Ren G.

Also I'm highly suspicious that increasing the dose on one of my meds was the biggest factor in sending me into such a bad crash and significantly reducing my baseline.

So I'm working on getting off that medication now. 👍🏽

Oh hey while I was gone I figured out I have #MCAS and have started more antihistamines.

Still haven't seen allergist/immunologist but even this change (and eating lower histamine) has been shockingly effective.

I have no memory of this place send help

hello I have opened this app for the first time in months

THIS!!

Except when assholes in flashy cars disrupt the process. Only time I have any trouble driving.

My roommate introduced me to #TheBandGhost and I'm slowly joining in on her hyperfocus and we're just having a good time

I'm alive! Still recovering, but alive!

Made it to the kitchen at least twice a day four times this week! And have taken care of the dog three times this week as well.

Still quite a ways from my previous baseline, but I'll take a new one, honestly.

Hello this is supposed to say *A* small-ish discord. Not some. A.

I found some small-ish discord server that has very quickly begun to feel like home.

I've literally never participated in conversations in discord servers before, but now I feel like I'm making friends. I don't feel overwhelmed, I feel excited.

It's amazing.

I didn't know this was possible.

Hey, so like...

If you can leave, cool. That's great for you.

But before you make the decision to get out, think about who you're leaving behind?

Not like... the general public.

But, you know, a disabled loved one? One whom you're worried about?

Just a thought.

Maybe talk to them about it.

At some point, maybe, I'll find a balance between being on here and on threads.

But this crash isn't it.

Happy one month of being bedbound to meeee.

#ME/CFS #NEISVoid #Spoonie #POTS

I'm halfway through #Legendborn and I LOVE it when a book gives me unexpected character growth omg

me: why am I so sleepy

why am I craving salt

why am I--

oh, the thermostat is on winter mode and I am having a POTS flare because the temperature was *checks notes* 73F

#NEISvoid

Today, I made it into my kitchen for the first time in a week.

Let's find out how much I pay for it.

#me/cfs #NEISVoid #Spoonie

Omg yes!! Cat hasn't been coming in my room as much because I needed to have the door closed the first week of this crash. But he also preferred it when I was at my desk and he got the whole bed, sometimes he steals my spot!

We learned so much about airborne transmission in the last 5 years, yet have done little with that knowledge.

We could have clean air benchmarks in public spaces. Free respirators to anyone who needs them. PSAs about masking.

We could have greatly reduced ALL airborne disease.

Okay, worst thing I'm experiencing in this crash (besides, you know, all of it):

I try to stay hydrated. I get up to pee. My body/nervous system take FOREVER to return to a restful state again when I get back to bed.

By which point....I HAVE TO PEE AGAIN.

#ME/CFS #NEISVoid #ChronicIllness

Changing the text size worked, but I unsurprisingly pushed myself back deeper into this crash so now I'm barely existing again.

I haven't seen my kitchen in...four days?

Things COVID has proven:

1) The job you were told couldn’t be done remotely, can be done remotely.

2) Many disabled workers could have been working from home, but corporations just didn’t want them to.

3) Internet is a utility and not a luxury.

4) Universal healthcare is a necessity.

If you want to help disabled people fight New York's proposed mask ban... wear a mask.

If more people would mask up in solidarity, these important accessibility tools would be harder to ban.

Help us normalize masking and protect your health in the process!

we believe we are special and we simply are not

I made it smaller let's find out if my brain likes it again lol

I've spent long enough back on threads that bluesky overwhelms me now.

Not even the content. The visuals? The text is bigger I think and switching between the two makes my brain feel weird.

I'm (slowly) coming out of it and able to move more, I have a pregnancy pillow in a vacuum bag somewhere that I might give a try, but I've also got a pillow already on my bed that's similar that I can try. Thanks for the suggestion!

I know that the unraveling of the republic is a very bad time for many of us and we are confronting experiences that are unprecedented in many ways but fascism and oppression are not a sudden development in this country and it is deeply insulting to act brand new about it.

It’s important to understand that when a white person says “this has never happened before” or compares some oppressive behavior to a foreign regime, but it *did* happen here to Black/brown people for years/decades/centuries, it represents a massive blow to solidarity. It’s selfish.

Hey #NEISVoid #Spoonie #EDS #hypermobile friends, I need help if you can:

Do any of you that also deal with #me/cfs or fatigue that leaves you bedbound for weeks have any tips for my very angry rib cage?

I can't get proper rest bc my rib cage starts screaming at me.

Yeeesssss thank you!!!!!

"Nearly All Cybertrucks Have Been Recalled Because Tesla Used the Wrong Glue" ... is the headline of a Wired article screenshot with the following abstract: "Tesla says it will fix the sticky issue--which could cause panels to to detach from trucks while driving--with a new adhesive "not prone to environmental embrittlement.""

Repost with alttext:

Roses are red
Violets are blue

I've never thought about it that way but... yeah.