Kim Horstmanshof

🚨 Mythbusting #LongCovid with Dr Amir Khan🚨

Long Covid is real. It’s serious. And it’s affecting millions.

On #LongCovidAwarenessDay, #DrAmirKhan joins us to bust harmful myths.

Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.

A black background with centered white text. The heading reads, “In Honour of Ondine Sherwood.” The message states that Long Covid SOS is heartbroken to share the loss of their co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday, 11th March. It expresses love and condolences to her family. A small horizontal line is placed at the bottom.

A black background with centered white text. The message describes Ondine as the driving force and heartbeat of the Long Covid SOS team, a dear friend, and a profound loss to the community. It expresses devastation at her passing but also a commitment to continuing her legacy. The final line states, “We will miss her every day.” A small horizontal line is placed at the bottom.

We are heartbroken to share the loss of our co-founder, CEO, and beloved friend, Ondine, who passed away on Tuesday 11th March.

Longcovidsos.org/post/ondine-sherwood

A teal gradient background fades into black at the edges. White text in an serif font reads: Today, we honour Ondine. Every post we share this Long Covid Awareness Day is dedicated to our co-founder, friend, inspiration, and relentless advocate, Ondine Sherwood. Her passion, determination, and unwavering fight for recognition and support have left an indelible mark on the Long Covid community. Without her, Long Covid would be far less recognised. Without her, countless people would not have found the solidarity, hope, and strength they needed. And without her, our world feels immeasurably smaller. We miss you Ondine, so very much. Today, and always, we continue her fight. For Ondine. For all of us. In the bottom right corner, the Long Covid SOS logo appears in white.

Today, we honour Ondine.

Every post we share on #LongCovidAwarenessDay is dedicated to our co-founder, friend, inspiration & relentless advocate, Ondine Sherwood. Her passion, determination, & unwavering fight for recognition & support have left an indelible mark on the world.

Love this! Can’t wait for mine to arrive!

Watch us pack your #LongCovid Awareness pins with love, in gorgeous spring sunshine accompanied by birdsong 🕊️🌞🌷

Another batch winging their way to you today!

Buy yours at longcovidsos.org/shop
- there’s still time!

#longcovidawareness #longcovidawarenessday #fyp #packanorderwithme #birdsong

Promotional graphic for a Long Covid Awareness Day enamel pin. The background is a black colour with a silhouetted heart made of campaigning ribbons. At the top, bold white text reads ‘Pre-order now,’ followed by white text stating, ‘ Long Covid Awareness Day Enamel Pins’ In the center, there is a ribbon design with one teal side and one metallic silver side, featuring the words ‘LONG COVID SOS’ printed on the silver portion. Below the ribbon, white text says ‘Available to pre-order from Feb 15th Wear yours with pride on March 15th to show support!’

The last week has seen direct and indirect denials of #LongCovid’s existence & attacks on the #LongCovid community.

In a world of denial, it’s not easy to know who supports us. Advocacy on social media & through community networks helps us weather these storms together.

Definitely lying down and speaking out here!

SHOP | Long Covid SOS Help us to continue our work to to push for greater recognition and understanding of Long Covid, to drive forward targeted research and to provide support and resources to those struggling to recover.

And don’t forget our new #LongCovidAwareness ribbon pin badges, sold directly by us at longcovidsos.org/shop - international & UK shipping available, starting at £3+P&P

Wear it with pride, and show solidarity with our #CovidConscious community 🩵🩶🖤

An orange background with silhouetted textured Long Covid SOS logo A cream t-shirt on a hanger with an image of a Long Covid Awareness ribbon in grey, black and teal stretching out across the shirt to wrap around a Long Covid SOS lifering with coronavirus silhouette. Black text overlay at the top left of the image says 22% off everything 11-17 February Be Prepared! At the bottom right there is black text saying 15 March #LongCovidAwarenessDay

Reminder of the sale on all of our #LongCovidAwareness fundraising merch continues through Monday 17th - don’t hang around!

