What do you do with grief when the person you're grieving is still alive?
Ask the Expert: Navigating Gradual Loss, Grief, and Caregiving
With experts from: Family Caregiver Alliance
March 4-6, 2026
Asynchronous three-day conversation
Join at: https://www.smartpatients.com/partners/fca
23.02.2026 15:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
You don't have to be fearless. Whether you're the one diagnosed or the one caring for someone you loveโfear is part of the journey.
But so is courage. You just have to decide to keep going anyway.
#SmartPatients #PatientCommunity #Courage
22.02.2026 22:30 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Yesterday was National Family Caregivers Day. Thank you for carrying the emotional, relational, and existential weightโnot just tasks. We know that your work matters. Read the full story: https://ow.ly/u1XH50Yj4tl
#NationalCaregiversDay #Caregivers #FamilyCaregiverAlliance #ElixirFund
21.02.2026 21:40 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Today is National Caregivers Day. Thank you to:
Family Caregiver Alliance (FCA) - for providing expert support, resources, & guidance to family caregivers.
Elixir Fund - for supporting caregivers with practical resources & compassionate guidance for those navigating complex health journeys.
20.02.2026 18:30 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0
"At KidneyCouch, we are dedicated to providing a supportive and informative space for kidney cancer patients and those who are also dealing with chronic kidney disease." That mission aligns perfectly with ours.
Join our community:https://ow.ly/IycK50YeB0S
#KidneyCouch #SmartPatients
19.02.2026 16:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
"What's my breast density?" This question can change your screening plan & help you understand your cancer risk.
My Density Matters has created a one-stop resource center to get answers: https://ow.ly/bqAt50Y91Fg
#FOMBDD #FindOutMyBreastDensityDay #MyDensityMatters #SmartPatients
18.02.2026 17:00 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0
If you missed our Valentine's Day story, it's worth going back to read.
Here is the link to I Am...Getting Beyond the Diagnosis: https://research.smartpatients.com/resources/i-amgetting-beyond-the-diagnosis
#SmartPatients #PatientCommunity #CancerSupport
17.02.2026 21:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Thank you, Ulman Foundation, for an unforgettable visit! What you offer young adults facing & treating cancer is beyond laudable! Seeing the names on the wall of all of those who you reach is a testament to the warm community you provide.
#UlmanFoundation #CancerSupport #Baltimore #SmartPatients
16.02.2026 21:55 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Together for Sharon published a blog introducing Smart Patients to his Parkinson's community. Thank you!
Read the blog here: https://ow.ly/tWKF50YeCEW
Join Smart Patients: https://ow.ly/h5PL50YeCEV
#TogetherForSharon #SmartPatients #ParkinsonsDisease
15.02.2026 23:20 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Love is showing up. Read I AmโฆGetting Beyond the Diagnosis to see love in action: https://ow.ly/Vk3650YfmqX
Our Smart Patients Team wishes a happy Valentine's Day to all the people with love in their hearts, and love to all who feel it's missing.
#ValentinesDay #SmartPatients #CancerCommunity
14.02.2026 21:05 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
We're proud to partner with KidneyCouchโa comprehensive resource for people navigating kidney cancer and chronic kidney disease (CKD). Knowledge + connection = better care.
https://www.smartpatients.com/partners/kidneycouch
#KidneyCancer #KidneyCouch #SmartPatients #ChronicKidneyDisease #CKD
13.02.2026 21:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
For most cancers, "stable" means relief. For bile duct cancer, it often means the hardest decisions are just beginning.
Read I AmโฆLiving Between Stable and Uncertain: https://ow.ly/cncf50YbLLg
#Cholangiocarcinoma #BileDuctCancer #SmartPatient
12.02.2026 16:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Some friendships start over coffee.
Others start with: "Has anyone else been through this?"
The friends you find in patient communities understand in ways others simply can't.
