@iconquerms.bsky.social
π‘ Transforming MS Research Together π§ iConquerMS empowers people with multiple sclerosis to shape the future of care and treatment. π Join the movement: iConquerMS.org β¨ Your voice matters. Together, we conquer.
MS caregiving is a journeyβone thatβs too often unsupported.
Thatβs why ACP and RealTalk MS launched the MS Care Partner Connection: a one-stop site for resources, caregiver guides, and even an AI-powered support bot.
READ: www.acceleratedcure.org/april-2025-i... #MultipleSclerosis
People with #MS aren't just subjects of researchβtheyβre the driving force behind it.
iConquerMS has already powered over 30 studies, contributed to 16 publications, and built tools that help researchers better understand MS.
Help us do even more:
www.acceleratedcure.org/help-us-fast...
Each year, Haileeβs family runs a pumpkin patch in memory of their dad, who passed from progressive MS.
A portion of proceeds supports MS research through the Accelerated Cure Project. Read how they're turning love and loss into impact:
www.acceleratedcure.org/picking-pump...
I totally get that. For many, itβs a chance to share their MS experiences on their* terms and reach people who rarely engage with the MS community.
It's all about increasing visibility, connection, and change. Regardless, we appreciate your voice, whether during βawareness monthsβ or anytime!
#MSAwarenessWeek has ended, but the need for #MS advocacy and research remains. π§‘
A huge thank you to the people living with MS, care partners, and researchers who make iConquerMS possible!
π¬ What stuck with you the most from MS Awareness Week?
#MSAwarenessWeek is about real voices, real experiences. Sharing your MS story can help others feel less alone and bring more awareness to the challenges of living with MS.β¨π¬ Whatβs something you wish people understood about MS? Share your thoughts in the comments! #MSVoices #MultipleSclerosis
15.03.2025 18:00 β π 2 π 0 π¬ 0 π 0
#MSAwarenessWeek: Managing insurance with MS can feel impossible. In Chat with Chat, Dr. Deborah Miller discusses the five key types of insurance that matter most for people with MS and the biggest challenges in getting the coverage you need.β¨πΊ Watch: youtu.be/Uc9xBIlNd1o?... #HealthInsurance #MS
15.03.2025 17:00 β π 0 π 0 π¬ 0 π 0As #MSAwarenessWeek ends, weβre highlighting the Voices of People with #MS. iConquerMS is ensuring all voices are heard in researchβespecially those that are too often underrepresented.
Read about DeLisa, Dimika, and Veronicaβs inspiring advocacy: www.acceleratedcure.org/iconquerms-a... #MSResearch
Sharing knowledge is key to driving MS research forward. iConquerMS works with leading MS research organizations to turn real-world findings into breakthroughs.
What MS research has impacted your journey?β¨#MSAwarenessWeek #MSResearch #MultipleSclerosis @mssociety.bsky.social
How much do you really know about your MRI scans? Chat with Chat explores MRI in MS, from brain volume loss to standardized scan protocols. Watch now and join the conversation!
π₯β¨youtu.be/8XIATrQCLYo?...β¨#MSAwarenessWeek #MS #MRI @mssociety.bsky.social
A study using REAL MS Wellness & Diet survey data explored the effects of exercise, diet, and wellness choices. What wellness strategies have made a difference in your life? π§‘
Read more: www.acceleratedcure.org/june-2024-ic... #MSAwarenessWeek #MultipleSclerosis #MRI @mssociety.bsky.social
On Day 5 of MS Awareness Week, weβre talking about the importance of inclusive research. Whatβs something about MS that you think is often overlooked? Letβs discuss! π§‘
#MSAwarenessWeek #WelcomingAll #MSResearch #MS @nationalmssociety.bsky.social
#MSAwarenessWeek Day 5: Fatigue affects ~70% of people with #MS, yet treatment options are limited. A past study explored digital therapy as a non-medication approach.
How do you manage MS #fatigue? Letβs discuss. π¨
π www.acceleratedcure.org/july-2024-ic...
@nationalmssociety.bsky.social
#MS research is strongest when those affected by MS help shape studies. By sharing their insights, people with MS ensure research reflects real needs. π‘
On Day 4 of #MSAwarenessWeek, weβre celebrating #PeoplePoweredResearch! What role should patients play in shaping MS studies?