Click through to our global store here to get ready for International #LongCovid Awareness Day on 15 March

longcovidsos.myspreadshop.co.uk

Promotional graphic for a Long Covid Awareness Day enamel pin. The background is a black colour with a silhouetted heart made of campaigning ribbons. At the top, bold white text reads ‘Pre-order now,’ followed by white text stating, ‘ Long Covid Awareness Day Enamel Pins’ In the center, there is a ribbon design with one teal side and one metallic silver side, featuring the words ‘LONG COVID SOS’ printed on the silver portion. Below the ribbon, white text says ‘Available to pre-order from Feb 15th Wear yours with pride on March 15th to show support!’

Our ribbon pin represents all that is positive and powerful about our #LongCovid community.

Pre-order yours today and wear it with pride. International & UK shipping begins early March, ready for International Long Covid Awareness Day on 15th March

www.longcovidsos.org/shop

New ribbon pins for Long Covid Awareness Day - pre-orders open! Discover our new Long Covid Awareness ribbon pin representing all that is positive and powerful about our community. Pre-order yours today and wear it with pride.

Huge thanks to everyone who has pre-ordered our new limited edition #LongCovidAwareness ribbon pins, we didn’t expect so many sales so soon!

Our team have written about why these pins are such an important & powerful sign of our community’s strength

www.longcovidsos.org/post/new-rib...

SHOP | Long Covid SOS Help us to continue our work to to push for greater recognition and understanding of Long Covid, to drive forward targeted research and to provide support and resources to those struggling to recover.

🚨 Limited Edition Alert! 🚨

Show your support for Long Covid Awareness Day on March 15th with our exclusive enamel pin! 💙✨

Pre-order NOW before they’re gone—let’s raise awareness together! ⬇️

www.longcovidsos.org/shop

#LongCovid #LongCovidAwarenessDay #WearItWithPride

We were shocked by this Sky News report suggesting with little more than anecdotes that increased presentations at A&E by young people with chest pain is due to health anxiety when chest pain & palpitations are common #LongCovid symptoms

A black background with a stack of mugs with Long Covid Awareness Day slogans and designs. Text around the mugs says: 22% off everything 11-17 February Not just mugs Get ready for LongCovidAwarenessDay

#LongCovid making you feel muggy-headed?

We’ve got a mugnificent 22% off fundraising mugs - and more- to lift your spirits (and your coffee) for #LongCovidAwarenessDay on 15 March

longcovidsos.myspreadshop.co.uk/accessories+...

Last night, the Trump administration stated that it would not fire probationary employees. However, layoffs of probationary employees have already begun at several offices, including the CFPB, OPM, and GSA, and are still continuing today.

A partial image of a white t-shirt hanging up. The t-shirt has the slogan F* Long Covid with the F* followed by a stylised awareness ribbon on its side that looks like the letters c and k. Above the image there is text saying: 22% off everything 11 - 17 Feb #LongCovidAwarenessDay March 15 2025 BE PREPARED!

A late alert for all of our international followers - 22% off all our fundraising merch today through Monday 17th.

Express your feelings about #LongCovid, raise awareness, and be ready for #LongCovidAwarenessDay on 25 March.

longcovidsos.myspreadshop.co.uk/f+lc+-+aware...

How are you? I’m fine…. Why do we do this?

🤐 Because explaining all of it is exhausting - physically, mentally, and emotionally. #LongCovid is complex, and most people don’t truly understand it. And many would rather not know.

A light background with the Long Covid SOs logo and the following text: We’re incredibly disappointed by the reported comments made by Andrew Gwynne and send our thoughts to those affected. We urge the Prime Minister and Health Secretary to appoint a replacement with lived experience of post-viral / chronic illness as junior health minister to ensure the unheard voices of millions are represented in government.

Our statement on Andrew Gwynne’s sacking as junior minister for Public Health and Prevention

www.theguardian.com/politics/202...

