It is an honor to have our story recognized by @astmh.bsky.social! #TropMed25 is an important chance to share novel approaches to treating neglected diseases. I ask that you share your treatment experiences on CURE ID (cure.ncats.io). This way others may benefit the way Alaina did!
"The Free-Living Bureaucrat" by Michael Lewis in the @washingtonpost.com wins this year's Communications Award for documenting the life-saving role the FDA plays in ensuring safe and affective emerging treatments. Give it a read: www.washingtonpost.com/opinions/int... #TropMed25
Yes, very much appreciated the call out and enjoyed the conversation today - lots of talk about repurposing!
So grateful for Michael Lewis’s continued showcasing of #CUREID and why there is a need for such a platforrm.
Check out this clip from @FareedZakaria on @CNN here: edition.cnn.com/2025/04/20/p....
Visit CURE ID today to share your treatment experience: cure.ncats.io!
By uniting our efforts, we can drive meaningful progress and improve lives!
#SPAGN #Sarcoma #patients #caregivers #clinicians #treatmentexperiences #CUREID #drugrepurposing #drugrepositioning #rarecancer #rarediseases #Collaboration #HealthcareCommunity #Sarcoma
Print the poster for your office/clinic!
Visit the site today: cure.ncats.io/pilot-overvi...
The #SPAGN conference brings together a vibrant community of #Sarcoma advocates, and I'm thrilled to be a part of it! As we engage with this event, I invite patients/caregivers/clinicians to share their invaluable Sarcoma treatment experiences on CURE ID at cure.ncats.io/pilot-overvi... or the app.
So please don’t wait, visit cure.ncats.io or download the CURE ID mobile app today and share your treatment experience with an existing drug being used in a new way.
Anyone can now submit a report to CURE ID - whether you are a patient, care partner/caregiver, or healthcare provider and it’s not limited to infectious diseases, you can add a report on nearly any disease where there are inadequate treatment options.
However, for CURE ID to reach it’s potential, we need YOU to share your treatment experiences in order for the platform to help more patients and clinicians in situations like Alaina’s.
I had an incredible surprise last night! See minute 27 with Jon Stewart. I’m grateful Michael Lewis is shedding light on the vital work my team is doing at the FDA/NIH. This acknowledgment is a testament to the tireless efforts of individuals across the government. youtu.be/79_n1FKZwHo
Discover how CURE ID fosters collaboration among researchers and uncovers new applications for existing treatments in this article featuring the story of a family's experience with a rare disease that had no real options without their help. www.washingtonpost.com/opinions/int...
Thanks Ilan! That’s very kind of you
