Long COVID affects children and young adults too, often with PEM, orthostatic symptoms, and major impacts on school and daily life.
Learn more in these two pediatric ECHO sessions with Melanie Hoppers, MD:
▶️ https://youtu.be/no1a1A4tMfw
▶️ https://youtu.be/u6PkRNiCbRQ
Good for you!!
Upcoming conference dates!
Sept. 5: Stanford Community Symposium on the Molecular Basis of ME/CFS
ow.ly/lMRC50WQQ4Z
Sept. 9-10: RECOVER-TLC ow.ly/pRxx50WQQ50
October 22-25: IACFS/ME Research & Clinical Conference ow.ly/6RIL50WQQ4Y
#pwME #MECFS #LongCovid
One Guide. One Goal. Final push!
Your gift will help transform the Clinical Care Guide into CME-accredited courses for providers worldwide.
Give now: givebutter.com/OneGuide_One...
#OneGuideOneGoal
August is Severe ME Month.
Severe/very severe ME can leave people bedbound & in constant pain. This publication called for urgent recognition & care for the most affected: buff.ly/Pc0Cjcp
💙 We stand with them.
#SevereME #MECFS #UnitedForME
We’re nearly 1/4 of the way to our $10K match honoring Dr. “Bud” Keye’s legacy of compassionate care! 💙
Give by July 15 to double your impact for ME/CFS & Long COVID.
Text BHCGUIDE to 53555 to donate
#MECFS #LongCOVID #DoubleYourImpact
Chapter 2 of the Clinical Care Guide breaks down ME/CFS, Long COVID, and related conditions for clinicians—covering diagnostic criteria, PEM, comorbidities, & practical tools for care.
📘 Download: bit.ly/4jScKFu
@openmedf.bsky.social #MECFS #LongCOVID
We're launching a $5 Campaign to get the Clinical Care Guide into the hands of providers worldwide.
$5 = 1 guide. 1 provider. 1 life changed.
💙 Donate now: loom.ly/q08sVxQ
📘 Learn more: loom.ly/-Gjg9w8
#MECFS #LongCOVID @openmedf.bsky.social
ER visits can be tough with ME/CFS & Long COVID. This popular MERC’s guide helps providers manage OI, MCAS, sensory concerns & more.
Download & share bit.ly/3AEsKoW
💙 Share to improve emergency care!
@openmedf.bsky.social #MERC #MECFS #LongCOVID #UrgentCare
Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22
On #ClinicalTrialsDay, we celebrate BHC's research team. They’re advancing treatments and improving diagnostics for ME/CFS & Long COVID.
🔗 Learn more about what our research team is up to: loom.ly/MJo615A
#CTD2025 #ResearchMatters
ME/CFS is a complex condition that can occur after an infection (like the flu, mono, COVID-19, etc.). For some, there’s no clear trigger, but regardless, the illness is completely life altering.
Learn more👉 loom.ly/9Dwp5IE
#MECFS #LongCOVID #InvisibleIllness
ME Association: 'America: ‘Virus Hunter’ Ian Lipkin calls for Long Covid and ME/CFS to be studied together'
meassociation.org.uk/2025/02/amer...
🌟 Struggling with unexplained symptoms after a recent infection or never fully recovered from COVID-19?
✅ Watch the 3rd video in our BASICS series with Clayton Powers, DPT, titled "The BASICS: Diagnosing ME/CFS", and gain insight into this often-misunderstood disease.
🔗 Watch here: bit.ly/4jb1ww8
Post-COVID #MECFS rates are 15x higher than pre-pandemic levels. New research highlights the urgent need for awareness and care. Explore the findings: loom.ly/wLycS1s
Quiet evening in Az to start off the new year
Bateman Horne Center has a list of Healthcare Professional Continuing Medical Education (CME) courses on their website you can share with your doctor if they want to learn more about ME/CFS. Two of the courses are expiring soon (end of January).
batemanhornecenter.org/providers/me...
#MEcfs #pwME
The censorship algorithm on Twitter reduced our audience by roughly 95%, and seriously, who does that to a wildlife biology & advocacy group ?
So we moved 😇 over here to BlueSky
If you could, please help us regain our following
Follow
Retweet and
Repeat ;-)
Together we can change the world.
Bateman Horne Center: Healthcare Professional Continuing Medical Education (CME)
batemanhornecenter.org/wp-content/u...
I haven't vetted these but am hoping they are good or at least good enough
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #LongCovid
📌 Excellent resource alert for #ME/CFS and severe #LongCOVID patients from Bateman Horne Center, supervised by Lucinda Bateman @advocate4me.bsky.social ! Download The ME/CFS Crash Survival Guide for free from the link below. It’s a 49-page manual.
batemanhornecenter.org/education/me...