#longcovid #AndrewGwynne

@longcovidsupport.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social

A grey background with the following text: Statement of Concern: The Future of Long Covid Clinics We have received numerous emails and messages from patients, families, and healthcare professionals expressing deep concern over the potential closure of Long Covid clinics. These clinics provide vital, specialised care for thousands of people still struggling with the long-term effects of Covid-19. Long Covid SOS

A grey background with the following text: Without these dedicated services, patients will be left without the support they desperately need, placing further strain on GPs, hospitals, and the wider healthcare system. We need more and better funding for these clinics, not their closures. The loss of these clinics would not only harm individuals but also have wider consequences for the workforce and economy, as many people with Long Covid struggle to return to work. Long Covid SOS

A grey background with the following text: We urge decision-makers to listen to these concerns and commit to keeping Long Covid clinics open, fully funded, and accessible. We will be actively pursuing this issue and pushing for the continued support, more funding and expansion of these vital services. Failing to act would be a step backwards in addressing the long-term consequences of the pandemic and would leave many without the care they need to recover. Long Covid SOS

Statement of Concern regarding the future of #LongCovidClinics across the UK (in pics & alt text)

We are receiving many messages from the #LongCovid community about announced/ potential closures.

We are actively pursuing this issue urgently as answers are needed. We hope better news lies ahead 🤞

Differential protection against SARS-CoV-2 reinfection pre- and post-Omicron - Nature Two distinct patterns in the protective effect of natural infection against reinfection in the Omicron variant versus pre-Omicron eras show that SARS-CoV-2 immune protection is shaped by dynamic interaction between host immunity and viral evolution.

The protective effects of natural infection against repeated exposure to SARS-CoV-2 reduced substantially after the emergence of the Omicron variant, according to a study in Nature.

A decline was observed in both the level of protection and duration of immunity in the post-Omicron era. 🧪

As Labour touts more brutal cuts to benefits, how is this different from life under the Tories? | Frances Ryan There may be no nasty impulse to punish ‘skivers’, but the end result – those who need help most hit hardest – is exactly the same, says columnist Frances Ryan

Labour is expected to finalise a package of benefit cuts in the next fortnight in a “radical overhaul” that could affect hundreds of thousands of disabled people.

My col. in today’s paper on a system that expects those with the least to lose the most.  www.theguardian.com/commentisfre...

"Living nightmare": Long COVID upends lives and finances | Context Long COVID sufferers in Britain tell of lives devastated by "invisible" condition that is costing countries billions of dollars

#LongCovid sufferers in Britain .. lives devastated by "invisible" condition...costing countries billions of dollars
Significant numbers taken out of the workforce, desperate, forgotten, struggling,
please share and support us raising awareness

www.context.news/socioeconomi...

1. If Trump runs out of immigrants to persecute, I suspect the next target for his performative sadism will be people with disabilities. Already, without a shred of evidence, he has blamed the air crash on disabled air traffic controllers, with horrible, stereotyping slurs about their disabilities.🧵

4. Already, he is attacking trans and gay people, Black and Brown people, Muslims, women, political opponents, journalists .... For the far right, the list of potential victims never ends. Either we stand with all those they target, or we will be picked off one by one.

This account is for sharing info with US scientists, both extramural and intramural to NIH, about attacks on science in the US.

Education is power, and we can help advocate for science and medicine together. 💪🧪

We are a team of NIH people. Please ask us questions you might have.

Covid 'brain fog' likely factor in train's near-miss Transport Accident Investigation Commission finds a KiwiRail engineer was likely to be cognitively impaired when he ran a stop signal near Arthur's Pass.

Covid 'brain fog' likely factor in train's near-miss
www.1news.co.nz/2025/01/30/c...
A locomotive engineer experiencing brain fog after #COVID infection likely played a role in a KiwiRail coal train's near miss with another train, an investigation has found.

No one could have foreseen this. 🙄

A reader with a terminal illness emailed in despair. What she told me should shock us all | Frances Ryan Rosy is unable to move, breathe or eat unassisted. Yet for hours a day she is being left completely alone Last September, I received an email from a reader called Rosy. At just 53, motor neurone disease meant Rosy was losing her body as she knew it,…

A reader with a terminal illness emailed in despair. What she told me should shock us all | Frances Ryan

This is the worst news for Rugby Union in the UK for decades. The Six Nations is the only time most people here give a shit about rugby. You take that off free-to-air TV and the sport becomes a closed shop with no shot at ever growing.