Annika

Het is keihard nodig dat er erkenning, betere zorg en langetermijnbeleid komt voor #PAIS, en dan niet alleen voor #LongCovid, maar dus ook voor #MECVS, #Lyme, #Qkoorts, #PostSepsis.

Daarom 30 November, Malieveld Het PAIS Protest. Zet het in je agenda!!

Het boek We zijn allemaal wel eens moe van Annika Mell ligt op Bianca’s schoot. Het boek heeft een gele kaft die geïllustreerd is met getekende voorstellingen uit haar Annika’s dagelijks leven. Bianca ligt op haar tuinbank. Je ziet alleen het onderste deel van haar kaki-groene jurk, haar benen en blote voeten.

Wat een (h)eerlijk boek van @nnkmll.bsky.social over leven met MEcvs. Ik heb er weken over gedaan het uit te lezen, maar dat lag niet aan de vlotte, heldere manier waarop Annika haar verhaal vertelt. Het lag aan mij: het blijkt toch emotioneel om je sores terug te lezen in woorden van een ander 😅

Ooohh Sverigeeee 😍💛💙💛💙💛

Waar ben je? Wat een pracht! 😍

Distraught Egyptians Desperately Throw Bottles With Aid Into Sea, To Reach Starving Gazans | TimelineDaily Videos that went viral on social media show Egyptians fill the bottle with grains, rice, lentils, and other dry food supplies and throw them into the Mediterranean Sea.

everywhere in the world it’s the same: the state is a machine that produces borders, death and starvation, while the people reject it all to feed and support each other.

Een zittend vrouwke? 🤔

DIY > AI

Genocide.

Although I get Lotfi's thought: I have no words. At a certain point you're out of words.

May the god they worship hold them accountable. Because the people who can, all over the world, don't.

Photo of a sketchbook page. There are fineliner drawings of several things: a modern windmill, an ice cream, an old fashioned windmill, a Polly Pocket doll, a cinnamon roll, Kirby, a happy sun, a jellyfish, and two frogs. There are several colour blocks behind them, to tie all the different drawings together.

Asked for some drawing prompts in my IG stories.
It always gives such a fun variety of things to draw, I love it 🥰

there was a mouse living in the oven mitt on our porch 🍂

A screenshot of the first page of the petition showing Line, a 26-year-old white woman

A screenshot of the text of this first page of the petition. Very Severe ME patient Line aged 26 from Denmark (@nebulow on IG) has appealed to the international ME and Long Covid community to help prevent her being involuntarily removed to a psychiatric hospital from the nursing home she has been living in for the past 10 months. The core values page on their website states that "It is crucial that the residents are met with: Respect Dignity Empathy Realistic Expectations" Please sign the petition below in support of our letter asking them to recognise her energy-limiting chronic illness as a debilitating biological disease and to spare her suffering further deterioration or even death

Please sign and share the petition to stop a patient with Very Severe ME being forced to take inappropriate antipsychotic meds and detained because they can’t get out of bed.

bit.ly/linepetition

Je bent duidelijk zelf niet een rolstoel gebruiker als je deze vraag moet stellen.

Heb jij in de gaten dat dit de vooroordelen bevestigt die veel mensen hebben? Dat iedereen in een rolstoel een aansteller is? En dat dit dus veel schade brengt aan daadwerkelijke rolstoelgebruikers die constant tegen dit soort onzin moeten opboksen? 🫠

Never forget that masking is more than just protecting yourself from covid.

It’s an act of compassion, resistance, solidarity and community care.

It shows that you don’t believe people are expendable. That you refuse to be responsible for someone else’s suffering.

The kindness is in the trying.

Tumblr post from user "vigilantsycamore" Ebenezer Scrooge: Goes Outside 500 Muppets: There goes Mr. Asshole! There Goes Mr Bitch!

it is time

By now you know better
than to expect
your friends
or your coworkers
or your family
to thank you
for the precautions
you are still taking
to keep them safe,
but please accept
my gratitude: thank you,
thank you
for still giving a damn.

Jaaaaaa 😍

I love this comic about #MECFS by Matt Straznitskas from Spring 1992 #CFIDSChronicle. The early 90s, perforated-edge printer paper style is so endearing and the comic is still super relatable. The final pane "Soapbox" is, as with most early Chronicles, very depressing. #LongCovid

YouTube video by Comedy Central Latinoamérica Lip Sync Battle - Tom Holland

Throwing this out there simply to test the reach of internet law. youtu.be/jPCJIB1f7jk?...

Disabled people have been right about almost everything that’s happened over the last five years.

People don’t listen to us because they don’t think of us as real people. We’re invisible (at best) and completely disposable (at worse).

We are the canaries - and we are trying to warn you. Listen.

What a glorious prison to be in 🥹

Cover of Annika’s book. The title is ‘we zijn allemaal wel eens moe’, which translates to ‘we’re all tired sometimes’ It is a bright yellow book, with a blue swirl going over from top to left to the bottom. On the left side there are little artworks depicting Annika’s life. We see a wheelchair, two cats, a sleeping woman, pills, a mug of tea, a book, and a controller.

Hey influx of new followers! 🙋🏻‍♀️

I’m so glad more and more people are finding BlueSky.
I’m Annika, 40yrs old, disabled and chronically ill activist and illustrator.

I’m Dutch, but mostly write in English online.
I do have a book out! ‘We Zijn Allemaal Wel Eens Moe’ is in all Dutch bookstores 🥰

(There’s also an e-book and an audiobook, obviously! Gotta be accessible to as many people as possible ✌🏻)

Cover of Annika’s book. The title is ‘we zijn allemaal wel eens moe’, which translates to ‘we’re all tired sometimes’ It is a bright yellow book, with a blue swirl going over from top to left to the bottom. On the left side there are little artworks depicting Annika’s life. We see a wheelchair, two cats, a sleeping woman, pills, a mug of tea, a book, and a controller.

Hey influx of new followers! 🙋🏻‍♀️

I’m so glad more and more people are finding BlueSky.
I’m Annika, 40yrs old, disabled and chronically ill activist and illustrator.

I’m Dutch, but mostly write in English online.
I do have a book out! ‘We Zijn Allemaal Wel Eens Moe’ is in all Dutch bookstores 🥰

I'm not going to tell anyone how to run their own account, but if we want to preserve the generally kinder, happier culture we've cultivated here I strongly suggested you simply report and block these folks. Don't engage!

I'm curious to hear from other #interabled couples from the Bluesky #disability community and would like to know how you met each other. #InterabledLoveStoriesExist

Through a mutual friend years ago, but we didn’t become romantically involved until I slid into his DM’s early 2020 😎🩷