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PANS PANDAS UK

@panspandasuk.bsky.social

UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.

176 Followers  |  20 Following  |  85 Posts  |  Joined: 27.11.2024  |  1.7458

Latest posts by panspandasuk.bsky.social on Bluesky

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Help your family to reconnect following a flare of PANS or PANDAS symptoms.

Vicky Queralt, Clinical Psychologist, suggests a variety of strategies to support everyone affected: panspandasuk.org/wp-content/uploads/2025/05/Reconnecting-2.pdf

05.06.2025 10:15 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Calling all paediatric dentistry professionals!

PANS PANDAS UK are speaking at the @bspduk summer event, June 6th.

events.teams.microsoft.com/event/129271...

03.06.2025 08:17 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Did you know that PANS and PANDAS are medical conditions that affect children or young people in school?

A summary guide for health professionals is available to download: panspandasuk.org/wp-content/uploads/2024/05/A-guide-for-Health-Professionals-Education-and-PANS-PANDAS-DIGITAL-VERSION.pdf

02.06.2025 14:39 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Scottish Assembly Report - PANS PANDAS UK Welcome to PANS PANDAS' news blog. This post is titled: Scottish Assembly Report

@parentcarerassembly.scot has published a report on "Additional Support for Learning".

You can read the full report here:
www.panspandasuk.org/post/scottish-assembly-report/

29.05.2025 15:41 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Join our informative webinar for parents and carers to learn what to expect during the EHC assessment process in the context of PANS or PANDAS

Led by experienced SEN Solicitor Eleanor Wright, in collaboration with SOS!SEN

πŸ”— Register: panspandasuk.org/wp-content/uploads/2025/05/webinar-guide-1.pdf

29.05.2025 12:41 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Our next teacher training session is on the 11th of June.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation

28.05.2025 07:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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If you are a paediatric dentist and are unaware of how dental concerns can exacerbate symptoms in young people with PANS or PANDAS, join this @bspdofficial.bsky.social event:Β  events.teams.microsoft.com/event/129271...

28.05.2025 07:54 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Our Work in ParliamentΒ  - PANS PANDAS UK Welcome to PANS PANDAS' news blog. This post is titled: Our Work in Parliament

PANS, PANDAS and Parliament!

Since 2020, PANS PANDAS UK and our fantastic community have continually driven political awareness about PANS and PANDAS. Learn more about our parliamentary engagement:

panspandasuk.org/post/our-work-in-parliament

28.05.2025 07:49 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Join the @nicecomms.bsky.social Prioritisation board to share your crucial perspective on topics that affect parents, carers and families affected by ill health: www.nice.org.uk/get-involved...

28.05.2025 07:41 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education.

PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat

19.05.2025 13:42 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Current Education reforms could negatively impact children and young people with PANS and PANDAS.

Find out what PANS PANDAS UK are doing to ensure our voices are heard: panspandasuk.org/post/protecting-vulnerable-voices

22.05.2025 10:27 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Thank you @cathkitchen.bsky.social! Including Learners with Medical Needs in School is a powerful step toward a more inclusive and compassionate education.

PANS PANDAS UK is honoured to be a small part of something so needed tailored for professionals #InclusiveEducation #Gratitude #EdChat

19.05.2025 13:42 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Our next teacher training session is TONIGHT.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation

19.05.2025 11:42 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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PANS PANDAS UK launches Scotland webpage - PANS PANDAS UK Welcome to PANS PANDAS' news blog. This post is titled: PANS PANDAS UK launches Scotland webpage

PANS PANDAS UK's new webpage for Scotland is now live! Growing our work across the devolved nations is so important for improving the lives of our community across the UK.

Visit panspandasuk.org/post/pans-pandas-uk-launches-scotland-webpage to learn more about our work in Scotland.

16.05.2025 12:04 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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If you've ever felt this way, our Youth Advisory Board is the space for you.

Speak out and be heard today: panspandasuk.org/youth-adviso...

12.05.2025 08:39 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

One Week to Go

Our next teacher training session is on 19 May.

