Fighting to Avoid Her Mother’s Fate, for Her Daughters’ Sake
A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?
Yet another powerful example of how people living with serious illnesses (the "heartbeat...of the cells they studied") can change the game in research and drug development
www.nytimes.com/2024/12/22/h...
01.01.2025 17:39 — 👍 4 🔁 1 💬 0 📌 0
I lead the @Aimlabstanford program, and I'm a professor at @StanfordMed. I work on tech and health care. collaborate with patients, technologists and caregivers as partners.
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
www.iamals.org/als-awareness-month
#ALSisHere
#SoAreWe
Professional skier with a design and healthcare innovation problem.
Montana, USA
All my links: https://www.nickdawson.net/social
www.nickdawson.net
physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Interdisciplinary creativity (Capoeira Angola, words, clay), advocacy, facilitation, book/story coaching, & more. NED🤞from 3 cancers. TCK 🇿🇦🇫🇷 LAX; now in 🇧🇷.
Probably off thinking about scientific data or college sports.
Research Partner #AllofUsResearch Program, Nutrition for Precision Health, #PCORI THRIVE Trial, #CardiacRhythm #HCM patient, #GenAI for Universal Health Equity.
Author, REBEL HEALTH. Amateur sunflower farmer. There are people who would love to help you, if only they knew how to find you.
* cyberbiosecurity * cofounder @ isac.bio * DC
Join me here --> cyberbiosecuritysummit.org February 25-26, 2025
I write about medicine at STAT. This is biology's century. Every data point has a face.
Co-founder of The Light Collective
www.lightcollective.org
Security Researcher
Health Infosec
Views are my own.
Researcher, developer, author.
-Created #OpenAPS, “PERT Pilot”, “Carb Pilot”.
-Moderated #hcsm.
-Wrote #APSBook (http://ArtificialPancreasBook.com) + others.
- Blog & research & more: DIYPS.org
Swedish patient researcher living with #ParkinsonsDisease. #Spetspatient #QuantifiedSelf #PersonalScience #CitizenScience Uppsala University
https://www.riggare.se
https://www.spetspatienterna.se
Be one, do one, teach one. Co-Investigator for opennotes.org. Living with brain cancer since 2008. Bringing punk rock to health care. Blog: https://thelizarmy.com
I work on #health #data and #cybersecurity. http://bit.ly/2tpxRJR Wrote Hacking Healthcare: http://oreil.ly/rnwwan and started http://careset.com. Views my own. RT != endorsement.
President & CEO of Project Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #TEDx & Aspen Ideas Speaker, Brown University & BCLaw Alum
Patient, Writer, Advocate.
Leonard Davis Institute of Health Economics, @uofpenn.bsky.social's hub for multidisciplinary research and education on health care delivery, health policy & population health
