Amy Mooney

Remember when @asbmb published this article on #MECFS? www.asbmb.org/Asbmb.Web/me...

Protest sign with images of MN state representatives who were shot today. Crowd in background

IL is thinking of you all in MN

Proud to stand w Bateman Horne Center to raise awareness & support for those with ME/CFS & other infection-associated chronic conditions. With Thalia’s leadership, vision & dedication, BHC is entering a new chapter,advancing advocacy & compassionate care for this community. Please donate to support.

Photo of presentation title page on blue and yellow graphics. A4P holding onto Hope: a brighter tomorrow conference Saturday, June 7, 2025, 2:40 PM to 3:20 PM eastern standard time Amy Mooney presents: Pacing for post exertional malaise (PEM)

www.awarenessforpotsies.org/conference

I know it’s not the same, but Trader Joe’s has really good GF raisin bread.

Staying within Your Energy Envelope by Modifying Tasks Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

How do you pace when daily tasks like showering trigger PEM?
This MERC video breaks it down—ADL tips, energy buckets, OT vs PT & more.
Watch Now: loom.ly/VeNUq7w
💙 Donate: loom.ly/KiU4n_4
@openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID

Amazing insight into how your body is responding to compressions due to specific positions.

Internal jugular vein compression and potentially other compressions- insufficient blood flow- can be made worse with cervical instability… or cervical instability made worse from poor blood and CFS flow. It’s all connected. Good you are pursuing. Best to you.

Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.

Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22

Harper is a fantastic provider and an amazing human. Going the extra mile means the world-especially for pwME.

Hugs to your mom from me.

Honored to join a dedicated team of clinicians, researchers, and individuals with lived experience to create the Clinical Care Guide: Managing ME/CFS, Long COVID & IACCs. A joint project of @batemanhornecenter and @OpenMedF’s MERC program. Access it now! batemanhornecenter.org/clinical-car...

Real-life Groundhog Day in Congress- but this time it’s not funny… it’s sinister.

Well done Anil.

Steve Kerr’s father, Malcolm Kerr, served as the president of the American University of Beirut, where he was assassinated.

Steve knows firsthand the dangerous consequences that can come from the suppression of speech and ideas—thank you Coach Kerr for your voice and platform.


Maggie, well done. Thank you for your advocacy💙 Your message was heard. #MillionsMissing #MEAction.

A powerful collection of artwork by talented artists living with severe ME/CFS, expressing their experiences through their art.

www.aquietstorm.me

Well done!! So proud of you all. (My daughter is part of this project)

170 - Amy Mooney - Podcast Episode · Long Covid Podcast · 04/02/2025 · 51m

podcasts.apple.com/us/podcast/l...

Live: Speaking on Trump, Musk, and America’s Moral Moment on the Senate Floor | Senator Cory Booker YouTube video by Senator Cory Booker

youtube.com/live/v2utlMx...
Thank you senator @corybooker.com Keep speaking truth.

Great work Mark!

This is a big deal! Hugs and cheers.

Long COVID Can Disrupt Sensory Integration, But What Does That Mean? Insights from Occupational Therapist Amy Mooney

Honored 2 chat w Dr. Zeest Khan on her podcast! 🎙️ We explored how #OT uses sensory integration techniques 2 support individuals living w #MECFS & #LongCOVID. Grateful 4 the opportunity 2 share insight! #PEM #pwME #pwME #SItherapy

podcasts.apple.com/us/podcast/l...
open.substack.com/pub/longcovi...

Jessica: When I hear Republicans out there talking about their plan for education in America, I don't hear them talking about making sure disabled kids have access to a public education.


Greg: Because we're against it.

Ian Lipkin’s research center was a major hub. This hurts!!

It’s not about trimming fat- this is ripping the guts out. People with #MECFS and #LongCOVID will suffer and research pushed back to the dark ages. A new dark age for science has begun.

A Dark Day for Our Country I'm not going to sugarcoat it. Today was a bad day for our country – and for the Democratic Party.

I'm not going to sugarcoat it.

Today was a bad day for our country – and for the Democratic Party.

Let's talk about it.

open.substack.com/pub/schiffno...

Then that shutdown is on them!!! Their cherry-picked re-opening is their doing.

Do not help them!

They are already stripping out the government- why help them?!?!

VOTE NO.
@durbin.senate.gov @duckworth.senate.gov

CALLS ARE WORKING - it has bought us precious time, but we NEED to keep the pressure up.

Tomorrow is the cloture vote.

KEEP CALLING: (202) 224-3121 ☎️☎️☎️

Tell your Dem Senator to vote NO on Cloture and NO on the Republican spending bill.

Do NOT assume your Senator will be good on this. Trust me.

from senator @chrismurphyct.bsky.social chris murphy's recent floor speech, via @davidcorn.bsky.social ...

link.motherjones.com/public/38940...