Get Palliative Care's Avatar

Get Palliative Care

@getpalliative.bsky.social

Clear, comprehensive #palliative care information for people facing serious illness. Resources, FAQ, Provider Directory and more. Sponsored by @capcpalliative

100 Followers  |  18 Following  |  145 Posts  |  Joined: 05.12.2024  |  1.6871

Latest posts by getpalliative.bsky.social on Bluesky


Preview
Pancreatic Cancer | Palliative Care Story | Get Palliative Care Read Barbara's palliative care story about being diagnosed with pancreatic cancer. This is a story about finding a sense of control amidst an uncertain future.

On #ValentinesDay we are so happy to share the wonderful story of Barbara and Laren. This is a story about finding a sense of control amidst an uncertain future. This is a story about doing everything you can for the ones you love.

getpalliativecare.org/quality-life...

14.02.2026 21:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Check out our special podcast & article on how #PalliativeCare helps people living w/ #Alzheimers or #dementia, along what good care for both looks like.

@alzassociation.bsky.social

getpalliativecare.org/maintaining-...

28.01.2026 14:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

How #PalliativeCare Helps You Live Well with Serious #Lung Disease

This is Betsy's #podcast -> getpalliativecare.org/a-quality-li...

28.01.2026 14:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

A Quality Life: After Diagnosis

Here are the facts about the 5 ways #PalliativeCare can support you at diagnosis (along with a podcast with more information)

Remember ... palliative care is appropriate at ANY stage of an illness.

getpalliativecare.org/5-ways-palliat

28.01.2026 14:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Mount Sinai Seeks to Develop National Caregiver Support Framework New York City-based Mount Sinai Health System recently unveiled its new family caregiving center to improve how patients’ loved ones are recognized and

Mount Sinai Seeks to Develop National #Caregiver Support Framework

hospicenews.com/2025/06/09/m...

13.01.2026 11:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Looking for a motivational way to kick off the #NewYear? Check out our #podcasts - stories of patients and families living well with serious #illness. They found a way to regain quality of life. You can too.

getpalliativecare.org/podcasts/

03.01.2026 00:41 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Considering Palliative Care? Four Simple Ways to Get Started If you or a loved one are living with a serious illness, you may be looking for care that can help relieve symptoms, improve quality of life, and support you and your family. Palliative care does that...

Considering #PalliativeCare? Four Simple Ways to Get Started.

1. Talk to Your Doctor & Ask for a Referral
2. Find a Palliative Care Provider
3. Schedule an Appointment
4. Prepare For and Attend Your Appointment

Our new blog explains the how to's of each

getpalliativecare.org/considering-...

02.01.2026 21:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

It's #FactFriday and #DidYouKnow ...

#PalliativeCare helps patients avoid #emergencyroom visits.

They're less likely to spend time in #intensivecare units; and they report greater satisfaction with #healthcare and higher spiritual well-being.

12.12.2025 20:02 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

#PalliativeCare helps patients avoid #emergencyroom visits.

They're less likely to spend time in #intensivecare units; and they report greater satisfaction with #healthcare and higher spiritual well-being.

getpalliativecare.org/palliative-c...

12.12.2025 14:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Some nonprofits help offset costs for people living with serious illness. They all understand the stress and day-to-day needs of patients and loved ones. Their goal is improving quality of life by reducing financial strain.

getpalliativecare.org/stressed-abo...

12.12.2025 14:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Richard has lived with #HIV/AIDS for over 40 years and anal cancer for 33. he didn’t want to go through more surgeries or procedures, but still had chronic, uncomfortable symptoms. That’s when his primary care doctor connected him with palliative care

getpalliativecare.org/patient-storie…

10.12.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

#PalliativeCare may improve quality of life for stroke survivors and their family members, says
@American_Heart in their recent scientific statement.

newsroom.heart.org/news/palliativ…

10.12.2025 12:39 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

If you’re living with #HIV / #AIDS, #palliativecare can help manage your symptoms and treatment side effects. These include pain, fatigue, shortness of breath, depression, anxiety, nausea, and vomiting.

Learn More -> getpalliativecare.org/whatis/disease…

#HIVAwareness

10.12.2025 12:38 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
Living with HIV/AIDS? How Palliative Care Can Help as You Age Learn how palliative care supports people aging with HIV/AIDSβ€”helping manage symptoms, medications, emotional health, quality of life, and more.

As people age with HIV, new challenges may come up, such as other health conditions, changes in memory, social or emotional concerns, or chronic pain. These challenges can be managed with the right support.

