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@advocate4me.bsky.social

139 Followers  |  157 Following  |  4 Posts  |  Joined: 13.11.2024  |  2.1059

Latest posts by advocate4me.bsky.social on Bluesky

Simple graphic listing three conference dates. Text is shortened form of what is found in post. 
September 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
September 9 - 10: NIH 2nd annual RECOVER- TLC
October 22-25: IACFS/ME 17th Research and Clinical Conference

Simple graphic listing three conference dates. Text is shortened form of what is found in post. September 5: Stanford Community Symposium on the Molecular Basis of ME/CFS September 9 - 10: NIH 2nd annual RECOVER- TLC October 22-25: IACFS/ME 17th Research and Clinical Conference

Upcoming conference dates!

Sept. 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
ow.ly/lMRC50WQQ4Z

Sept. 9-10: RECOVER-TLC ow.ly/pRxx50WQQ50

October 22-25: IACFS/ME Research & Clinical Conference ow.ly/6RIL50WQQ4Y

#pwME #MECFS #LongCovid

03.09.2025 22:37 โ€” ๐Ÿ‘ 15    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Promotional graphic for Bateman Horne Centerโ€™s โ€œOne Guide One Goalโ€ campaign with the tagline โ€œ$5 Turns Knowledge into Careโ€ and โ€œWe Can Change Care Together.โ€ Below, a computer screen shows a group of healthcare providers in training and text promoting โ€œAccredited CME Modulesโ€ to recognize ME/CFS and Long COVID, diagnose accurately, and provide evidence-based treatment.

Promotional graphic for Bateman Horne Centerโ€™s โ€œOne Guide One Goalโ€ campaign with the tagline โ€œ$5 Turns Knowledge into Careโ€ and โ€œWe Can Change Care Together.โ€ Below, a computer screen shows a group of healthcare providers in training and text promoting โ€œAccredited CME Modulesโ€ to recognize ME/CFS and Long COVID, diagnose accurately, and provide evidence-based treatment.

One Guide. One Goal. Final push!
Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide.
Give now: givebutter.com/OneGuide_One...

#OneGuideOneGoal

22.08.2025 18:03 โ€” ๐Ÿ‘ 8    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

August is Severe ME Month.
Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp

๐Ÿ’™ We stand with them.
#SevereME #MECFS #UnitedForME

24.08.2025 17:45 โ€” ๐Ÿ‘ 10    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Illustration of a smartphone text message conversation with Lucinda Bateman, MD. The message reads: โ€œDouble your impact! Text BHCGUIDE to 53555 and your donation will be matched up to $10,000.โ€ The message input field shows โ€œBHCGUIDE.โ€ Bateman Horne Center logo appears in the corner.

Illustration of a smartphone text message conversation with Lucinda Bateman, MD. The message reads: โ€œDouble your impact! Text BHCGUIDE to 53555 and your donation will be matched up to $10,000.โ€ The message input field shows โ€œBHCGUIDE.โ€ Bateman Horne Center logo appears in the corner.

Weโ€™re nearly 1/4 of the way to our $10K match honoring Dr. โ€œBudโ€ Keyeโ€™s legacy of compassionate care! ๐Ÿ’™
Give by July 15 to double your impact for ME/CFS & Long COVID.
Text BHCGUIDE to 53555 to donate

#MECFS #LongCOVID #DoubleYourImpact

12.07.2025 16:31 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Cover image for Chapter 2 of the Clinical Care Guide titled 'Basics of Long COVID, ME/CFS, and Comorbidities'. A cartoon clinician holds a clipboard, with bullet points listing topics such as ME/CFS, PEM, diagnostic criteria, affected systems, comorbid conditions, and shared strategies. Includes Bateman Horne Center logo.

Cover image for Chapter 2 of the Clinical Care Guide titled 'Basics of Long COVID, ME/CFS, and Comorbidities'. A cartoon clinician holds a clipboard, with bullet points listing topics such as ME/CFS, PEM, diagnostic criteria, affected systems, comorbid conditions, and shared strategies. Includes Bateman Horne Center logo.

