@maddow.msnbc.com here is the Gov. website
I mentioned:
Covid.gov
@corywysz.bsky.social
A disabled Photo Alchemist who thrives off Eldritch Whimsy.
@maddow.msnbc.com here is the Gov. website
I mentioned:
Covid.gov
tired of this rewriting of a Global Pandemic -- Crying out, as best I can. Thank you for reading, Rachel. I'll continue to watch this space.
20.04.2025 20:44 β π 0 π 0 π¬ 0 π 0I ask @maddow.msnbc.com ... please highlight the fact that the Trump Admin have completely mutilated the Covdotgov, website. They are disbarging science and polluting our shared grief.
I do not have a media presence. I am a disabled 39 y.o., too
Sharing a member of our community's story in honor of #NationalCaregiversDay.
Video link: wellbeings.org/lean-on-me-a...
#pwME #spoonie #chronicIllness #disability
If you made it through 23% of that speech before turning off the T.V. or storming out of the room - congrats, give yourself a cookie! If you made it through the entire speech--you get the whole damn box!
05.03.2025 04:36 β π 0 π 0 π¬ 0 π 0Guess what time it is!? Time to reconnect all my accounts to a new credit card because I got hacked in Amazon Prime... which I do not own.
I am resplendent in my joy over these developments.
I am one of many. The #millionsmissing
#mecfs #chronicillness
#chronicfatigue #ehlersdanlosawareness #ehlersdanlossyndrome #pots #smallfiberneuropathy #mcas #SIBO #nocturnalepilepsy #arttherapy #covid19 #longcovid #longhauler #postviralillness
That is not hyperboley, but a fact.
Yes, we will find a way to strive onward [we always do. We are not a quiet bunch], but we have lost decades of our grasp on these mysterious illnesses.
3/
which can be a huge disruption to our lives--and levels past that, to get a seat at the table. This committee was a seismic shift toward new meds, more trials, and a better tomorrow.
This dissolution will lead to a lot of people losing their lives and leaving this world. 2/
On Feb. 19th, I found out that I am government waste...
The ME/CFS and long covid communities, like the powerhouse that is @meactnet and @longcovidalliance and so, so, so many others pushed themselves to the point of exhaustion-- π§΅
He is amazing. I don't know how he finds the time.
07.02.2025 18:52 β π 1 π 0 π¬ 0 π 0Collected Miscellany - "Yumemizuki Mizuki: Dreamwalker" | #GenshinImpact #YumemizukiMizuki
youtu.be/vNqBUf1jQ54
What happens when a clinical psychologist who is well-versed in dream therapy encounters a nightmare?
She'll invite you to join her for a hearty meal, of course.
The biggest question of today: How big will Kristi Noem's hat be while she visits Guantanamo Bay?
I venture...12 gallon?
And this is why you are a writer.
01.02.2025 05:53 β π 1 π 0 π¬ 1 π 0We are not even into a full week of 47's 2nd term, and already, things are starting to feel grim. #chronicillness #chronicfatigue #mmwr #CDC #chronicillness #ehlersdanlossyndrome #dysautonomia #mcas #mecfs #smallfiberneuropathy nocturnalepilepsy
23.01.2025 05:47 β π 1 π 0 π¬ 0 π 0I believe this has flown under the radar, but its implications could be massive. A gag order has been placed on all public health agencies by the Trump Admin. What about in regard to FDA food recalls? That remains to be seen. Keep an eye out, folks.
23.01.2025 05:47 β π 2 π 0 π¬ 1 π 0Happy 7, dear friend. Sorry you don't have any bookmarks to join you. Love and miss working with you.
Decaff coffee soon?
Operation: Fat Bird
Give InKind www.giveinkind.com/inkinds/B1F1... via @giveinkind
Something Thankful This Way Comes:
A Give InKind Update on Dad!
www.giveinkind.com/inkinds/B1F1... via @giveinkind
Just a little baby.
21.11.2024 13:28 β π 25941 π 995 π¬ 154 π 68The closest known black hole to Earth is just 1,560 light-years away.
21.11.2024 10:13 β π 24546 π 1377 π¬ 513 π 172Woah! Congrats...my first next gen system was PS1. How long did you wait for pre-order?
22.11.2024 21:28 β π 0 π 0 π¬ 0 π 0Agree.
22.11.2024 21:26 β π 0 π 0 π¬ 0 π 0The first anniversary image from NASAβs James Webb Space Telescope - Rho Ophiuchi cloud complex
22.11.2024 13:54 β π 30318 π 1704 π¬ 288 π 109Congrats to Jay and the team on creating the next social brain rush!
Everyone ready for their Thanksgiving/Friendsgivings?
131 bpm should not be your HR when you are reclined and relaxing in your wheelchair... please, stop.
Go down.
And now?
No, now! Now!
And--now!
And now.
It's nap time!
Some days, it is more like 3.
18.11.2024 08:47 β π 0 π 0 π¬ 0 π 0When the world starts to unravel, sip your blueberry sorbet slowly, methodically, and turn up the jams... your steak is ready.
13.11.2024 01:51 β π 0 π 0 π¬ 0 π 0Tactics is such a great game. Glad my college roommates got me to play it.
10.11.2024 18:32 β π 0 π 0 π¬ 0 π 0