Todd Davenport

🙏🙏🙏

Upcoming Renegade Research Events Renegade Research hosts a series of Research Roundtables and Clinician's Roundtables. Upcoming events in March are: Clinician’s Roundtable: John Haughton MD, MS - The Remission Biome Protocol. Clinicians and patients are invited to learn the protocol in detail. March 7, 2025 - 1:00 PM ET (10:00 AM PT). Register here. Clinician’s Roundtable: Tania Dempsey, MD - Vector-borne illnesses. Co-infections in ME/CFS and Long COVID. March 14, 2025 - 1:00 PM ET (10:00 AM PT). Register here. Research Roundtable: The Acid Test: a Patient-led Study of Lactate in ME/CFS and Long COVID Todd Davenport, PhD, and Ciara Wright, PhD. will discuss the latest research on this patient-led study. March 28, 2025 - 1:00 PM ET (10:00 AM PT). Register here.

Upcoming Renegade Research @renegaderesearch.bsky.social Events

www.renegade-research.org
us06web.zoom.us/webinar/regi...
us06web.zoom.us/webinar/regi...
us06web.zoom.us/webinar/regi...

Image:
massmecfs.org/newsletters/...

#LongCovid #MEcfs @sunsopeningband.bsky.social @ciarawrightphd.bsky.social

Todd Davenport and I were on Cochrane's author team for a full update of their #MECFS exercise review. We wrote this open letter to them, critical of their decision to disband the effort, called for withdrawal of current review
@sunsopeningband.bsky.social (1/2)

drive.google.com/file/d/12__3...

Todd and I also wrote an open letter to the #MECFS community to:
a) share the final version of the draft protocol for the ME/CFS exercise review as submitted to Cochrane in Feb 2023
b) solicit comments as originally promised (2/2)
@sunsopeningband.bsky.social
drive.google.com/file/d/1JK06...

YouTube video by NeurologistMom A message from Todd Davenport on Long COVID Awareness Day 2025

“The first step in being hopeful, I think, is being honest. That keeps hope from becoming baselessly optimistic and untethered from reality...”
Todd Davenport @sunsopeningband.bsky.social has a message for us. #LC2025hopevideos Thank you for your honesty about hope!

youtu.be/dEXtHJPbDbw?...

Cochrane review Exercise therapy for ME/CFS The cancelled protocol for a new review An author group was appointed in 2020 to write a new protocol and review to replace the 2019 review, Exercise Therapy for CFS by Larun et al. Cochrane announced in December 2024 that they had rejected the protocol, and cancelled the new review process. Letter to the Cochrane Board Two members of the author team, Mary Dimmock and Todd Davenport, have written to Dr. Susan Phillips, Chair, Cochrane Governing Board. They express their shock at Cochrane's decision, reveal the lengthy process they went through with Cochrane to agree the protocol, with four revisions, question the grounds for Cochrane's decisions, and argue that Cochrane's rules should allow the review to be withdrawn on the grounds of harm. They conclude: "Accordingly, we call on Cochrane to immediately withdraw the Larun et al ME/CFS exercise review." Thread with letter

The cancelled protocol for a new Cochrane review of exercise therapy for ME/CFS by @marydimmock.bsky.social & @sunsopeningband.bsky.social

www.s4me.info/threads/2025...

From the latest Science for ME weekly update

#MEcfs #CFS

“The net result of all this is that Cochrane has flash-incinerated their credibility, or what was left of it” Prof Todd Davenport @sunsopeningband.bsky.social

“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review Posted by David Tuller – February 4, 2025 Headshot of Dr. Karla Soares-Weiser, with a tan background on either side of the photo Cochrane editor-in-chief Dr. Karla Soares-Weiser. Image via Cochrane / BMJ. Key points you should know: Cochrane produces systematic reviews of medical interventions that are influential for clinicians seeking to provide evidence-based care. A 2019 review controversially recommended exercise therapy for ME/CFS, despite questions about the quality of the evidence and the experiences of people with the disease. Cochrane acknowledged problems with the review and promised a complete update, then abruptly dropped the update project in December 2024. The situation has sparked sharp criticism of Cochrane from ME/CFS advocates and researchers. An online petition seeking withdrawal of the 2019 review has attracted more than 15,000 signers.

Useful piece with some depth by David Tuller @davetuller1.bsky.social

“Really pissed off”: Cochrane receives backlash from advocates and experts after abandoning ME/CFS review

thesicktimes.org/2025/02/04/r...

Has quotes from Todd Davenport @sunsopeningband.bsky.social & Mary Dimmock

#MEcfs #CFS

🙏🙏🙏

Trump commands HHS to terminate advisory committee on Long COVID - The Sick Times A new executive order from the Trump Administration commands the Department of Health and Human Services (HHS) to terminate the Secretary’s Advisory Committee on Long COVID. The order, “Commencing the...

“The Biden administration had its own softer version of COVID erasure...’” said @sunsopeningband.bsky.social “I think Trump is just being much more explicit about erasing COVID.”

thesicktimes.org/2025/02/21/t...

Every week, I check the CDC's Mortality and Morbidity Weekly Report. This week for the first time in its 60 years it was not published on schedule. American healthcare workers all over the country are less informed about health crises that affect their patients. CDC led reports matter a 🧵

If u like chronic illness humor, you will like my account

I don’t really know what I am anymore but I would be happy to help if needed. Thank you for thinking to tag me. 🙌🏻

Totally makes sense to me.

Another clown car.

Devastating for scientists and their research, and everyone who benefits from that research.

I’m not sure if everyone outside academia is aware that a delay or “pause” in grant funding often means the researchers themselves are lost from the field, along with their expertise.

Long COVID Is Not a Functional Neurologic Disorder Long COVID is a common sequela of SARS-CoV-2 infection. Data from numerous scientific studies indicate that long COVID involves a complex interaction between pathophysiological processes. Long COVID m...

Dazu würde ja auch passen, was
@sunsopeningband.bsky.social kürzlich veröffentlicht hat. Hier zwar bezogen auf Long Covid, aber für mein Empfinden lässt sich das gar nicht mehr trennen von #MECFS:

www.mdpi.com/2075-4426/14...

Just received notice that my NIH study section next week has been cancelled. It has nothing to do with DEI and will have a negative impact on critical cancer research.

A treasure. Thanks for the tag. 🙏🏻

related: did i just miss the moment when these freaks added A-for-accessibility to DEI?

An administration willing to capriciously halt NIH activity wants to appoint as NIH Director Jay Bhattacharya, who has spread conspiracy theories about the agency.
(ht @gorskon.bsky.social)

www.respectfulinsolence.com/2022/05/03/n...

The thing that’s most striking about this is that they set up an e-mail account specifically for people to report on each other for any attempt to implement “DEIA or similar ideologies” and threatened “adverse consequences” for NOT reporting.

If you’ve been directly impacted by a pause or cancellation of an NIH study session, we @forbes.com would like to talk to you

Scientific advancements aside, this is economically irresponsible

Every $1 spent by NIH generates $2.46

For example, in 2023, $47B in NIH spending generated ~$93B

Halting NIH spending will LOSE the US a lot of money (and talent)

Yes I am relearning that. ☺️

I like the quiet on here from no outrage algorithm but it’s hard to tell whether some of the stuff I post gets seen because there’s never much engagement. Maybe that will change over time because I’m still new. For now, it’s hard to know if I’m just posting these long threads into the void. Oh well.

This is all good to remember. Thank you!

But the price of eggs!

Ah. That never would have occurred to me. Thanks!