Chapter 2 of the Clinical Care Guide breaks down ME/CFS, Long COVID, and related conditions for cliniciansโ€”covering diagnostic criteria, PEM, comorbidities, & practical tools for care.
๐Ÿ“˜ Download: bit.ly/4jScKFu
@openmedf.bsky.social #MECFS #LongCOVID

26.06.2025 19:16 โ€” ๐Ÿ‘ 24    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
Promotional image for a fundraising campaign by Bateman Horne Center. Text at the top reads: 'A Lifeline for ME/CFS & Long COVID. ONE GUIDE ONE GOAL. $5 Turns Knowledge into Care.' The center image is a black-and-white photo of a man sitting on the edge of a bed with his face in his hands, conveying fatigue or distress. Below, bold text says 'WE CAN CHANGE CARE TOGETHER,' with the word 'TOGETHER' highlighted in light blue and circled. The Bateman Horne Center logo is also displayed.

Promotional image for a fundraising campaign by Bateman Horne Center. Text at the top reads: 'A Lifeline for ME/CFS & Long COVID. ONE GUIDE ONE GOAL. $5 Turns Knowledge into Care.' The center image is a black-and-white photo of a man sitting on the edge of a bed with his face in his hands, conveying fatigue or distress. Below, bold text says 'WE CAN CHANGE CARE TOGETHER,' with the word 'TOGETHER' highlighted in light blue and circled. The Bateman Horne Center logo is also displayed.

We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide.
$5 = 1 guide. 1 provider. 1 life changed.
๐Ÿ’™ Donate now: loom.ly/q08sVxQ
๐Ÿ“˜ Learn more: loom.ly/-Gjg9w8
#MECFS #LongCOVID @openmedf.bsky.social

23.06.2025 16:09 โ€” ๐Ÿ‘ 21    ๐Ÿ” 17    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 3
Black and white photo of a hospital emergency room entrance with the text 'ME/CFS in the ER: WHAT YOU NEED TO KNOW' on the bottom, along with the MERC logo at the bottom right.

Black and white photo of a hospital emergency room entrance with the text 'ME/CFS in the ER: WHAT YOU NEED TO KNOW' on the bottom, along with the MERC logo at the bottom right.

ER visits can be tough with ME/CFS & Long COVID. This popular MERCโ€™s guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
๐Ÿ’™ Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare

13.05.2025 17:42 โ€” ๐Ÿ‘ 35    ๐Ÿ” 20    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 3
Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.

Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.

Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22

15.05.2025 14:49 โ€” ๐Ÿ‘ 18    ๐Ÿ” 11    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Group of five women posing for a photo in front of a colorful backdrop with orange, black, and blue curtains. They are celebrating Clinical Trials Day with 'Powered By Purpose' and 'I Love Clinical Research' signs. The women are pointing at signs with research-related messages. The logos for ACRP (Association of Clinical Research Professionals) and Bateman Horne Center are visible at the bottom of the image. The text 'Clinical Trials Day May 20' is prominently displayed.

Group of five women posing for a photo in front of a colorful backdrop with orange, black, and blue curtains. They are celebrating Clinical Trials Day with 'Powered By Purpose' and 'I Love Clinical Research' signs. The women are pointing at signs with research-related messages. The logos for ACRP (Association of Clinical Research Professionals) and Bateman Horne Center are visible at the bottom of the image. The text 'Clinical Trials Day May 20' is prominently displayed.

On #ClinicalTrialsDay, we celebrate BHC's research team. Theyโ€™re advancing treatments and improving diagnostics for ME/CFS & Long COVID.

๐Ÿ”— Learn more about what our research team is up to: loom.ly/MJo615A
#CTD2025 #ResearchMatters

20.05.2025 15:26 โ€” ๐Ÿ‘ 10    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
Long Covid is the pandemicโ€™s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldnโ€™t know it, says Guardian columnist Frances Ryan

www.theguardian.com/commentisfre...

18.03.2025 04:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Preview
How To Help Children with Long COVID With Physician and Mother Dr Melanie Hoppers

open.substack.com/pub/longcovi...

