@avrilkennan.bsky.social
CEO, Health Research Charities Ireland @hrci.bsky.social (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her 🤹♀️ PPI | research impact | health data | evidence-based policy | genomics | rare diseases...
Viktor Orban: "There will be NO Pride events in Hungary!"
Hungarians: "Challenge accepted"
The Last Message of Hossam to be shared after his death:
The will in alt text ⏬️
At the Irish Health Research Forum, we're discussing the vital role of patient registries. We’ve just shown this powerful video on why they matter. @hrci.bsky.social
#HealthData #PatientRegistries #RareDisease #HealthResearchMatters
m.youtube.com/watch?v=1hKH...
Great to meet Minister for Health, Jennifer Carroll MacNeill, yesterday. We talked about the value of embedding research in the health service & the key role of health research charities. Looking forward to staying in touch.
@hrci.bsky.social
@brianmartinlynch.bsky.social
@roinnslainte.bsky.social
The lovely people in the @rarediseasectn.bsky.social have done a fantastic job of bringing a diverse range of perspectives together for the #RareResearch25 conference. Researchers, clinicians, industry reps, regulators and many patients and advocates in the room.
A very insightful piece on the current situation and needs in rare disease research in Ireland. Nicely timed for the @rarediseasectn.bsky.social conference happening in @ucddublin.bsky.social today.
Anyone looking to Europe for research & interested in chromatin biology then we have opportunities in UCD, Ireland. Welcoming & diverse group & we would love to add thanksgiving to our seasonal celebrations!
Postdoc: conwaychromatinlab.com/team
PhD (MSc not required): www.coughlan-lab.com/team
At the annual conference of the SPHeRE Network, Roisín Shortall says there’s never been proper public debate about the kind of health service we should be providing in Ireland. Universal healthcare, free at the point of use, is still not a reality.
Why do we tolerate?
@sphereprogramme.bsky.social
This will series will be very interesting. Great to see @dublincityuni.bsky.social driving conversation on big topics.
Done Áine 😊
Many new accounts added to this starter pack to help you find people who are talking about health research in Ireland. Let me know if you should be included.
#HealthResearchMatters
go.bsky.app/MdNAY9L
🌍 Today is #RareDiseaseDay 2025!
We stand with the 300 million people worldwide living with rare diseases.
By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future!
🔗 Read more: metab.ern-net.eu/rare-disease...
#RareDiseaseDay2025
After years of advocacy from many groups & the dedicated work of the HSE & @roinnslainte.bsky.social, the HSE Health App has been launched.
It's an early version but marks a significant step forward - finally giving people in Ireland access to their own health data.
www2.hse.ie/health-app/
Good to see a strong focus both on patients and clinical trials at the #IPHAconference2025.
#HealthResearchMatters
Great news from #iphaconference2025! Minister for Health Jennifer Carroll MacNeill expresses strong support for clinical trials and plans to meet the National Clinical Trials Oversight Committee next week.
A positive step for #CancerResearch, #ClinicalTrials & patients! 👏💙@roinnslainte.bsky.social
Love the puns!
Happy International Day of Women and Girls in Science!
Today, we celebrate the brilliant women and girls pushing the boundaries of discovery, innovation, and progress. Their contributions shape our world in ways both seen and unseen. #HealthResearchMatters
As a Star Trek fan and a scientist, I love this image, because Dr. Jemison is both a hero *AND* one of the few people for whom we can say "here she is doing her space job" in two totally different contexts. 🧪
Our goal, as reflected in our 2025 Position Paper, is to ensure that a supportive & enabling framework exists in Ireland to facilitate impactful health & social care research. With the Dail resuming tomorrow, we're asking elected reps & policy makers to prioritise 3 asks hrci.ie/hrci-positio...
At an @ria.ie symposium on improving the prospects for fundamental biomedical research in Ireland. Inputs by David Henshall of @rcsi.bsky.social and others closely align to our call for more State investment in R&D. hrci.ie/hrci-positio...
#FundamentalResearch #HealthResearchMatters
This is a very important moment for patients and #genomics in #Europe and #Ireland.
Kudos to @rcsi.bsky.social and other collaborators.
This has been a wish for many in the genetics/genomics community in Ireland for a long time. I'm so pleased to see it coming to fruition. #genomics #PersonalisedMedicine #HealthResearchMatters
www.gov.ie/en/press-rel...
"Here’s where projects like Bluesky come in. Yes, at first glance, it looks like just another Twitter clone. But that’s just there to make users comfortable using it. Beneath that familiar surface lies something revolutionary: actual user control."
www.techdirt.com/2025/01/27/e...
Our latest HRCI blog post examines the Programme for Government and what it means for health research. Many of the commitments are broad, leaving scope for engagement with the health research community towards practical and innovative approaches. hrci.ie/news/blog-ne... #HealthResearchMatters
I spent some time going through the new Programme for Government in Ireland and share my thoughts here for anyone interested in health research, clinical trials, life sciences and the importance of it all for improving health and social care.
hrci.ie/news/blog-ne...
Such a great conversation! 👏
Done Killian. Welcome 😊
God I just love that people are getting to do this stuff!
🎉 Was great to award Prof. Mary McCarron, @tcddublin.bsky.social as winner of the @hrci.bsky.social Research Impact Award, for her work improving the lives of people with intellectual disabilities & dementia.
Research was funded by @alzheimersocirl.bsky.social & the HRB.
👉 hrci.ie/hrci-hrb-joi...
Congratulations to Professor Mary McCarron and her incredible team in Trinity College Dublin for winning Health Research Charities Ireland's research impact award, and to @alzheimersocirl.bsky.social who co-funded the winning project through the HRCI-HRB Joint Funding Scheme #healthresearchmatters