@ladaorg.bsky.social
Improving access to care and quality of life by wielding the patient and care partner voice as a catalyst to advance advocacy, education, awareness and research efforts.
Now is the time to act: the #MCEDact must pass. We join @preventcancer.org in calling on our NY leaders @chuckschumer.com and @hakeem-jeffries.bsky.com
to pass this crucial legislation to improve access to the latest early #cancer detection tools. @lupuschat.bsky.social @infusionaccessfoundation.org
The 340B Program’s costs skyrocketed from $6.6B in 2010 to $43.9B in 2021, but patients are missing the savings. We need transparency and reform to support patients in need.
@SenMullin, Congress must pass #340BReform.
www.cbo.gov/publication/...
#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
Want to see Medicaid’s impact on your community? @ModernMedicaid’s updated #MedicaidDashboard is a one-stop-shop for national, state and district-level enrollment data. Check out the site for more: data.modernmedicaid.org @lupuschat.bsky.social @michiganlupus.bsky.social @caringforlupus.bsky.social
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus
No es necesario navegar por páginas de farmacias este otoño: el nuevo Localizador de Vacunas de @CVEEPSocial lo ha simplificado. Encuentra
sitios de vacunación cercanos en un solo lugar y este otoño, programa tu cita fácilmente. Más: cveep.org/es/vaccine-locator/ @lupuschat.bsky.social
Fall is a critical time to stay protected against respiratory diseases.
@CVEEPSocial’s new Vaccine Locator is a helpful tool that makes finding a nearby vaccination site easy. Find pharmacies and health centers and schedule an appointment today: cveep.org/vaccine-locator @lupuschat.bsky.social
CC for interest
@kristenyoung.bsky.social
@rheumcat.bsky.social
@lupusdnadoc.bsky.social
@lupuschat.bsky.social
@ladaorg.bsky.social
@lupusresearch.bsky.social
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Dr. Jillian Rose also shared some great analogies for what NOT talking about sex health is like!
🔸…it’s like treating half the disease.
🔸…is like measuring function without asking about QoL (quality of life)
See images for reference ↴ #ACR25
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
cc @ladaorg.bsky.social
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
These abstracts are embargoed until 10/25.
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
We are thrilled to share that our 25th Annual #Lupus Charity Golf Classic raised over $205,000 last week at Shenendoah Golf Course and we donated another $539,724 for #LupusResearch. Thank you to our volunteers, sponsors, golfers and #TurningStone sales, catering and golf staff.
We are one of 77 groups urging Sens. Rick Scott and Ashley Moody to reject proposed federal cuts to health care and SNAP.
Floridians will experience a devastating loss of essential health coverage & food assistance if these cuts are enacted. www.floridapolicy.org/posts/77-gro...
Thank you to #BIO
and Michele for giving our President & CEO Kathleen Arntsen the opportunity to share her #Autoimmune journey at #BIO2025 and why #Advocacy and Research are important. @annezab.bsky.social
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
We need crosssector collaborations, public-private partnerships and robust basic, clinical and translational projects to identify biomarkers, better clinical trial methodologies, prevent complications, develop better dx measures and safer, >effective #lupus drugs and cures. @lupuschat.bsky.social
#Lupus is considered a disease of unmet medical need because of the lack of efficient diagnostic tools, effective therapies, and well-designed clinical trials.
#LupusAwarenessMonth #LupusAwareness
@lupuschat.bsky.social @caringforlupus.bsky.social @michiganlupus.bsky.social @ghlforg.bsky.social
The annual per patient cost to employers, including medical care, work absence, and shortterm disability, is higher than for other chronic diseases such as diabetes, chronic obstructive pulmonary disease, and heart disease. #LupusAwareness
@lupuschat.bsky.social
@masonicresearch.bsky.social
Many #lupus patients are concerned with potential side effects of both drug interventions as well as disease worsening such as hair loss, rashes, weight gain, gastrointestinal problems; outcomes that may be socially challenging to young people in the prime of their lives. @lupuschat.bsky.social