ELSIhub has officially launched a brand new discussion forum - ELSIconnect!
Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space.
To join, visit: connect.elsihub.org
19.09.2025 14:16 — 👍 1 🔁 1 💬 0 📌 0
Really looking forward to moderating this panel next week!
05.09.2025 17:20 — 👍 2 🔁 1 💬 0 📌 0
Yes, as was said in the hearing and in accompanying written testimony, 23andMe has 15 million customers, but this implicates millions more people’s genetic data because of relatedness.
11.06.2025 19:32 — 👍 0 🔁 0 💬 0 📌 0
Glenn Cohen did a great job testifying about the gaps in genetic privacy law!
11.06.2025 17:00 — 👍 0 🔁 0 💬 0 📌 0
It was so great to be able to watch this hearing in person. Congress can do much more to protect genetic privacy.
11.06.2025 16:57 — 👍 1 🔁 1 💬 1 📌 0
@jillwieberlens.bsky.social presents her new book, Stillbirth and the Law, at the Health Law Professors conference.
05.06.2025 15:29 — 👍 5 🔁 2 💬 1 📌 1
A panel of 7 people of different races and genders sitting at a table
Fascinating(yet depressing) plenary session at the Health Law Professors Conference ft. @ninakohn.bsky.social @mayamanian.bsky.social @mblawrence.bsky.social Medha Makhlouf Joan Krause Aaron Kessleheim: Updates on healthcare law & policy in tumultuous times. #HLP2025
05.06.2025 13:58 — 👍 13 🔁 4 💬 0 📌 0
There are consequences for not respecting people’s privacy.
04.06.2025 11:13 — 👍 6 🔁 4 💬 0 📌 0
State begins rolling out expanded student visa vetting — starting with Harvard
The State Department issued instructions to consulates and embassies late Thursday telling them to start the vetting immediately.
“The cable also instructs consular officers to inform applicants with private social media accounts that they could be viewed as evading vetting” - penalizing individuals for simply protecting their privacy is absurd
www.politico.com/news/2025/05...
30.05.2025 14:53 — 👍 5 🔁 5 💬 0 📌 0
Panel 1 continues the discussion of AI liability with @notthattombaker.bsky.social, Gabriel Weil, Josephine Wolff, & Philip Dawson. Just covering some small questions like “how should insurance handle the chance that AI could threaten humanity?”
30.05.2025 14:48 — 👍 0 🔁 0 💬 0 📌 0
Today’s the day! Looking forward to learning all about AI and insurance.
I’ll be presenting on the privacy and discrimination risks of AI incorporated into telematics.
30.05.2025 12:01 — 👍 3 🔁 1 💬 1 📌 0
Chilling… and predictable.
25.05.2025 16:59 — 👍 2 🔁 2 💬 0 📌 0
These sorts of requirements make a mockery of our notice and consent privacy framework. “We respect privacy and will only do x, y, and z with your permission.” “….side note: if you don’t give all the permissions, nothing in this app will work.”
21.05.2025 10:38 — 👍 2 🔁 1 💬 0 📌 0
This is VERY big genetics & health news, Regeneron (Pharmaceutical company with v strong genetics in medicine arm) is going to buy 23andme. investor.regeneron.com/news-release...
19.05.2025 13:00 — 👍 35 🔁 18 💬 2 📌 1
If you haven’t yet read car privacy coverage by @kashhill.bsky.social, do so immediately. Incredibly eye opening and important!
16.05.2025 11:31 — 👍 2 🔁 0 💬 0 📌 0
Baby Is Healed With World’s First Personalized Gene-Editing Treatment
This is something that should inspire such hope for our future, but now it is coupled with fear that we may not be able to build on it because of federal retrenchment from supporting research. www.nytimes.com/2025/05/15/h...
15.05.2025 18:10 — 👍 4 🔁 2 💬 0 📌 0
Huge !!