#MSAwarenessWeek
On Day 4 of MS Awareness Week, weβre celebrating people-powered research! Learn more about how the Our Questions Have Power program is making MS research more patient-driven.
π Read more: www.acceleratedcure.org/january-2025...
#MSAwarenessWeek #PeoplePoweredResearch #MSResearch
Patient-Powered Research Networks (PPRNs) let people with MS contribute from homeβremoving barriers like travel and clinic visits.
On Day 3 of MS Awareness Week, letβs discuss inclusive engagement in MS research. What barriers do you think need to be addressed next? π§‘
#MSAwarenessWeek
People from historically marginalized communities are underrepresented in MS research.
On Day 3 of MS Awareness Week, letβs talk about inclusivity in research. What barriers still need to be addressed? π§‘
www.acceleratedcure.org/november-202...
#MSAwarenessWeek
π‘ Whatβs the real cost of MS treatment? Access, affordability & patient choices all shape MS care. Dr. Chatβs research explores these challenges & why people-powered research is the future.
π₯ Watch: www.youtube.com/watch?v=Ykqi...
#MSAwarenessWeek
@nationalmssociety.bsky.social
π‘ Did you know? People with #MS can participate in mMS research from home thanks to people-powered research! π‘π» No travel, no clinic visitsβjust accessible research.
This #MSAwarenessWeek, what do you think about remote research? Share the comments below!
@nationalmssociety.bsky.social
𧬠Todayβs MS Awareness Week theme: Transcriptomics! Researchers are exploring how genes respond to MS, unlocking insights that could lead to new treatments. π Learn more about this exciting field:
π www.acceleratedcure.org/transcriptom...
@nationalmssociety.bsky.social
#MSAwarenessWeek
MS is unique to each personβno two experiences are alike. Thatβs why patient-centered research is key to shaping the future of MS.
This MS Awareness Week, letβs highlight how real-life MS experiences inform research. 𧑠What areas of MS research need more attention? Comment below!
#MSAwarenessWeek
𧑠MS Awareness Week starts TOMORROW! π§‘
Each day from March 9β15, weβll share key areas of MS research & the role of the MS community in advancing progress.
Join us for discussions, polls & insightsβyour voice matters!
#MSAwarenessWeek
Do you have MS? Our researchers want to hear your views and experiences!
Share your views on a range of topics, including health and care, and you could win Β£200.
Find the links to take part in our thread π§΅
Are you living with an autoimmune disease? Your experience matters!
Share your views on health and care as part of our study and you could win Β£200.
Find the links to take part in our thread π§΅
A new trial is investigating CAR T cell therapy for MS! Plus, learn about the link between MS & anxiety in this monthβs Research Spotlight.
Read more: www.acceleratedcure.org/january-2025...
#MultipleSclerosis #MS #MSresearch
The January 2025 iConquerMS Spotlight dives into how the "Our Questions Have Power" program is helping patients drive MS research. Through iConquerMS, you can submit & vote on research questions that matter most. π§‘
π Read more: www.acceleratedcure.org/january-2025...
#MSResearch #MS
ποΈ For people with MS, creativity isnβt just an outletβit can be a form of healing.
Art, music, and writing can help manage symptoms and build resilience. Read about the connection between creativity and MS in ACPβs latest newsletter:
π www.acceleratedcure.org/creative-hea...
#MS #CreativityHeals
MS research should include everyone affected by MS! π iConquerMS is leading the way in making research more inclusive & patient-driven.
Learn how your voice can help drive change: www.acceleratedcure.org/research-for...
#MultipleSclerosis #MSResearch #ResearchForAll
The Navigating Your Journey Program is on January 23, 7:30β9 PM EST! Teens with MS and their families are invited to join this virtual event to learn about Pediatric MS research from experts, including the Accelerated Cure Project. Register here: www.nationalmssociety.org/understandin...
22.01.2025 14:30 β π 0 π 0 π¬ 0 π 0
Donβt miss the βNavigating Your Journey Programβ on Jan 23, 7:30β9 PM EST. Designed for teens with MS and their families, featuring Pediatric MS research insights from leading experts. Register: www.nationalmssociety.org/understandin...
#PediatricMS #MS
