Jeni Baykoca

Jeni Baykoca

@jenibaykoca.bsky.social

PhD student developing @reframems.bsky.social Building an app for people living with MS who experience distress.

135 Followers 186 Following 17 Posts Joined Nov 2024
1 month ago
A photo of the hardback book and a yellow wellbeing journal that came with (and a sticker set, for fun).

So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body.

If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...

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1 month ago

Real lived experience shaping tools for people with MS

If this speaks to you, please consider getting involved 💙

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2 months ago
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This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/

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3 months ago

We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses.

Let us know!

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3 months ago
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Brain scans reveal that mindfulness meditation for pain is not a placebo Brain scans reveal that mindfulness meditation engages different neural pathways compared to placebo, demonstrating that pain relief from mindfulness meditation is not the result of the placebo effect...

Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”

www.eurekalert.org/news-release...

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3 months ago
A speaker stands at a podium giving a presentation. Their body is partially obscured by a tall laptop stand, with only their upper torso and head visible. Behind them, a large projected slide shows the title and content of their presentation on adapting Compass MS from a web-intervention to a standalone app in a conference

Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉

I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.

Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social

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3 months ago

Such an energising session!🤗

I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.

Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊

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6 months ago

There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health.

We have been looking at how to best detect and support mental health difficulties in people living with T1D.

I wrote a blog post that breaks it down in an easy read 📝

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6 months ago
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Can we study mental health in people with type 1 diabetes at scale? 🧠📊

We tested it and it’s doable.

Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!

Link to article: rdcu.be/eCYFj

#T1D #MentalHealth #Research

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8 months ago

Such a great session, Scot, thank you for all your feedback! 🙌 It’s amazing to work with you and the wider group to help shape this app! 🎉

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9 months ago

1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️

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10 months ago

Looking forward to speaking at the
@midshealthpsych.bsky.social Conference! ✨

I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.

Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj

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10 months ago
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Participants needed 📣✨

We're developing a digital support tool for people living with MS experiencing sexual difficulties.

Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers!

shorturl.at/bMjEz

Your input makes a difference 💜

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10 months ago
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When we talk about MS, finding the right words can be tough – but it doesn’t have to be.

That’s why, this MS Awareness Week, the UK’s leading MS charities are teaming up start #MSConversations

This year’s theme is designed to break the stigma and get people talking about MS!

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10 months ago
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Are you a health psychology researcher? We would love to hear from you about your engagement with #OpenScience! Follow the link below to be taken to a brief survey:
psychologygalway.qualtrics.com/jfe/form/SV_...

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10 months ago
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MS doesn’t just affect the body — it can impact mental health too. This MS Awareness Week, we’re talking about it.

Watch the video and join the conversation. #MSAwareness"

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10 months ago

Follow @kcl-ms-research.bsky.social for updates on our upcoming project aiming to support people living with MS! 👇

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11 months ago

So lucky to be a part of this incredible team!

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11 months ago

Exciting things in the works! 🚀

Together with people living with MS, @kingsioppn.bsky.social are creating mobile interventions for the invisible symptoms of MS. 📱

Follow the page for updates as we turn research into reality! 💡🧡

#MultipleSclerosis #DigitalHealth #Research

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1 year ago
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Huge congrats to the @refuelms.bsky.social team on their app launch last week! 🎉

Excited for the upcoming projects in the health psychology team at @kingsioppn.bsky.social, where we're developing an app for psychological distress and other invisible symptoms of MS forming my PhD 🧠📱

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1 year ago
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International Women's Day 2025! The Register are especially grateful for the women we work alongside who have a positive impact on our work and our lives. Read our IWD 2024 blog on inspirational women of the UK MS Register:

blog.msregister.org/celebrating-...

#AccelerateAction
#IWD2025

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1 year ago

🚨 We're still recruiting! 🚨

If you're interested in getting involved, please don't hesitate to contact us or repost this message to help spread the word!

We'd love to hear from you! 🙌

#MultipleSclerosisResearch #MS #ResearchOpportunities

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1 year ago
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📢 🔬 Seeking PPI participants with MS! Help us design a mobile app for pain, psychological distress and sexual difficulties.

Your voice matters 📱🌟

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1 year ago
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Sexual difficulties in #MS are often not asked about or treated. If you want to hear more about our recent trial and how we trying to change this join Dr Ashley Brown, our patient advisers and me on Thurs 16th Jan from 5:00-6:30pm GMT.
bit.ly/421VuHN

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1 year ago
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An early holiday surprise!

My diploma for MSc Mental Health Studies from @kingsioppn.bsky.social arrived 🎊

Feeling so grateful for everyone I met, the modules I took and my amazing dissertation supervisor Dr Madeleine Benton 🌟

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1 year ago
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Just saw Bright Places @sohotheatre.bsky.social An incredibly moving and informing story on living with multiple sclerosis. I laughed, I cried, I felt all humanly possible emotions

It is so amazing to see more representations of MS in theatre and the arts! 🎭
#multiplesclerosis #theatre

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1 year ago
New cross-sectional research published in the Journal of Reproductive, Female and Child Health. Different psychological and social factors may be affecting mother-infant bonding in women with gestational diabetes (GDM).

Different psychological and social factors may be affecting mother-infant bonding in women with gestational diabetes (GDM) during pregnancy and after birth.🤰🧠🌟

📢 Read the full article here! doi.org/10.1002/rfc2...

#maternalhealth

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