#23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney
Iβm thrilled to share my recent interview on the Make Visible podcast, episode #23! I hope youβll take a moment to listen.
#LongCovid #MyalgicEncephalomyelitis #MECFS #OccupationalTherapy
open.spotify.com/episode/5C5h...
05.11.2025 13:05 β π 1 π 1 π¬ 0 π 0
YouTube video by PoliticsGirl
Are Your PREMIUMS going UP?
People will die if we donβt fix this. This is what the Democrats are holding out forβ¦
youtube.com/shorts/eoNPs...
27.10.2025 18:55 β π 711 π 314 π¬ 47 π 46
As Toni Morrison said, "the very serious function of racism is distraction. It keeps you from doing your work." But she also reminded us never to lose our capacity to be shocked.
Part of my conversation on @ayman.msnbc.com earlier today.
25.10.2025 23:42 β π 12072 π 2611 π¬ 153 π 86
Mike Johnson doesn't know sh*t
22.10.2025 23:22 β π 13309 π 4716 π¬ 1005 π 623
Why is the IL state police helping ICE move βdetaineesβ?
Last night around 8pm my vehicle got blocked by ISP so that 15 white transport vans could move through the intersection. They traveled east on Roosevelt and turned north on 1st Ave.
Why is IL helping ICE move people ????
19.10.2025 12:05 β π 6 π 0 π¬ 1 π 0
hereβs more context to the videos DHS is putting out from Chicago.
15.10.2025 00:39 β π 9628 π 4913 π¬ 353 π 240
We are two days into a government shutdown β House Republicans are nowhere in sight.
Why are they hiding?
02.10.2025 15:12 β π 198 π 69 π¬ 25 π 4
YouTube video by Jimmy Kimmel Live
Jimmy Kimmel is Back!
As I was sayingβ¦
24.09.2025 04:27 β π 36285 π 7956 π¬ 1705 π 807
Remember when @asbmb published this article on #MECFS? www.asbmb.org/Asbmb.Web/me...
30.07.2025 17:21 β π 3 π 1 π¬ 1 π 0
Protest sign with images of MN state representatives who were shot today. Crowd in background
IL is thinking of you all in MN
14.06.2025 19:27 β π 1 π 0 π¬ 0 π 0
Proud to stand w Bateman Horne Center to raise awareness & support for those with ME/CFS & other infection-associated chronic conditions. With Thaliaβs leadership, vision & dedication, BHC is entering a new chapter,advancing advocacy & compassionate care for this community. Please donate to support.
13.06.2025 15:27 β π 12 π 1 π¬ 0 π 0
Photo of presentation title page on blue and yellow graphics. A4P holding onto Hope: a brighter tomorrow conference
Saturday, June 7, 2025, 2:40 PM to 3:20 PM eastern standard time
Amy Mooney presents: Pacing for post exertional malaise (PEM)
www.awarenessforpotsies.org/conference
05.06.2025 18:03 β π 4 π 0 π¬ 0 π 0
I know itβs not the same, but Trader Joeβs has really good GF raisin bread.
25.05.2025 19:53 β π 0 π 0 π¬ 1 π 0
Staying within Your Energy Envelope by Modifying Tasks
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
How do you pace when daily tasks like showering trigger PEM?
This MERC video breaks it downβADL tips, energy buckets, OT vs PT & more.
Watch Now: loom.ly/VeNUq7w
π Donate: loom.ly/KiU4n_4
@openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID
22.05.2025 19:02 β π 25 π 10 π¬ 1 π 1
Amazing insight into how your body is responding to compressions due to specific positions.
17.05.2025 13:49 β π 3 π 0 π¬ 1 π 0
Internal jugular vein compression and potentially other compressions- insufficient blood flow- can be made worse with cervical instabilityβ¦ or cervical instability made worse from poor blood and CFS flow. Itβs all connected. Good you are pursuing. Best to you.
17.05.2025 13:32 β π 6 π 0 π¬ 1 π 0
Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.
Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22
15.05.2025 14:49 β π 18 π 11 π¬ 1 π 0
Harper is a fantastic provider and an amazing human. Going the extra mile means the world-especially for pwME.
12.05.2025 23:11 β π 2 π 0 π¬ 1 π 0
Hugs to your mom from me.