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education: panspandasuk.org/events

#TeacherTraining #PANS #PANDAS #Education #SEN #InclusiveEducation

12.05.2025 08:16 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Did you know that Twinkl offers a wide range of educational resources on PANS and PANDAS?

A big thank you to them for making these valuable materials available.

www.twinkl.co.uk/resource/pans-pandas-information-and-cpd-pack-t-s-1643108429

06.05.2025 08:53 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
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Two weeks until the next teacher training session on 19th May

See all our upcoming events here: panspandasuk.org/events

05.05.2025 16:13 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
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The absence of UK clinical guidelines for PANS and PANDAS hinders access to prompt, accurate assessment, diagnosis and treatment and creates a postcode lottery for patients: panspandasuk.org/post/work-continues-apace-on-development-of-clinical-guidelines

02.05.2025 13:52 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 1
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Our PANS PANDAS APPG met again this year to discuss securing prompt and accurate assessment, diagnosis and treatment on the NHS for everyone affected by PANS and PANDAS.

Find out more, and discover how to get your MP involved: panspandasuk.org/post/pans-pa...

01.05.2025 14:17 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 2
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Training, Events and Support Groups - PANS PANDAS UK Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.

Thank you for joining our teacher training session yesterday.

Here are the details for the upcoming sessions.

panspandasuk.org/events

30.04.2025 09:55 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Calling all MPs! Join us on Wednesday to hear from leading experts about PANS and PANDAS, the misunderstood neuropychiatric conditions affecting children in your constituency.
Find out more: panspandasuk.org/post/pans-pa...

28.04.2025 15:27 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 4    πŸ“Œ 6
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Training, Events and Support Groups - PANS PANDAS UK Welcome to PANS PANDAS UK. This is our Training, Events and Support Groups page.

Our next teacher training session is tomorrow.

Date: 29/04
Register now: panspandasuk.org/events/

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education.

#TeacherTraining #PANS #PANDAS #Education #SEN

28.04.2025 14:31 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Don't miss out; the next edition of our community newsletter will be sent soon!

Sign up today for the latest health, education, and community news, as well as important updates about PANS and PANDAS - panspandasuk.org/support-resources/sign-up-to-our-newsletter/

03.04.2025 07:38 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Thank you to everyone who joined us at the RCPCH conference.

Clinical and patient experts came together to advocate for improved care for everyone affected by PANS and PANDAS. #RCPCH2025

Find out more: panspandasuk.org/post/perspectives-on-pans-and-pandas-at-rcpch-2025

03.04.2025 07:36 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more.

Please share with any relevant networks.

#SEND #Teachers #SENDParents #EducationMatters #TeacherTraining

27.03.2025 11:10 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Announcing the new PANS PANDAS UK CEO - PANS PANDAS UK Welcome to PANS PANDAS' news blog. This post is titled: Announcing the new PANS PANDAS UK CEO

The Trustees of the PANS PANDAS UK charity are delighted to announce the appointment of Vicky Burford as the Chief Executive Officer of the charity.

Visit our News to find out more. panspandasuk.org?p=4834

24.03.2025 10:14 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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PANS PANDAS UK in partnership with SOSSEN is delighted to be hosting an upcoming education webinar about #PANS and #PANDAS, for both families and professionals wanting to learn more.

Please share with any relevant networks.

#SEND #Teachers #SENDParents Β #EducationMatters #TeacherTraining

21.03.2025 08:40 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Our next teacher training session is on 19 March.

πŸ“… Date: 19 March
🎟 Register now: panspandasuk.org/events/

Book your place today and gain valuable insights into supporting children with PANS or PANDAS in education.

#TeacherTraining #PANS #PANDAS #SEN #InclusiveEducation

18.03.2025 15:21 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Frequently Asked Questions - PANS PANDAS UK Welcome to PANS PANDAS UK. This is our Frequently Asked Questions page.

Neurodivergent individuals can also develop #PANS or #PANDAS.

Neurodivergent people require equal access to medical evaluation and treatment as required.

More info here -
panspandasuk.org/frequently-a...Β 

#Neurodivergence #NeurodiversityCelebrationWeek

17.03.2025 16:19 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

@panspandasuk is following 19 prominent accounts