Find your people at Smart Patients. https://www.smartpatients.com/
#MakeAFriend #SmartPatients #FindYourPeople
11.02.2026 20:50 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
February is Rare Disease Month. 400 million people globally live with rare diseases. Most face diagnostic delays, limited treatments, and isolation. We partner with the SRNA to change that.
Check out SRNA's podcast: https://ow.ly/ARYY50YbYm4
#RareDiseaseMonth #SRNA #SmartPatients
10.02.2026 22:10 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Illness carves into you and changes the landscape of who you are. It can make you deeper and more expansive.
So why not think of yourself as a human Grand Canyon?
You are irreplaceable, awe-inspiring and canyon-level magnificent.
#SmartPatients #PatientVoices #Resilience
08.02.2026 19:30 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Cholangiocarcinoma patients face one of the rarest, most challenging cancers to treat. Read how bile duct cancer patients navigate impossible choices: https://ow.ly/pnS250Yajks
Connect with others who understand: https://ow.ly/8MKY50Yajkt
#BileDuctCancer #Cholangiocarcinoma #SmartPatients
07.02.2026 18:25 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Today is a day to think about women and cardiovascular health. Even though heart disease kills more women than all cancers combined, it's largely preventable.
Share what you know on https://www.smartpatients.com/.
#WearRedDay #GoRedForWomen #SmartPatients #WomensHeartHealth
06.02.2026 17:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Cervical cancer survivors will often remind you that most cervical cancers are preventable & that the HPV vaccination works.
Learn more by visiting our friends at Cervivor, Inc. & read: https://ow.ly/ScoL50Y7x7E
#CervicalCancer #HPVAwareness #CervicalHealth #Cervivor #SmartPatients
05.02.2026 16:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
In patient communities, we act together every day. But community alone can't close the care gap.
Peer support + systemic change = real progress.
What does "acting together" mean to you?
#WorldCancerDay #CloseTheCareGap #SmartPatients #ActTogether
04.02.2026 22:45 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
NEW at Smart Patients: Introducing Living With It
Inaugural Topic: After Treatment Ends: Why Survivorship Can Feel Harder Than Expected
Expert: KrisAnn Talarico, Curveball Counseling LLC
When: Feb 2 - Feb 6
Format: Ask anything, anytime
https://www.smartpatients.com/topics/living-with-it
03.02.2026 21:30 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Repetition can mean another day and another chance.
To everyone walking circles today, literally or figuratively: your routine matters.
Happy Groundhog Day. May you get as many loops as you need!
What are your figure-8s?
#GroundhogDay #SmartPatients #PatientWisdom
02.02.2026 16:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Illness has a way of burning through what we thought mattered and it may bring an unexpected clarity.
What did illness take from you? What did it unexpectedly give?
Share your story: https://www.smartpatients.com
#PatientCommunity #SmartPatients
01.02.2026 17:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 1
January is Cervical Health Awareness Month. This letter offers the kind of honest guidance you won't find in a pamphlet. Most cervical cancers are preventable. Read more: https://ow.ly/sQEJ50Y5AS4
Thank you Cervivor, Inc. for all the work you do!
#CervicalHealthAwarenessMonth #HPVPrevention
31.01.2026 20:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
You finished treatment. So why do you feel lost instead of relieved? Smart Patients is launching Living With Itโa new series bringing experts into extended conversation with our community. Our inaugural topic is on "After Treatment Ends:" Join us this week: https://ow.ly/Shtr50Y635J
30.01.2026 20:50 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
1,000 posts. Three years. One question: "What music rescues you?" The answers created a 4 part series about how shared music is part of survival and community. Movement IV is the chorus (& includes the Smart Patients' playlist): https://ow.ly/SGfc50Y4mtX
#MusicToTheRescue #SmartPatients
29.01.2026 16:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
We feel terrible that we missed Healthcare Continuing Education Professionals Day so we're saying a late thank you!
Thank you to the Alliance for Continuing Health Care Professionals!
What's one thing you wish every healthcare provider learned in their continuing education?
#CEProfessionalsDay
27.01.2026 19:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Children see what adults sometimes forget: that imagination can be armor.