11.05.2025 13:27 β π 1 π 0 π¬ 1 π 0
Honored to join a dedicated team of clinicians, researchers, and individuals with lived experience to create the Clinical Care Guide: Managing ME/CFS, Long COVID & IACCs. A joint project of @batemanhornecenter and @OpenMedFβs MERC program. Access it now! batemanhornecenter.org/clinical-car...
09.05.2025 19:04 β π 13 π 5 π¬ 0 π 0
Real-life Groundhog Day in Congress- but this time itβs not funnyβ¦ itβs sinister.
05.05.2025 17:25 β π 2 π 0 π¬ 0 π 0
Well done Anil.
02.05.2025 17:49 β π 0 π 0 π¬ 0 π 0
Steve Kerrβs father, Malcolm Kerr, served as the president of the American University of Beirut, where he was assassinated.
Steve knows firsthand the dangerous consequences that can come from the suppression of speech and ideasβthank you Coach Kerr for your voice and platform.
οΏΌ
16.04.2025 14:00 β π 726 π 65 π¬ 12 π 2
Maggie, well done. Thank you for your advocacyπ Your message was heard. #MillionsMissing #MEAction.
15.04.2025 22:25 β π 1 π 0 π¬ 0 π 0
A powerful collection of artwork by talented artists living with severe ME/CFS, expressing their experiences through their art.
www.aquietstorm.me
12.04.2025 13:19 β π 10 π 7 π¬ 0 π 0
Well done!! So proud of you all. (My daughter is part of this project)
12.04.2025 02:28 β π 3 π 0 π¬ 1 π 0
My Book: Giving Up Is Unforgivable |UALawSchool |MSNBC Legal Analyst |Podcasts #SistersInLaw & Cafe Insider|Obama US Atty |25 year fed'l prosecutor|Wife & Mom of 4|Knits a lot|Civil Discourse newsletter: joycevance.substack.com
Unroll/Threadreader Bot.
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Mayor-Elect of New York City
Former journalist running for Congress (IL-09) because we deserve Democrats who actually do something | katforillinois.com
Penelope and Gusβs dad. Author, teacher, macaroni and cheese maker. PAPAβS COMING HOME is an instant NYT bestseller and on shelves now!
Girl Dad. Hip-Hop Lover. Former Capitol Police Officer. #Good Trouble. Defender of Democracy on Jan 6th and beyond.
Co-Host of Clean Up on Aisle 45
Author of The 3 Things, Speaker
https://linktr.ee/maggieboxey
π¦living with disabling βΏοΈ Chronic Illnessπ¦ #mecfs
Sober πRural GA Progressiveπ
πΊπΈβοΈveteran
π§Άπ¨ππ©π»βπ»π
Law Professor at George Washington Law. President of the Cyber Civil Rights Initiative. Author of Fearless Speech (2024) and The Cult of the Constitution (2019). First Amendment, civil rights, technology, criminal law, family law, firearms law.
The foremost hypermobility neurodivergence community charity BrainBodyMind AUTISM ADHD DYSPRAXIA DYSLEXIA EDS HSD pain
Chair @JGjanegreenmbe.bsky.social
Patron @bendybrain DrzakSpiritos
Web: www.sedsconnective.org
Link: https://linktr.ee/SEDSConnective
Doting grandmother, among other things.
Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
ME-dically gaslit for 10yrs.
U.S. Senator from Connecticut.
Mom. Combat Veteran. Blackhawk pilot. U.S. Senator. Illinoisan.
Immigrant. Citizen. Mouthy advocate for common sense. Official accountπ
https://linktr.ee/politicsgirl
Delivered effective, efficient, and secure digital services for the American people until we were forced to stop on March 1, 2025. Not an official government account. Reposts are not endorsements. Our new website: https://18f.org/ #AltGov
The fastest growing independent news network in the world. We cover breaking news, politics, law and more. We are unapologetically pro-democracy.
Temerty Professor of Modern European History, Munk School, University of Toronto; Permanent Fellow, IWM Vienna; Emeritus Levin Professor, Yale. Author of "On Freedom," "On Tyranny," "Our Malady," "Road to Unfreedom," "Black Earth," and "Bloodlands"