15.05.2025 01:18 — 👍 18 🔁 6 💬 0 📌 0
It was so lovely to speak to everyone at Johns Hopkins on Monday!
30.04.2025 16:20 — 👍 2 🔁 0 💬 0 📌 0
Alt-Txt: Two people stand before multi-color strips of paper with text on them that stretch down an entire wall and onto the floor. The title of the installation "I Agree" appear in all caps on the wall, too.
Love this. In his “I Agree” installation Dima Yarovinsky-Yahel took the content from terms of service statements for companies like Facebook, Snapchat, Instagram, Tinder and printed them out on A4 paper with a standard font size for legal contracts to demonstrate the length of these agreements.
27.04.2025 19:52 — 👍 3112 🔁 1300 💬 23 📌 57
RIP to the Google Privacy Sandbox
: Chrome will keep third-party cookies, a win for web giant's ad rivals
Don't tell me you're still using Chrome when there are much better browsers out there, including DuckDuckGo, Brave, Opera, Vivaldi etc.
" #Google continues to backtrack on its #privacy promises, leaving billions of Chrome users vulnerable to online #surveillance." www.theregister.com/2025/04/22/g...
24.04.2025 09:39 — 👍 26 🔁 12 💬 4 📌 2
HIPAA includes broad exceptions that permit health care providers & insurers to share information with govt agencies for public health purposes.
22.04.2025 20:26 — 👍 20 🔁 6 💬 2 📌 2
Prof @ Northwestern law, political theorist, cat parent. Black lives matter.
Profile, pubs, etc: https://gowder.io
All my books (rule of law, racial justice, platform governance) are downloadable in free open access pdf @ https://books.gowder.io
I’m a law-themed discovery bot built by @davidcolarusso.com. Follow me to add a dash of law talk to your timeline—roughly 60 posts/day. Approximate algo: follow law folks; share new & popular posts.
Daily digest: https://icymilaw.org (news & scholarship)
Social justice attorney and city kid who prefers the woods. Views = mine and nothing here = legal advice. “You may not control all the events that happen to you, but you can decide not to be reduced by them.” - Maya Angelou
appellate advocate and litigator #insurance #emerging issues
Law prof. Insurance and litigation finance geek.
Professor at UVA Law School, insurance and tort law scholar
Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences.
www.genomicsandpolicy.org/
GA4GH sets standards and frames policies to expand genomic and health data use within a human rights framework.
https://www.ga4gh.org
Associate Professor, McGill University | Research Director at the Centre of Genomics and Policy | Author | Health law, #genomics, #data governance, #AI, #bioethics, #mhealth | Cinephile
A network of researchers dedicated to researching and preventing discrimination based on genomic data worldwide.
🔗 https://gdo.global/en/gdo/home
Our mission: Identify & address key ethical issues in science, clinical care, public health - locally & globally.
Senior writer at Slate covering courts and the law. Co-host of the Amicus podcast. Dad.
Law Professor, University of Minnesota. Constitutional Law • Family Law • Sex Equality. Three books—We the Men: How Forgetting Women’s Struggles for Equality Perpetuates Inequality, Intimate Lies and the Law, and Family Law Reimagined.
Law professor working in health law, public health and ethics, with a focus on research ethics, at Georgia State University College of Law's Center for Law, Health & Society
Science journalist, lover of sci-fi, Mandalorian, dog mom
CNN Tech Reporter, Host of "Terms of Service"
https://www.cnn.com/audio/podcasts/terms-of-service-with-clare-duffy
Delivered effective, efficient, and secure digital services for the American people until we were forced to stop on March 1, 2025. Not an official government account. Reposts are not endorsements. Our new website: https://18f.org/ #AltGov
Assistant Prof at Michigan Law || I think about how the law thinks about data || pro science and technology, anti scams
NPR correspondent covering tech
Signal: ballyn.77
https://www.npr.org/people/638550790/bobby-allyn
