Kevin J. Fowler

Kevin J. Fowler

@gratefull080504.bsky.social

Consultant, The Voice of the Patient;COIs: Alexion, Bayer, Biogen, Dimerix, eGenesis, Enyo, Maze Therapeutics MediBeacon, Memo Therapeutics, Phreesia, ProKidney, Purespring Therapeutics , Travere https://www.linkedin.com/in/kevinjohnfowler/

372 Followers 272 Following 101 Posts Joined Nov 2024
1 month ago

Thank you very much Suzie!

1 0 0 0
6 months ago

Thank you very much.

0 0 0 0
10 months ago

Thank you Eric for taking the time to read the article. As I point out in the article, it is time for the transplant community to acknowledge we need to move towards improving QOL and participation in life. Survival is not enough. You understand the issue completely with home dialysis.

1 0 0 0
10 months ago

Happy to have a discussion on the subject with you. I firmly believe QOL + participation in life is where the community should prioritize.

1 0 0 0
10 months ago

I completely agree with your statement. I think the implementation of PROMs allow patients to be heard. Speaking for myself, I have often felt unheard. When patients felt heard, I think the process becomes easier for both parties.

1 0 0 0
10 months ago

Thank you very much for reading the article.

0 0 1 0
10 months ago
Preview
Frontiers Publishing Partnerships | Life After Kidney Transplantation: The Time for a New Narrative The first successful kidney transplant in December 1954 between the Herrick brothers ushered in a new field of medicine. Over the almost seventy years, tho...

I would like to thank Maarten Naesens, MD for the opportunity to write my position statement on where the field of transplantation needs to shift to. Now is the time to improve quality and participation of life after transplant. bit.ly/4jQToAP #openaccess

10 3 4 0
10 months ago

Sad but true. #nephjc

2 0 0 0
10 months ago

Thanks for allowing me to part of the conversation. My final thoughts: This research underscores that AMR is a continuum and the leading cause of graft failure. There is a critical need to understand AMR + develop preventive strategies and treatments so that grafts are not lost. #nephjc

5 0 1 0
10 months ago

Agreed, and the further phenotyping will help lead to treatments for AMR. Kidney transplant physicians need more tools to preserve kidney transplants. The SONG initiative showed that kidney transplant recipients feared going on dialysis more than dying #nephjc

3 1 1 0
10 months ago

and resarch that will lead to treatments that are FDA approved. #nephjc

4 0 0 0
10 months ago

FSGS is now viewed as a continuum. I think rejection is moving in that direction as well. It is a mult-factorial issue that needs to be address in a similar manner. #nephjc

4 0 0 0
10 months ago

Yes. #nephjc

1 0 0 0
10 months ago

Good question that I hope is answered with future research. #nephjc

3 0 0 0
10 months ago

Exactly. It is beginning to occur with IgAN + it is really need in kidney transplantation. #nephjc

4 0 0 0
10 months ago

I will add another hopeful thought. Some of the medications approved for DKD are now being studied in kidney transplantation. They have anti-inflammatory properties that may dampen the inflammatory cascade. #nephjc

3 1 1 0
10 months ago

There is no consensus. Some programs do DSA testing for high risk patients, some for cause, and some annually. I believe the lack of FDA approved treatments has result in a lack of consensus. #nephjc

1 0 0 0
10 months ago

A very important kidney transplant precision study. Understand the various phenotypes + deliver targeted effective treatments #nephjc

2 0 1 0
10 months ago

I wish surveillance DSA testing was done more often. It doesn't identify all of the problems but it is a good start. #nephjc

5 0 1 0
10 months ago

U of Wisconsin represented the US for adult recipients. Pediatric recipients were included as well. #nephjc

3 0 0 0
10 months ago

It is my theory that it does. #nephjc

2 0 0 0
10 months ago

I have seen many friends lose their kidney transplants prematurely. None of the current treatments in the US are FDA approved. Moreover, generally peaking recipients don't receive AMR education. #nephjc

5 1 0 1
10 months ago

Speaking from professional experience surveillance DSA testing is not done routinely. I now have a annual DSA test surveillance test #nephjc

4 0 1 0
10 months ago

I will add this for discussion. The role of inflammation is very important. I work out routinely on my Elliptical since my transplant. I wish there were studies about the role of reducing inflammation + whether that may reduce the inflammation process #Nephjc

3 2 1 0
10 months ago

I am a fan of understanding it so that treatments can be found for AMR #nephjc

6 0 2 0
10 months ago

I have. Very important work to help strategy populations at risk + to develop AMR treatments #nephjc

2 0 0 0
10 months ago

I admire your commitment!! #nephjc

1 0 1 0
10 months ago

#nephjc COI Biogen Worked in kidney transplant since 2017. Consulted for CSL Behring on AMR + now with Biogen KTX since August 2004

7 0 1 0
11 months ago

Malignant stupidity is a nice choice of words. I would add narcissistic stupidity as well.

2 0 0 0
11 months ago

I remember it well.

1 0 0 0