@elsihub.bsky.social
ELSIhub.org is an online hub supporting work in ELSI of genetics & genomics. ELSIhub is managed by the Center for ELSI Resources and Analysis (CERA). https://linktr.ee/elsihub
Lunchtime Lecture Series by The Working Group on Pediatric Gene Therapy & Medical Ethics (PGTME) at @nyumedpostdocs.bsky.social !
This week from 12-1:15pm ET daily, PGTME will host sessions on pressing topics in the gene therapy space.
Visit our ELSI calendar: elsihub.org/news-and-eve...
Today! Join our discussion
14.11.2025 13:41 — 👍 0 🔁 0 💬 0 📌 0Watch the recording of the Journal Club: elsihub.org/video/octobe...
13.11.2025 15:02 — 👍 0 🔁 0 💬 0 📌 0It represents historical patterns of migration and integration, rather than a static racial/ethnic category.
The variation has great implications in using racial/ethnic categories in research especially regarding measuring genetic differences.
Pic 2: Among Hispanic or Latino participants, ancestry patterns varied even more geographically - European ancestry was highest in states such as Florida and Pennsylvania. Native American ancestry was highest in western and southwestern states. African ancestry is highest in New York.
13.11.2025 15:02 — 👍 0 🔁 0 💬 1 📌 0
Pic 1: Hispanic or Latino participants had, on average, about half European ancestry, one-third Native American, and a smaller portion African.
13.11.2025 15:02 — 👍 0 🔁 0 💬 1 📌 0
🧵Why self-reported race/ethnicity cannot represent ancestry?
In our last Journal Club, Author Mateus H. Gouveia shared important insight from the paper, "Subcontinental genetic variation in the All of Us Research Program". The ancestry data from All of Us program shows great variation
This Friday! Sign up for a great opportunity to talk about researcher's commitment to the Autism community. cumc.co1.qualtrics.com/jfe/form/SV_...
12.11.2025 18:01 — 👍 0 🔁 0 💬 0 📌 0
ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff.
Our November 2025 set explores interventions to increase genetic testing for breast cancer and more.
Read: elsihub.org/news/elsi-re...
National Human Genome Research Institute (NHGRI) is hiring a new Director, and we’re helping spread the word across the ELSI community.
This leadership role oversees NHGRI’s scientific vision, research portfolio, and its long-standing commitment to ELSI.
Due Nov 21.
hr.nih.gov/careers/open...
A new collaboration between The Hastings Center for Bioethics and Rockefeller University is working to expand global access to emerging medical technologies. 🌍🧬
🔗Learn more, https://bit.ly/4qTn4Be
#GlobalHealth #Bioethics #MedicalInnovation #HealthEquity
👩🏫 💻 STEM educators: How can your students gain experience with real-world #genomics data?
The Database Tutorials module provides guidance for using #BLAST, #cBioPortal, #PolyPhen-2 and #UniProt in classrooms or independent projects: www.jax.org/education-an...
#Dataskyence #EduSky
An exciting hybrid event in our ELSI Orbit:
"15th Annual Ethics Conference: Research Ethics & Novel Biotechnologies: When Tech is On You, In You, Over You, and More"
Keynote: "The Ethics and Futures of Wearable Self-Surveillance".
More info: elsihub.org/event/15th-a...
We’re delighted to welcome Dr. Monique Botha, co-author of this study, as one of our speakers. Join now!
Register: cumc.co1.qualtrics.com/jfe/form/SV_...
In our upcoming ELSI Friday Forum, we’ll discuss the responsibilities of autism researchers to the individuals and communities they study — including the promotion of wellbeing, implementation, and best practices for engagement and communication of study results.
07.11.2025 15:18 — 👍 3 🔁 1 💬 1 📌 0🔍The authors show that those who use medicalized narratives are more likely to display ableist cues, whereas researchers who include autistic people in their work or adopt social or embodiment models show fewer such cues.
07.11.2025 15:18 — 👍 2 🔁 1 💬 1 📌 0🔍Using survey data from 195 autism researchers, the study finds that some research languages can reproduce ableist ideas — through dehumanization, objectification, or stigmatization. Language itself can normalize exclusion and even violence when it obscures the humanity of autistic people.
07.11.2025 15:18 — 👍 3 🔁 1 💬 1 📌 0
How researchers talk about autism matters. 🧵
🔍In their 2022 paper, “Autism research is in crisis” (Frontiers in Psychology), Monique Botha and Eilidh Cage examine how autism researchers construct autistic people through their language and frameworks.
A great webinar on the ELSI of embryo testing - don't miss it!
05.11.2025 14:30 — 👍 1 🔁 0 💬 0 📌 0
🗓️Save the date - ELSI Congress 2026
The 2026 ELSI Congress will be held June 22-24, at the Friday Conference Center in Chapel Hill, NC.
The organizing committee wants to hear your thoughts on the theme(s)!
Join our discussion on ELSIconnect here: connect.elsihub.org/c/announceme...
Hi, this link works on my side. You can try scanning the QR code!
04.11.2025 13:15 — 👍 1 🔁 0 💬 0 📌 0Join the discussion at our next ELSI Friday Forum, with speakers Tara Eicher, Monique Botha, and Ari Ne'eman.
03.11.2025 19:46 — 👍 1 🔁 0 💬 0 📌 0❓ Which types of genomic studies promote community benefits?
❓Who should decide what are the desirable benefits from genomic research, and in what ways?
❓What measures should be taken to ensure that data collected from Autistic individuals is not used in ways that cause harm?
Genomic and other Autism research raises hopes for improved health outcomes yet also raises concerns.
💡Join our upcoming #ELSIFridayForum to explore the responsibilities of Autism researchers towards the individuals and community they study.
Signup: cumc.co1.qualtrics.com/jfe/form/SV_...
As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social .
Learn more: elsihub.org/news/call-ma...
This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.
29.10.2025 14:02 — 👍 1 🔁 4 💬 0 📌 0Check out the latest episode of GenePod, the podcast of
@gimjournal.bsky.social
Dr. Katharine Press Callahan discusses parents’ perceptions of the utility of genetic testing in the NICU.
The episode was created as part of the CERA collaboration with GIM.
www.gimjournal.org/audio-do/spe...
This Friday! Join our Journal Club to discuss the implications of subcontinental genetic variation.
29.10.2025 14:02 — 👍 1 🔁 4 💬 0 📌 0
As part of the CERA partnership with @gimjournal.bsky.social , an official journal of @theacmg.bsky.social , CERA invites ELSI-related proposals for review or commentary manuscripts for potential publication in GiM or @gimopenjournal.bsky.social .
Learn more: elsihub.org/news/call-ma...
Are you in Portland for #ASBH2025 ? Check out our list of #ELSI -related presentations and panels. Connect with ELSI scholars and let us know about what's you're up to!
connect.elsihub.org/c/general-di...
