Gro

I dag sa KrFU-lederen på #dax18 at hun selv ikke ville tatt en angrepille. Så da tar vi litt folkeopplysning. Nødprevensjon virker ved å utsette eggløsning, har ingen effekt hvis eggløsning allerede har vært. Nødprevensjon avbryter ikke svangerskap. Angrepille er ikke en tidlig abort. Si det videre.

No Evidence Supports Using Graded Exercise for ME/CFS Studies examining the effects of activity-based interventions haven’t required post-exertional malaise as a core criterion for the now-termed ‘myalgic encephalomyelitis/chronic fatigue syndrome.’

"Graded exercise" is neither supported by evidence nor recommended for people with an illness defined by worsening with exercise. #mecfs #longcovid www.medscape.com/viewarticle/...

Thank you!

ME-syke Ingrid (23) i Stjørdal har mistet den brukerstyrte personlige assistenten Målet er å bli frisk og studere, men nå har ME-syke Ingrid mistet assistenten og blitt sykere.

ok, først litt fakta:
1. syke har rett til og behov for hjelp
2. BPA er rimeligere og mer effektivt enn andre løsninger

Men kommunen nekter. Resultat?

1. Den syke blir sykere
2. Pårørende faller ut av jobb
3. Kommunen svikter sine kjerneoppgaver og sparer IKKE penger

1) 🇳🇴 A new Norwegian study looked at the health and economic impact on caregivers of people with ME/CFS.

ME/CFS strengthening traditional gender roles: female caregivers worked less and males more. All caregiver groups experienced increased personal health problems.

The health and economic burden on family caregivers of persons with me/cfs diagnosis: a register data study from Norway - Discover Public Health Background Myalgic encephalomyelitis is an illness that affects the labor capability and need for services among those affected. Interventions and services for comparable illnesses are either inaccess...

Ny artikkel fra Tjenesten og MEg. Fafo/Sintef ser på pårørende til ME-syke. Økonomi og helse link.springer.com/article/10.1...

puh.

Guttastemning på arbeidsplassen «Guttastemning» skal møte voksne kvinnelige ledere som meg. Lykke til.

Det er lite jeg er enig med Anne-Kari Bratten om, men her treffer hun spikeren på hodet. Noe sier meg at «gutta» kommer til å slite når de får sånne som meg som leder.

www.dn.no/ledelse/lede...

Her kan du støtte forskningen:

Christian vil inn på Stortinget: – Det meste i livet handler om flaks Christian Torset vil ta igjen det tapte etter 15 år på sofaen. Derfor kjemper han nå om en plass på Stortinget.

Biomedisinsk forskning på ME gjorde
Christian frisk. Tenk om vi kunne bevilge mer penger til disse forskerne, så kanskje gåten løses? Ny studie på kreftmedisin trenger finansiering.

www.nrk.no/nordland/xl/...

Har heldigvis unngått å stenge dem (vi har 4) inne. De fleste skapene våre er lette å komme seg ut av fra innsiden.

Ser du pusen vår da?

Posthumous album of singer Kara Jane released on Severe ME Awareness Day - The Sick Times This month, on August 8, the posthumous album of a young singer was released to mark Severe ME Awareness Day. Kara Jane, from Derbyshire in the U.K., had myalgic encephalomyelitis (ME) for most of her...

Late singer Kara Jane's family has released her album "In Limbo" posthumously on #SevereMEday 💙.

Read more about Kara, the album, and the impact of severe ME in this wonderful article by @naomiwhitt.bsky.social in @thesicktimes.org.

thesicktimes.org/2025/08/08/p...

1) The DecodeME study compared DNA of ca. 15,000 ME/CFS patients and 250,000 controls and found significant differences in 8 regions of our genome.

The Manhattan plot below shows the genes and chromosomes involved.

Let’s unpack the results 🧵

Possible genetic clues to ME/chronic fatigue syndrome identified in massive study DNA analysis of more than 15,500 people with the debilitating condition identifies eight tentative “genetic signals”

Science magazine’s coverage of the DecodeME initial results : www.science.org/content/arti...

Graphic 1 of 4. DecodeME: The Results graphic. At the top in bold lettering, it says ‘Main Findings’. Beneath this it says ‘Your genes contribute to your chances of developing ME/CFS. Other key findings are on the following slides.

Graphic 2 of 4. DecodeME: The Results graphic. The slide says ‘People with an ME/CFS diagnosis have significant genetic differences in their DNA compared to the general population’. Beneath this is an image of a DNA helix and a magnifying glass.

Graphic 3 of 4. DecodeME: The Results graphic. The slide says ‘These lie in many places across the genome, and do not impact just one gene’. Beneath this is an image of a DNA helix and graphs.

Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘Eight genetic signals have been identified. As DNA doesn’t change with ME/CFS onset, these findings reflect causes rather than effects of ME/CFS’. Beneath this is a blue magnifying glass with a DNA helix.

(1/2) Key genetic differences found in people with ME/CFS > Swipe to find out more.

These findings reflect the lived experience of thousands of #pwME.

Thanks to all our participants & supporters who made this possible!

Read a summary of our results: shorturl.at/pgsjk

Scientists find link between genes and ME/chronic fatigue syndrome Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness

Scientists find link between genes and ME/chronic fatigue syndrome www.theguardian.com/society/2025...

People with ME have key genetic differences to other people, study finds The DecodeME study is described the largest of its kind in the world.

People with ME have key genetic differences to other people, study finds

The DecodeME study is described the largest of its kind in the world.

#MECFS

www.standard.co.uk/news/health/...

Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome

de har funnet noe genetisk! www.research.ed.ac.uk/en/publicati...

YouTube video by Jarred Younger, PhD 067 - New results: The ME/CFS brain is inflamed

Younger har faktisk funnet betennelse i hjernen til ME-syke. youtu.be/wuzmYJxM-r0

As the mother of two, now adult, children with ME. Thank you.

Six Months Later: What Their Response on ME/CFS Tells Us About the Cochrane Collaboration - Absolutely Maybe Six months ago, I wrote a post called “When journal, scientific society, and community values clash.” I recounted the tale of the…

Six months later: What their response on ME/CFS tells us about the Cochrane Collaboration.

New post at Absolutely Maybe .... 1/2

absolutelymaybe.plos.org/2025/07/31/s...

#MECFS

Here are three basic reasons why people with ME/CFS can't be as “academically productive” (learn as much in an academic year, with a similar level of sacrifice) as they were before the illness (or compared to others who had similar academic ability): - they generally will have less hours in a week to learn*. - initially when learning: they can zone out and not take in as much in class or in a study period i.e. have difficulties sustaining concentration. - memory problems: they can forget a larger percentage of what they learn than previously, so need to spend more time revising.

🧵
Extract from a new short blogpost of mine:

"3 basic reasons why people with ME/CFS can’t be as 'academically productive' (learn as much in an academic year) as they could be before the illness"

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome

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Tenk om vi ikke hadde hatt bøker!

Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome [ME/ Fatigue/CFS] Research Roadmap.-The Committee recognizes the urgent need to advance research for ME/CFS, especially given its overlap with Long COVID and relevance across multiple ICs and com- mends NIH for approving the ME/CFS Research Roadmap. The Committee encourages NIH to implement the roadmap's rec- biomarker rec-ommendations, including advancing biomarker discovery, diagnostic tool development, and clinical trials. NIH is further directed to provide a detailed implementation plan to the Committee within 180 days of enactment.

Huge congrats to everyone who’s been advocating for support for the NIH’s ME/CFS Research Roadmap!! 🥳🥳

Senate FY26 budget language, out today, would give NIH 180 days to send the Senate a “detailed implementation plan” for the Research Roadmap! 🔥🔥

Long-COVID, viruses and ‘zombie’ cells: new research looks for links to chronic fatigue and brain fog SARS-CoV-2 and some other viruses trigger “zombie cells” that can create a mix of symptoms seen in long-COVID.

theconversation.com/long-covid-v...

1) Interesting letter in The Lancet Rheumatology by Brittany Adler.

"Rheumatologists are uniquely trained to manage complex, multisystem illness. Yet the field has largely remained at the margins of infection-associated chronic illness and autonomic dysfunction..."

Snodig følelse å ta på langbukse etter et par uker med nesten ingen klær.

Bedfordshire woman with ME criticises health plan for condition Maddie Walker says she is

BBC: 'Woman with ME criticises health plan for condition'

A woman living with myalgic encephalomyelitis (ME) said she has "lost faith" in receiving "meaningful support" after the government released a plan to help patients.

www.bbc.co.uk/news/article...

APPENDIX 2. ME/CFS Symptom Prevalence and Severity (These prevalence and severity figures are from A definition-based analysis of symptoms in a large cohort of patients with chronic fatigue syndrome, P. De Becker, N. McGregor, and K. De Meirleir. Journal of Internal Medicine 2001;250:234-240.) A total of 2,073 consecutive patients with major complaints of prolonged fatigue were assessed. Among them 1,578 met the Fukuda criteria and of those, 951 met the Holmes criteria. The figures indicate the differences in prevalence and severity of symptoms between these patient groups.

I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome

Particularly relevant when similarities with the #LongCovid presentation in some people are being missed

#MEcfs #CFS #PwLC
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