Simple graphic listing three conference dates. Text is shortened form of what is found in post.
September 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
September 9 - 10: NIH 2nd annual RECOVER- TLC
October 22-25: IACFS/ME 17th Research and Clinical Conference
Upcoming conference dates!
Sept. 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
ow.ly/lMRC50WQQ4Z
Sept. 9-10: RECOVER-TLC ow.ly/pRxx50WQQ50
October 22-25: IACFS/ME Research & Clinical Conference ow.ly/6RIL50WQQ4Y
#pwME #MECFS #LongCovid
03.09.2025 22:37 โ ๐ 15 ๐ 8 ๐ฌ 0 ๐ 1
Promotional graphic for Bateman Horne Centerโs โOne Guide One Goalโ campaign with the tagline โ$5 Turns Knowledge into Careโ and โWe Can Change Care Together.โ Below, a computer screen shows a group of healthcare providers in training and text promoting โAccredited CME Modulesโ to recognize ME/CFS and Long COVID, diagnose accurately, and provide evidence-based treatment.
One Guide. One Goal. Final push!
Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide.
Give now: givebutter.com/OneGuide_One...
#OneGuideOneGoal
22.08.2025 18:03 โ ๐ 8 ๐ 5 ๐ฌ 0 ๐ 0
August is Severe ME Month.
Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp
๐ We stand with them.
#SevereME #MECFS #UnitedForME
24.08.2025 17:45 โ ๐ 10 ๐ 1 ๐ฌ 1 ๐ 0
Illustration of a smartphone text message conversation with Lucinda Bateman, MD. The message reads: โDouble your impact! Text BHCGUIDE to 53555 and your donation will be matched up to $10,000.โ The message input field shows โBHCGUIDE.โ Bateman Horne Center logo appears in the corner.
Weโre nearly 1/4 of the way to our $10K match honoring Dr. โBudโ Keyeโs legacy of compassionate care! ๐
Give by July 15 to double your impact for ME/CFS & Long COVID.
Text BHCGUIDE to 53555 to donate
#MECFS #LongCOVID #DoubleYourImpact
12.07.2025 16:31 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
Cover image for Chapter 2 of the Clinical Care Guide titled 'Basics of Long COVID, ME/CFS, and Comorbidities'. A cartoon clinician holds a clipboard, with bullet points listing topics such as ME/CFS, PEM, diagnostic criteria, affected systems, comorbid conditions, and shared strategies. Includes Bateman Horne Center logo.
Chapter 2 of the Clinical Care Guide breaks down ME/CFS, Long COVID, and related conditions for cliniciansโcovering diagnostic criteria, PEM, comorbidities, & practical tools for care.
๐ Download: bit.ly/4jScKFu
@openmedf.bsky.social #MECFS #LongCOVID
26.06.2025 19:16 โ ๐ 24 ๐ 6 ๐ฌ 0 ๐ 1
Promotional image for a fundraising campaign by Bateman Horne Center. Text at the top reads: 'A Lifeline for ME/CFS & Long COVID. ONE GUIDE ONE GOAL. $5 Turns Knowledge into Care.' The center image is a black-and-white photo of a man sitting on the edge of a bed with his face in his hands, conveying fatigue or distress. Below, bold text says 'WE CAN CHANGE CARE TOGETHER,' with the word 'TOGETHER' highlighted in light blue and circled. The Bateman Horne Center logo is also displayed.
We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide.
$5 = 1 guide. 1 provider. 1 life changed.
๐ Donate now: loom.ly/q08sVxQ
๐ Learn more: loom.ly/-Gjg9w8
#MECFS #LongCOVID @openmedf.bsky.social
23.06.2025 16:09 โ ๐ 21 ๐ 17 ๐ฌ 0 ๐ 3
Black and white photo of a hospital emergency room entrance with the text 'ME/CFS in the ER: WHAT YOU NEED TO KNOW' on the bottom, along with the MERC logo at the bottom right.
ER visits can be tough with ME/CFS & Long COVID. This popular MERCโs guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
๐ Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
13.05.2025 17:42 โ ๐ 35 ๐ 20 ๐ฌ 0 ๐ 3
Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.
Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22
15.05.2025 14:49 โ ๐ 18 ๐ 11 ๐ฌ 1 ๐ 0
Group of five women posing for a photo in front of a colorful backdrop with orange, black, and blue curtains. They are celebrating Clinical Trials Day with 'Powered By Purpose' and 'I Love Clinical Research' signs. The women are pointing at signs with research-related messages. The logos for ACRP (Association of Clinical Research Professionals) and Bateman Horne Center are visible at the bottom of the image. The text 'Clinical Trials Day May 20' is prominently displayed.
On #ClinicalTrialsDay, we celebrate BHC's research team. Theyโre advancing treatments and improving diagnostics for ME/CFS & Long COVID.
๐ Learn more about what our research team is up to: loom.ly/MJo615A
#CTD2025 #ResearchMatters
20.05.2025 15:26 โ ๐ 10 ๐ 4 ๐ฌ 0 ๐ 0
ME/CFS is a complex condition that can occur after an infection (like the flu, mono, COVID-19, etc.). For some, thereโs no clear trigger, but regardless, the illness is completely life altering.
Learn more๐ loom.ly/9Dwp5IE
#MECFS #LongCOVID #InvisibleIllness
06.02.2025 16:19 โ ๐ 34 ๐ 8 ๐ฌ 1 ๐ 0
Quiet evening in Az to start off the new year
06.01.2025 01:06 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
CME
BHC provides resources from continuing medical education (CME) offerings and other professional literature specific to ME/CFS, FM, and long COVID.
Bateman Horne Center has a list of Healthcare Professional Continuing Medical Education (CME) courses on their website you can share with your doctor if they want to learn more about ME/CFS. Two of the courses are expiring soon (end of January).
batemanhornecenter.org/providers/me...
#MEcfs #pwME
05.01.2025 16:54 โ ๐ 33 ๐ 13 ๐ฌ 3 ๐ 1
The censorship algorithm on Twitter reduced our audience by roughly 95%, and seriously, who does that to a wildlife biology & advocacy group ?
So we moved ๐ over here to BlueSky
If you could, please help us regain our following
Follow
Retweet and
Repeat ;-)
Together we can change the world.
04.01.2025 17:56 โ ๐ 22487 ๐ 9273 ๐ฌ 564 ๐ 328
Screenshot of page of text at link
Bateman Horne Center: Healthcare Professional Continuing Medical Education (CME)
batemanhornecenter.org/wp-content/u...
I haven't vetted these but am hoping they are good or at least good enough
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #LongCovid
18.12.2024 23:36 โ ๐ 10 ๐ 3 ๐ฌ 1 ๐ 0
๐ Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. Itโs a 49-page manual.
batemanhornecenter.org/education/me...
06.12.2024 18:29 โ ๐ 58 ๐ 24 ๐ฌ 12 ๐ 2
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Mรฉdecine familiale/soins palliatifs / Family & palliative medicine ๐ par/by COVID-19 x 12/2020 โก๏ธ Recherche #CovidLongue #ACAI / Research #LongCovid #IACC - Post โก๏ธ ร avis mรฉdical / ร medical advice!
WEโRE IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have [โฆ]
[bridged from https://meaction.net/ on the web: https://fed.brid.gy/web/meaction.net ]
This account will prob be about biomed researchโcomplex chronic illnesses and Covidโw/some material on disability justice and organizing.
ME โ05, LC โ23, many of their friends along the way. Very severe (FUNCAP 0.9). No unsolicited advice please!
Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
๐ท Canon R6mkii + RF 800mm
Edyong.me
Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable.
www.bravaleaders.com
Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
A nonprofit news site chronicling the #LongCOVID crisis. Founded by journalists @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Scientific Director, #MEAction
Stanford Med
Universitรฉ de Montrรฉal
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Patient-Led Research for #LongCovid! http://patientledresearch.com
M.E. inactivist, person-centred counsellor, recovering poet (Rack & Waterloo Press)
Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Donโt Tell in Toronto | she / her
ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Disability Reporter @ Mother Jones โข jmetraux@motherjones.com โข She/her โข Berkeley Journalism alum โข Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
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