!
One of the hardest thing I have ever done was to step away from work I loved because of my health. But it just might save my life. I can always go back to work...
20.01.2025 22:27 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0In a chronic illness flare that has me feeling terrible and nauseous. But seems like that's kind of the vibe today anyway, thanks for joining me!
20.01.2025 22:24 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0I use crafting as a way to feel accomplished when I am too sick to do anything else, totally get this!!
20.01.2025 22:13 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I have felt this a lot lately, my health means a lot of time in bed and by myself!