That love can be medicine. Out of the mouths of children come the metaphors we need most.
How have children in your life helped you see cancer differently?
#CancerCommunity #SmartPatients #HealingImagery #LoveAndCancer
26.01.2026 18:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
If cancer were a poem, what would its metaphors be? This is the type of question that invites others to express what clinical language can't capture.
Art gives us permission to say the unsayable .
How would you describe cancer through art?
#CancerAndArt #ArtHeals #PatientVoices #SmartPatients
25.01.2026 17:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Smart Patients is more than a support group. It's a chorus. We say this because for over 3 years, 1,000 posts from just one conversation demonstrate the power of music and how it creates community. Read the finale of "I Am...Rescued by Music": https://ow.ly/ryqJ50Y0iyi
#SmartPatients #MusicHeals
24.01.2026 20:00 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Cancer patient advocate. Canadian. Interested in patient involvement in cancer research, evidence-based advocacy, shared decision making globally. #cansky #oncsky #kcsm #kidneycancer #shareddecisionmaking
Current Hematology & Medical Oncology Fellow @The Cleveland Clinic Foundation โก๏ธFormer Frances Young Tang Research Fellow @MSKCC โก๏ธ Former HPM Fellow @MSKCCโก๏ธ Former Postdoc Fellow @City of Hope | Focused on Heme/Onc & HPM | #SuppOnc
TogetherForSharonยฎ In memory of my Mother, Sharon to voice awareness & hope for a PD cure. http://www.togetherforsharon.com
"With every drop of water you drink, every breath you take, you're connected to the sea. No matter where on Earth you live. Most of the oxygen in the atmosphere is generated by the sea." ~ Sylvia A. Earle ~
Our vision and mission is dynamic and future-oriented, with a focus on collaboration and information-sharing as a way to make earlier interception of the disease a reality ~ kennerfamilyresearchfund.org/
We are a biotechnology company dedicated to improving the lives of children with cancer who experience hearing loss as a result of chemotherapy.
Clear Cell Ovarian Cancer.
#FuckCancer
A platform for life sciences. Publications, research protocols, news, events, jobs and more. Sign up at https://www.lifescience.net.
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
#Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Global association dedicated to improving the understanding & clinical management of inherited gastrointestinal cancer syndromes for affected families. #HereditaryGICancer
Visit us at cgaigc.com and also connect with us on LinkedIn, X and Instagram!
Our vision is to create a world in which all patients with pancreatic cancer will thrive. ๐ pancan.org
Advancing education, research, and innovation in hematology & oncology. #CancerPrevention #CancerAwareness #CancerSurvivors #CancerCare #HealthEquity #GlobalOncology #GlobalHealth #LGBTQ+๐ณ๏ธโ๐๐
Follow Us: https://buff.ly/MWm1IOU
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
An organization composed of the institutionally appointed heads of the sixteen pediatric hematology, oncology, and stem cell transplant programs across Canada. https://www.c17.ca/
https://www.c17.ca/committees/CYP-C/
Co-Founder #AYACSM โข Former โฝ๏ธ GK & Coach โข RBV Slushie King โข Peloton โข Beach Bum โข #MUFC #AllForCITY #ClipperNation #stlblues #ForTheLou #RamsHouse #BBN
Father and Husband, Oncologist, Editor, Writer, Academician, Humanist
#RadOnc. Reformed Artist. Cancer Widow. I study #FinancialToxicity #Access #Equity MD Anderson Cancer Center ๐ฒme COI http://bit.ly/3OBu0Cn ๐ฆ๐ชถ๐๏ธ #medSky #oncSky migration
Breast Oncologist @yalecancer.bsky.social
#bcsm #survonc; she/her/hers #oncsky
https://medicine.yale.edu/profile/maryam-lustberg/
#Cancer survivor, patient #advocate, Public #speaker, American Cancer Society, Director Project ECHO, MD Anderson and SWOG volunteer. #crcsm #ayacsm Views my own