This is where palliative care comes in

getpalliativecare.org/living-and-a...

08.12.2025 20:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

November is National Family #Caregivers Month. As we celebrate family members who provide support to their loved ones living with serious illness, visit Get Palliative Care for information about how #PalliativeCare can support caregivers: https://ow.ly/pSEO50TQSME

21.11.2025 14:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Dan's Palliative Care Story Dan was diagnosed with frontotemporal dementia at age 47 and received palliative care early on. Watch Dan's palliative care story.

β€œGetting #palliativecare involved early helps so many different things,” says Dan, former pal care nurse, diagnosed w/ #dementia at 47

It helps him and his wife and full-time #caregiver, Lisl, manage his symptoms and live life to the fullest.

getpalliativecare.org/dans-palliat...

20.11.2025 12:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Medical Marijuana and Serious Illness: What Patients Should Know Curious about medical marijuana for symptom relief during serious illness? Learn about the potential benefits, risks, and what to discuss with your palliative care team.

If you or someone you care for is living with a serious illness, you may have important questions about medical marijuana that palliative care teams often hear from patients who are exploring ways to feel better, while managing their serious illness.

getpalliativecare.org/medical-mari...

20.11.2025 12:31 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

October is #BreastCancerAwarenessMonth.

We'd love to be aware of how #palliativecare can help patients, #caregivers and families at any stage of this #cancer.

Here is how -> getpalliativecare.org/are-you-livi...

06.10.2025 16:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Discussing Your Diagnosis with Your Doctor | Get Palliative Care When you are diagnosed with a serious illness, it’s normal to have a lot of questions. Here are tips for discussing your diagnosis with your doctor.

getpalliativecare.org/tips-for-dis...

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

4. What else should I ask you at this point?

This open-ended question will let your doctor explain anything that you might not have thought of.

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

3. How serious is this?

Not everyone wants to know the answer to this question, so many doctors will not offer this information unless you ask for it

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

2. What do we do next?

Ask your doctor to explain the plan step by step.

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

1. Can you tell me that again?

It’s completely normal not to take it all in the first time you hear it.

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

When diagnosed with an illness, it’s normal to have a lot of questions, concerns and fears you can't put into words. It can be hard to think clearly, and even the best doctors don’t always explain things well.

Here are four simple questions that can help you talk to your doctor

01.09.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Palliative Care Methods for Controlling Pain By starting palliative care early, and by using the right type of pain management, nearly all pain problems can be relieved or reduced.

The biggest problem with #palliativecare is that many people are referred for care very late.

By starting early, and by using the right type of pain management, nearly all pain problems can be relieved or reduced.

Via @johnshopkinssph.bsky.social

www.hopkinsmedicine.org/health/welln...

01.09.2025 12:26 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

#Families caring for a loved one with #Alzheimers and other #dementia need a lot of support and assistance.

Getting #palliativecare early is important.

Info -> getpalliativecare.org/whatis/disea...

01.09.2025 12:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
FAST scale for Alzheimer's: What to know Doctors use the Functional Assessment Screening Tool (FAST) to diagnose and evaluate aspects of Alzheimer's disease. Learn more here.

The Reisberg Functional Assessment Screening Tool (FAST) is a scale that doctors use to diagnose and evaluate aspects of #Alzheimers disease.

www.medicalnewstoday.com/articles/fas...

01.09.2025 12:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
7 Ways to Improve Your Sleep When Living with a Serious Illness These 7 simple steps can help you or your loved ones living with serious illness sleep better and improve quality of life.

Getting enough quality sleep can be a challenge when you’re dealing with pain, stress, anxiety.

Here are 7 steps to take to sleep better, feel more in control, and improve your quality of lifeβ€”whether you’re at home or in the hospital.

getpalliativecare.org/7-ways-to-im...

01.09.2025 12:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

#Cancer treatments can cause a variety of symptoms, like skin irritation, digestive issues, body image concerns and pain with intimacy. It can also bring emotional challenges, such as regret, sadness, or guilt.

#PalliativeCare will help.

01.09.2025 12:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Palliative Care Podcast | Living with a Serious Illness | Get Palliative Care This palliative care podcast features real people sharing how palliative care helps them and their families while living with a serious illness.

Need something uplifting to listen to while you're outside shoveling or inside relaxing?

We've got you. Our podcast series of inspiring people living a quality life with a serious illness.

Check them out --> getpalliativecare.org/podcasts/

01.09.2025 12:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@getpalliative is following 17 prominent accounts