23.02.2025 16:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

ME/CFS is a complex condition that can occur after an infection (like the flu, mono, COVID-19, etc.). For some, thereโ€™s no clear trigger, but regardless, the illness is completely life altering.
Learn more๐Ÿ‘‰ loom.ly/9Dwp5IE
#MECFS #LongCOVID #InvisibleIllness

06.02.2025 16:19 โ€” ๐Ÿ‘ 34    ๐Ÿ” 8    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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America: 'Virus Hunter' Ian Lipkin calls for Long Covid and ME/CFS to be studied together - The ME Association โ€œME/CFS and long Covid share profound similarities, including post-exertional malaise, [โ€ฆ]

ME Association: 'America: โ€˜Virus Hunterโ€™ Ian Lipkin calls for Long Covid and ME/CFS to be studied together'

meassociation.org.uk/2025/02/amer...

06.02.2025 17:08 โ€” ๐Ÿ‘ 42    ๐Ÿ” 11    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2
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Cerebral Blood Flow in Orthostatic Intolerance | Journal of the American Heart Association

www.ahajournals.org/doi/10.1161/...

05.02.2025 00:38 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The Basics: Diagnosing ME/CFS Clayton Powers, DPT, discusses the basics of diagnosing myalgic encephalomyelitis (ME/CFS). - ME/CFS description - Symptoms that meet the diagnostic criteria This video is the third in our series called The Basics. Other videos cover post-exertional malaise (PEM) and orthostatic intolerance. Note to community members: We advise viewers to always speak with their medical care team prior to making any adjustments or changes to their current regimen. Bateman Horne Centerโ€™s involvement in this program is made possible with the additional support of Open Medicine Foundation and the Whittemore Peterson Institute and donors like you.

๐ŸŒŸ Struggling with unexplained symptoms after a recent infection or never fully recovered from COVID-19?

โœ… Watch the 3rd video in our BASICS series with Clayton Powers, DPT, titled "The BASICS: Diagnosing ME/CFS", and gain insight into this often-misunderstood disease.

๐Ÿ”— Watch here: bit.ly/4jb1ww8

21.01.2025 16:38 โ€” ๐Ÿ‘ 32    ๐Ÿ” 16    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Post-COVID #MECFS rates are 15x higher than pre-pandemic levels. New research highlights the urgent need for awareness and care. Explore the findings: loom.ly/wLycS1s

13.01.2025 19:29 โ€” ๐Ÿ‘ 97    ๐Ÿ” 52    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 4
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Quiet evening in Az to start off the new year

06.01.2025 01:06 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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CME BHC provides resources from continuing medical education (CME) offerings and other professional literature specific to ME/CFS, FM, and long COVID.

Bateman Horne Center has a list of Healthcare Professional Continuing Medical Education (CME) courses on their website you can share with your doctor if they want to learn more about ME/CFS. Two of the courses are expiring soon (end of January).

batemanhornecenter.org/providers/me...

#MEcfs #pwME

05.01.2025 16:54 โ€” ๐Ÿ‘ 33    ๐Ÿ” 13    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 1
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The censorship algorithm on Twitter reduced our audience by roughly 95%, and seriously, who does that to a wildlife biology & advocacy group ?
So we moved ๐Ÿ˜‡ over here to BlueSky

If you could, please help us regain our following
Follow
Retweet and
Repeat ;-)

Together we can change the world.

04.01.2025 17:56 โ€” ๐Ÿ‘ 22487    ๐Ÿ” 9273    ๐Ÿ’ฌ 564    ๐Ÿ“Œ 328
Screenshot of page of text at link

Screenshot of page of text at link

Bateman Horne Center: Healthcare Professional Continuing Medical Education (CME)

batemanhornecenter.org/wp-content/u...

I haven't vetted these but am hoping they are good or at least good enough

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #LongCovid

18.12.2024 23:36 โ€” ๐Ÿ‘ 10    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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๐Ÿ“Œ Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. Itโ€™s a 49-page manual.
batemanhornecenter.org/education/me...

06.12.2024 18:29 โ€” ๐Ÿ‘ 58    ๐Ÿ” 24    ๐Ÿ’ฌ 12    ๐Ÿ“Œ 2

@advocate4me is following 20 prominent accounts