2025 has been a lot and iβm pretty much just trying to survive π
24.09.2025 19:26 β π 3 π 0 π¬ 0 π 0@cicely-mathews.bsky.social
Completing a PhD in HCI at the University of Bristol exploring digital opportunities in cystic fibrosis and sexual reproductive health | I have cystic fibrosis too π« |
2025 has been a lot and iβm pretty much just trying to survive π
24.09.2025 19:26 β π 3 π 0 π¬ 0 π 0Hello everyone, itβs been a while. Finished treatment end of April. Got engaged in June π₯³ and thenβ¦found out my cavity in my lung has become the same size as before treatment so back on 12 weeks of IVs (at least), was in a car accident.. waiting for a scan on halloween to discuss treatment further
24.09.2025 19:26 β π 4 π 0 π¬ 3 π 0havenβt been on here in forever, iβm sorry to hear what youβre been going through! But woohoo to halfway! π₯³ I can absolutely relate as you have to just get it done no matter how horrible it all gets. Thinking of you π
01.08.2025 13:40 β π 1 π 0 π¬ 1 π 0iβve got some embroidery and a punch needle rug and some needle feltβ¦.raided hobbycraft before christmas π
03.03.2025 11:46 β π 0 π 0 π¬ 0 π 0thank you Hanna (sorry only just seen this) - getting discharged tomorrow to complete the rest of the course at home - lots of crafting imminent πͺ‘
20.02.2025 20:12 β π 1 π 0 π¬ 1 π 0thank you βΊοΈ
20.02.2025 20:11 β π 0 π 0 π¬ 0 π 0thank you!!
20.01.2025 22:52 β π 1 π 0 π¬ 0 π 0if you have followed me for my CF - hi ππΌ. I have NTM as some of you may know and am about to try an eradication attempt yet again for 12 weeks π¬ iβm hopeful but trying to remain realistic that iβll get better but probably wonβt get rid of it completely. #CF #cysticfibrosis #NTM
20.01.2025 22:49 β π 2 π 0 π¬ 0 π 0I know most of you are unaware of my CF and have followed me for my research but from next week i shall be embarking on 12 weeks of intravenous antibiotics and then a surgery on my lungs in order to help my health. My research is paused until May - Iβll be excited to get back to it! #cysticfibrosis
20.01.2025 22:46 β π 4 π 0 π¬ 2 π 0have you read None of this is true by Lisa Jewell? Thatβs a book i was hooked from beginning to end
14.12.2024 12:49 β π 1 π 0 π¬ 1 π 0Hi all! For those who donβt know me, Iβm a digital health and care CDT student at the university of bristol looking at sexual reproductive health in cystic fibrosis taking an HCI approach to my research. Iβm currently a year and a bit in βΊοΈ
20.11.2024 19:07 β π 16 π 2 π¬ 1 π 0