AMooney

AMooney

@amymooney.bsky.social

Occupational therapist, advocate, and caregiver dedicated to supporting individuals with chronic complex conditions. Offering therapeutic care for those affected by #MECFS, #LongCOVID, #POTS, #EDS, and related conditions.

1,709 Followers 1,081 Following 69 Posts Joined Nov 2024
2 days ago
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International Society for Mast Cell Activation Syndromes (ISMCAS) ISMCAS is a global, multidisciplinary professional society committed to advancing care, research, and education for mast cell activation syndromes and related disorders.

Be sure to look into impact of mast cells on “circuits”. Join ismcas.org

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2 weeks ago
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BREAKING

Former ICE agent:

On my first day training new cadets, I received secretive orders to teach them to violate the Constitution by entering homes without a judicial warrant.

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3 weeks ago
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U2 - American Obituary (Lyric Video) YouTube video by U2

youtu.be/Y3ziTSYyook?...

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1 month ago
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Bruce Springsteen - Streets Of Minneapolis (Official Audio) YouTube video by Bruce Springsteen

I wrote this song on Saturday, recorded it yesterday and released it to you today in response to the state terror being visited on the city of Minneapolis. It’s dedicated to the people of Minneapolis, our innocent immigrant neighbors and in memory of Alex Pretti and Renee Good.

Stay free

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1 month ago
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The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault.

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1 month ago
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From the PublicFreakout community on Reddit: Another angle of the Minneapolis shooting, taken from the perspective of the lady with te pink jacket. Explore this post and more from the PublicFreakout community

CW - Alex Jeffrey Pretti, an American citizen, was directing traffic and helping a woman who was pushed

37-year-old white man, no serious criminal history

Observing with a cell phone

He had a legal gun permit

Worked for the VA

He was murdered by ICE

www.reddit.com/r/PublicFrea...

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2 months ago

Respectfully Jon Stewart, you were wrong on the @weeklyshowpodcast.bsky.social to mock people who mask. ICYMI: there are tens of millions of Americans who have been disabled by #LongCOVID and must do everything in their power to prevent further infections that make them vulnerable to further
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3 months ago
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To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! My daughter has been diagnosed with a range of chronic conditions, including Hyper-mobile Ehlers-Danlos Syndrome and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I have approached my r...

Powerful caregiver/parent lived-experience perspective on complex chronic illness— research must include a longitudinal approach. Lived experience matters. We need studies that reflect that reality.
#MECFS #IACC #LongCOVID #MyalgicEncephalomyelitis

www.annfammed.org/content/23/6...

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4 months ago
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#23 Improving quality of life - managing P.E.M. and moving towards stability with O.T. Amy Mooney

I’m thrilled to share my recent interview on the Make Visible podcast, episode #23! I hope you’ll take a moment to listen.
#LongCovid #MyalgicEncephalomyelitis #MECFS #OccupationalTherapy

open.spotify.com/episode/5C5h...

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4 months ago
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Are Your PREMIUMS going UP? YouTube video by PoliticsGirl

People will die if we don’t fix this. This is what the Democrats are holding out for…
youtube.com/shorts/eoNPs...

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4 months ago
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As Toni Morrison said, "the very serious function of racism is distraction. It keeps you from doing your work." But she also reminded us never to lose our capacity to be shocked.

Part of my conversation on @ayman.msnbc.com earlier today.

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4 months ago
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Mike Johnson doesn't know sh*t

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4 months ago
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What Doesn't Kill You | ME/CFS Documentary | Coming in 2025 "What Doesn't Kill You" is a forthcoming documentary exploring the lives of people battling ME/CFS, a scandalously underfunded and chronically ignored disease.

Please watch this documentary trailer and learn about #ME/CFS
#MyalgicEncephalomyelitis

Donate if you can.

whatdoesntkillyou.movie

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4 months ago

Why is the IL state police helping ICE move “detainees”?

Last night around 8pm my vehicle got blocked by ISP so that 15 white transport vans could move through the intersection. They traveled east on Roosevelt and turned north on 1st Ave.

Why is IL helping ICE move people ????

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4 months ago
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here’s more context to the videos DHS is putting out from Chicago.

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5 months ago
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When the Body’s Alarm Won’t Turn Off Blog Summary Imagine if a fire alarm kept ringing long after the smoke was gone. That’s similar to what happens in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), where the body seems…

batemanhornecenter.org/when-the-bod...

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5 months ago
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We are two days into a government shutdown — House Republicans are nowhere in sight.

Why are they hiding?

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5 months ago
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Jimmy Kimmel is Back! YouTube video by Jimmy Kimmel Live

As I was saying…

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7 months ago

Remember when @asbmb published this article on #MECFS? www.asbmb.org/Asbmb.Web/me...

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8 months ago
Protest sign with images of MN state representatives who were shot today.  Crowd in background

IL is thinking of you all in MN

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9 months ago

Proud to stand w Bateman Horne Center to raise awareness & support for those with ME/CFS & other infection-associated chronic conditions. With Thalia’s leadership, vision & dedication, BHC is entering a new chapter,advancing advocacy & compassionate care for this community. Please donate to support.

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9 months ago
Photo of presentation title page on blue and yellow graphics.  A4P holding onto Hope: a brighter tomorrow conference
Saturday, June 7, 2025, 2:40 PM to 3:20 PM eastern standard time   
Amy Mooney presents: Pacing for post exertional malaise (PEM)

www.awarenessforpotsies.org/conference

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9 months ago

I know it’s not the same, but Trader Joe’s has really good GF raisin bread.

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9 months ago
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Staying within Your Energy Envelope by Modifying Tasks Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

How do you pace when daily tasks like showering trigger PEM?
This MERC video breaks it down—ADL tips, energy buckets, OT vs PT & more.
Watch Now: loom.ly/VeNUq7w
💙 Donate: loom.ly/KiU4n_4
@openmedf.bsky.social #MERC #MECFS #PEM #Pacing #LongCOVID

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9 months ago

Amazing insight into how your body is responding to compressions due to specific positions.

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9 months ago

Internal jugular vein compression and potentially other compressions- insufficient blood flow- can be made worse with cervical instability… or cervical instability made worse from poor blood and CFS flow. It’s all connected. Good you are pursuing. Best to you.

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9 months ago
Promotional image for Education Modules for ME/CFS, with the headline 'Education MODULES' in bold, followed by 'ME/CFS AT YOUR PACE'. The image highlights that the modules are developed by clinicians and people with lived experience, designed to be accessible, self-directed, and grounded in lived experience. A person is shown typing on a laptop. The text 'Support that meets you where you are' is featured at the bottom, with the Bateman Horne Center and Emerge Australia logos displayed.

Exciting news: BHC & @emergeaustralia.bsky.social are collaborating to expand access to self-paced, patient-centered education for people with #MECFS, #LongCOVID & #IACCs. These tools help individuals better understand their experience with PEM, OI, and more.
Available: loom.ly/TUT-cLw%22

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10 months ago

Harper is a fantastic provider and an amazing human. Going the extra mile means the world-especially for pwME.

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10 months ago

Hugs to your mom from me.

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10 months ago

Honored to join a dedicated team of clinicians, researchers, and individuals with lived experience to create the Clinical Care Guide: Managing ME/CFS, Long COVID & IACCs. A joint project of @batemanhornecenter and @OpenMedF’s MERC program. Access it now! batemanhornecenter.org/clinical-car...

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