Sacha

I don't know how to get more uk stuff. I keep trying and I just keep getting more and more US followers and really random ones too. It's bizarre.

The washing machine still needs emptying and hanging and then reloading, the floor needs vacuuming. Jobs for later I think. Now I'm going to watch The Last WitchHunter and finish a baby blanket. #chronicillness

The bathroom. The bathroom is the one the autistic 22yr old uses and he's left it a mess. Obviously that means I now need to clean the bathroom!
By the time all these side quests are done and I'm sat down with a drink, 2 hours have passed. No wonder I'm told I'm no good at pacing! #chronicillness

Planned a rest day today so what do I do. Obviously change cat litter tray because that's necessary, that leads to the bin needing emptying, so I change the bin, then I need new bin bags. Put a cup in the dishwasher, but that needs emptying, so that gets emptied and something needs putting in

#chronicpain #eds #postcovidfatigue #longcovid #fybromyalgia #crps #chronicillness #painconditions #arthritis #degenerativediscdisease

He got the all clear! It's not cancer. Happy Christmas one and all! Now I can finally breathe after feeling like I've been in a holding pattern the last few weeks!

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Monday again. Good morning all. What wonders do we have in store this week?

Why is everyone's answer to #chronicillness yoga and stretching? If it was that easy, I'd have been cured years ago. No need for the years of physio, consultants, PT's at the gym and investigations 🙈🙈🙈 #heds #nervedamage #spinalstenosis

There. Wasn't that a small outpouring of splurge from my brain. I may have to delete that one later

a group of cats are standing next to each other on a wooden floor and one of them is saying `` me '' . ALT: a group of cats are standing next to each other on a wooden floor and one of them is saying `` me '' .

I have my grandchildren before & after school so her mum can work and she doesn't get the best of me that she deserves. I don't have the spoons. Instead, I act ok. I say "I'm fine". I carry on. And then lay awake in the middle of the night with my brain whirling, my back hurting and the day restarts

Navigating my #chronicillness whilst caring for my son (22, autism, LD, ADHD, receptive language delay etc) and my husband (wheelchair user, Spina Bifida, various investigations going on for scary things) is hard! I'm tired, mentally. I don't feel like I'm giving my best to people that deserve it

I've walked for 10 minutes. I'll be in pain.
Having to juggle my day like a circus performer spinning plates, to make sure that if I do a, then I can still do b but I might have to put off c til tomorrow. If I do d though. I'll definitely have to make that the only thing I do.

The handful of tablets (currently 10 am + 15pm) that usher in and out each end of the day and the need to check each bag/cost has a supply of spare painkillers when I leave the house.
Having to remember to grab a walking stick because even though I may not be wobbly "at that second", by the time

I don't want to be that person that bangs on about #chronicpain all the time but every morning the pain in my back is there when I open eyes, waiting to greet me like a constant companion. The leg weakness and the initial stumbling on the the way to the bathroom are a daily "hello" from my leg.

This is so true #chronicpain

Christmas shopping and then wrapping to do today. What do you buy the man who is not bothered by gifts? Suggestions welcomed. His interests are football (watching and playing on the pc), Xbox games, going to the gym and watching tv/films.

Christmas jumper day at doggy daycare. Didn't he look cute 🥰 #dog #doggydaycare

I am awake. There is a small fluffy dog wedged in the small of my back and a Maine Coon by my feet. This is progress. Earlier on, the Maine Coon was on my pillow pretending to be a hat. I need to get up to use the bathroom. This will disturb them so I will suffer for now.

I cannot believe I have 1.3k followers on here. That completely blows my tiny little mind. Welcome to all of you and welcome to my inane ramblings. They are intermittently mixed in with rants about the disability system and access and healthcare/welfare repostings

#deadboydetectives is worth watching if you are looking for a nice easy watch on Netflix. It's based on the characters by Neil Gaiman and Matt Wagner and it's very bingeable

I had the most amazing time in #London with my mum, visiting #Kew, #IdealHome & #WinterWonderland but I'm paying for it now. Not left the sofa for 2 days. #chronicillness #exhausted #painflare

I can confirm that wrapping your freshly made burger in foil for 5 minutes makes it all gooey and melty and just like a 5 guys burger. 🍔🍔

So sorry for your loss 🥺

Energy saving streetlights are rubbish. I should not have to walk home at 5pm with a bloody torch on because the streetlights don't illuminate anything.

Not looking forward to a full afternoon travelling on the trains but I cannot wait to get home to my own bed. Also not looking forward to the recovery from 3 days away. #chronicillnesstax

Why are sofa beds one of the most uncomfortable torture implements invented by man?

Hi

Max is ready for the season following his visit to his amazing groomer this morning. #dogpics

A picture taken at the London TUC demo of me standing with a royal college of nursing sign saying it's time to pay nursing staff fairly

Im reliably told #socialistsunday is a thing here. I'm new to Bluesky this week looking to connect with NHS
supporters

I'm a Nurse activist,
campaigning since 2020 for better conditions for NHS workers & against privatisation

I follow back 100% within 24hrs

Please 🔃 Thank you ✊