e-Patient Dave

It was a meeting of the minds last week at @harvard.edu!

@cait-desroches.bsky.social spoke on Thursday at the DCI Network conference on Digital Patient Engagement.

Pictured from L to R with Cait: @amyprice.bsky.social, Brad Crotty, MD, @epatientdave.bsky.social, Danny van Leeuwen, MPH

#medsky

Shit. Thanks

This was the most intelligent, perceptive discussion I've ever had about patient empowerment with someone who's not primarily *in* healthcare. And that's a significant sign: I've always said that the more we "liberate" access to tools and data, the more healthcare will become what we want

Woohoo! Fabulous episode!
#PatientsUseAI

Host Peters Lee and I had lots of laughs and deep thought, and Chrissy Farr is amazing - I knew that her insights come from her own experience as a patient and pediatric mom.

🎁 link: wapo.st/4izIIpf

Elon Musk’s Demolition Crew Elon Musk, the world’s richest man, has been unleashed on federal agencies. ProPublica is attempting to document who is working with him and what they are doing.

Over the past several weeks, ProPublica has identified dozens of people who worked for DOGE.

#ICYMI: We just added 20 names to our tracker, bringing the total to 66.

👇

I didn't mean no more doctors of course! It's more like we're more have an immense new range of things within our power

Man who self-describes as "happens to have two cancers" says this about #PatientsUseAI.

Hey @burtrosen.bsky.social - I've been thinking (for real) - would you call this "DIY healthcare" or "DTC" (direct to consumer) or "patient autonomy" or what? (Legit question - been pondering this on LinkedIn)

@burtrosen.bsky.social Me LETTING you be part of it?? Hahahaha ... you're just a RANDOM BLINKIN' EXEMPLAR, dude! You just DO what everyone SHOULD be doing, because we can!

Send an update of your latest self-empowered shenAInigans so we can update your history!

“#AI is my helper now.”

@epatientdave.bsky.social @burtrosen.bsky.social

Two amazing “hunks” of the ‘patient-led revolution’ make it to Men’s Health.

Love this. 👏🏽👏🏽👏🏽👏🏽👏🏽

#pinksocks #hcldr

Lmk if you need gift link

Amy Gleason Named Acting DOGE Administrator Ms. Gleason is the acting administrator of the Department of Government Efficiency, according to a White House official. The news comes as a federal judge questioned who was leading the operation.

Yes, the NYT piece has a bit more info.
www.nytimes.com/2025/02/25/u...

I am happy to say the "Followers only" reply setting is getting implemented. We're also adding a way to set default reply settings

If you want your posts to default to "Followers only," that'll become an option

@Lygeia is here too! @lygeia-r.bsky.social

I can't be on the #HITSM chat at noon ET today 1/31, but here are the details. @healthcareittoday.com Tag them to get on their BSky HIT list - the place to be!

Love to be seeing the smooooth writing of John Lynn @techguy.healthcareittoday.com again!

Who's going to join us tomorrow for the first ever #HITsm chat on Bluesky?

Details: http://dlvr.it/THh4fB

Invite your friends. #HITsm

Thanks - I don't even know how chats work, over here!

I just dropped everything to join Bluesky when I saw there was an #HITSM chat tomorrow. I miss my peeps! 🥰

@healthcareittoday.com

Can the Private Sector Serve Up Sufficient Health Media to Compensate for Public Sector Gaps? - HealthPopuli.com In researching several .gov websites from last Monday 20th January 2025, I had an ongoing frustrating user experience in being faced with “404 Error” messages like this one from WhiteHouse.gov. “Presi...

Can private sector serve up sufficient #healthmedia to compensate for public sector gaps? Reflections on repeated #404Error messages from #publichealth govt websites on #CDC #NIH & WhiteHouse.gov (looking for a Jill Biden speech on #womenshealth at #JPM2025)

bit.ly/3Q0cZ4h

#hcsm #healthliteracy

Hey everybody, Jane's here! THAT Jane - Jane Sarasohn-Kahn, aka elsewhere as @HealthyThinker! Follow, you will.

@healthythinkerjsk.bsky.social

I'd even say we need to stop using the word "experts," because, frankly, idiots no longer trust experts! I'm starting to think we need to come back down to the eighth grade insult-war level like them and argue in terms of "You're so stupid you think Bambi is a fish," to quote Gilda Radner

A new resource rating >50,000 foods from 3 grocery stores
(Walmart, Target, and Whole Foods) for degree of processing and breakdown of ingredients
www.nature.com/articles/s43...
Website for consumers www.truefood.tech

#PatientsUseAI: We seek collaboration, not control AI’s potential to revolutionize healthcare dominates headlines and academic journals. But one critical voice is underrepresented: patients. By Gilles Frydman, pioneer (since the 1990s) of patient comm...

New post on the #PatientsUseAI Substack, by Gilles Frydman (@kosherfrog.bsky.social), the pioneering #PatientEmpowerment guy who in 1995(!) created ACOR, which helped save my life.

Today he's *hugely* into generative AI for patients. Check it out! patientsuseai.substack.com/p/patientsus...

Shortage of primary care doctors in U.S. comes down to money — and respect More medical schools say they will no longer charge tuition. But evidence suggests it will take a lot more than a free ride.

Primary care fields Pediatrics, Family Practice & Internal Medicine are having trouble filling their residency slots.

Low pay, high admin burdens (prior authorizations w/low support) make these fields undesirable leaving many communities without access to essential care. buff.ly/4fQsFS9

medsky 🛟

"Zak’s involvement illustrates something exquisitely important: nothing about patient empowerment is a rejection of doctors."

I agree entirely, Dave!

#PatientsUseAI is in Men's Health We're mainstream! Stories from this blog make the national newsstand

I'm thrilled to announce: I authored a four page article on #PatientsUseAI in Men's Health magazine, on newsstands now! It's GREAT to see patient empowerment in a well edited consumer magazine. Stories from the #PatientsUseAI Substack, and more!
patientsuseai.substack.com/p/patientsus...
#medsky

Great source of news and info. Give it a follow

Fighting to Avoid Her Mother’s Fate, for Her Daughters’ Sake A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

Yet another powerful example of how people living with serious illnesses (the "heartbeat...of the cells they studied") can change the game in research and drug development

www.nytimes.com/2024/12/22/h...

I've seen many many such New Year articles in hospital industry mags thru the years. So many have boiled down to "Dear lord, where will we find more MONEY this year? And why are people trying to control us??" This is not one of those, by a mile. Well done.

5 questions looming over healthcare leaders as 2025 begins

Hey #MedSky I'm amazed nobody's yet posted this excellent piece, which I just stumbled onto on some other platform. It's good! (Why isn't Becker's VP/Editorial Molly Gamble over here yet??)

www.beckershospitalreview.com/hospital-man...