Imagine reading multiple peer-reviewed medical journals, seeing clear evidence of a condition, then looking someone dead in the eyes and saying, ‘This isn’t true.’
As if science only counts when it’s convenient and fits your narrative.
This is the current healthcare system.
#chronicillness #POTS
Chronic illness folk often times hear“I’m tired too” when talking to others about fatigue.
Yes, you had a long day and are drained from work, that is completely understandable and we sympathize.
The difference is you’ll go to bed and wake up refreshed, We won’t.
#chronicillness #POTS
Living with a #chronicillness turns everyday tasks into hurdles.
Folding laundry? Exhausted after one load.
Making dinner? Pain kicks in halfway through.
Chat with a friend? Brain fog steals your words.
Grocery shopping? Need a day to recover.
Quick shower? Feels like you ran a marathon.
This disconnect creates frustration on both sides. Those with invisible disabilities feel unseen and unsupported, while others may feel confused or hurt by behaviors they misinterpret.
Without visible signs, loved ones and friends might interpret behaviors as laziness, being antisocial, or lacking commitment. But often, we’re using all our energy just to function at a basic level
Washing the dishes may seem like something easy that requires little energy, but for someone with chronic illness, doing this task may use up all our energy for the day.
Many of us with invisible disabilities push ourselves just to keep up. We may look fine, but what you don’t see is the intense effort it takes just to get through the day or a certain task.
People with invisible disabilities often face unique challenges in relationships. When symptoms and limitations aren’t visible, it can be tough for others to understand what’s really going on.
Living with an invisible #disability means fighting battles others can’t see. In relationships, this can lead to misunderstandings that leave us feeling isolated and misunderstood. Let’s talk about why. 👇
I miss the days where fatigue wasn’t kicking my ass 24/7
#POTS #chronicillness
#disability
I think most "healthy" people who don't have a chronic illness, think doctors can cure every ailment.
That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed.
The illusion is definitely shattered when you have an illness that can’t be cured.
#POTS
If you’re healthy and you really want to know what it’s like living with chronic illness, try not eating or sleeping for three days.
Then go and try to function in the outside world.
#chronicillness #disability #POTS #invisibleillness
I’m not ready for snow or winter. Yes I’m happy the worst of the heat from the summer is over but I don’t do well in extreme cold either.
Everyone thinks of heat intolerance when it comes to Dysautonomia but cold intolerance is a thing as well.
I’m lucky enough to have both.
#chronicillness
What are your #chronicillness essentials when leaving the house?
For me it’s
1. Water
2. Electrolytes
4. Compression socks
It’s such a struggle
I see you!
I’m sorry
Exactly
Me everyday with a chronic illness:
I don't feel well. Is it my chronic illness? Is it a cold? Is it the weather? Is it because I'm stressed? Is it because I did to much yesterday? Is it because I slept bad? Is it a new illness? Is it a flare? Do I need electrolytes?
#POTS #chronicillness
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Penalizing patients for not canceling appointments 24+ hours in advance seems a bit unfair to me.
Life is unpredictable, especially when you suffer from a chronic illness.
We can’t predict how we will feel 24 hours in advance or even an hour in advance.
#disability #chronicillness #POTS
Now, I’ve realized how little those things really matter. Losing your health has a way of shifting your perspective on what’s truly important. #POTS #invisibleillness #disability
I’m talking about things like traffic or the weather—stuff that used to upset me all the time. I used to stress over those things, too, until I got sick.
Does anyone else find themselves caring less about the small stuff after developing a #chronicillness?
What Are Adrenaline Dumps?
Adrenaline dumps, also called surges or rushes, are intense bursts of the hormone adrenaline that flood your system, usually in response to stress or perceived danger. This is a natural fight-or-flight response, where your body prepares to either face a threat or escape.
Oh wow that’s awesome! Not the chronic illness part but I mean you’re mom Being part of the usps!
Hello all, my name is GC. I am a mailman who suffers from #POTS #hEDS and possibly #sjogrens.
This is account is mainly to spread awareness for #chronicillness and to connect with others on a similar journey.
Can’t wait to get to know everyone!
It still amazes me that one of my chronic illnesses is triggered simply by standing.
And we live In a world where 90% of daily tasks revolve around that exact trigger.
#POTS #chronicillness #disability #dysautonomia
Still trying to find everyone over here from X
