Becca Miller PhD's Avatar

Becca Miller PhD

@rebeccamil.bsky.social

πŸŒˆπŸ’™πŸŒ Team Snail founder, Clinical Psychologist, Living with #yopd Young Onset #Parkinsons Disease since age 27, dx 2013. #DBS in 2021 & 2024. MJFF Patient Council member, SMC, love lemons www.rebeccamillerphd.com

1,616 Followers  |  5,035 Following  |  592 Posts  |  Joined: 12.11.2024  |  1.9289

Latest posts by rebeccamil.bsky.social on Bluesky

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Ask Us Anything About Parkinson’s and Relationships How do I tell my children about my Parkinson’s disease (PD) diagnosis? How do I explain a tremor to my grandkids? How can I support my parent with Parkinson’s from a distance? How can my spouse and I ...

New podcast from Mjff on #relationships with #parkinsons www.michaeljfox.org/podcast/ask-...

20.08.2025 21:59 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Knitting Together Recovery: Weaving Together a Life Knit one purl one, the rhythm of the looping and tugging of yarn as it twists and wraps to make a garment. Soft in my fingers, and the rounded tips of my f

My latest writing about my experience with #mentalillness and #recovery #psychology #psychiatry

academic.oup.com/schizophreni...

15.08.2025 15:30 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Knitting Together Recovery: Weaving Together a Life Knit one purl one, the rhythm of the looping and tugging of yarn as it twists and wraps to make a garment. Soft in my fingers, and the rounded tips of my f

My latest- academic.oup.com/schizophreni...

13.08.2025 18:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Book cover of Jonny Achesons book when your neurons dance a story of a doctor with Parkinson’s disease

Book cover of Jonny Achesons book when your neurons dance a story of a doctor with Parkinson’s disease

Excited to read this #yopd #parkinsons

12.08.2025 19:24 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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The Parkinson’s Foundation is deeply saddened by the passing of music legend Ozzy Osbourne, just weeks after his farewell show. Since his Parkinson’s disease diagnosis in 2019, Osbourne publicly shared his journey and brought greater awareness to the challenges of living with PD.

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22.07.2025 18:56 β€” πŸ‘ 11    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
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02.07.2025 08:48 β€” πŸ‘ 5307    πŸ” 780    πŸ’¬ 93    πŸ“Œ 78
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From Hopelessness to Hope: Addressing Demoralization in Parkinson's Disease Background Demoralization is a pervasive yet under-recognized syndrome that manifests as profound hopelessness, helplessness, loss of motivation and purpose, and impaired coping capacity. Affecting ...

Excited about this paper just published in #movementdisorders clinical practice on demoralization as an underappreciated phenomenon in #parkinsons disease. @drisubramanian.bsky.social Dr. Bradley McDaniels, Dr. Soania Mathur, Dr. Greg Pontone movementdisorders.onlinelibrary.wiley.com/doi/epdf/10....

01.07.2025 16:36 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 2    πŸ“Œ 1

It is very disconcerting to think that I may be smelling smells again #parkinsons #yopd

02.05.2025 17:09 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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More than just words: Record-setting speech gives hope to Parkinson’s community - Healthy Debate As a neurologist specializing in Parkinson’s disease, I was profoundly touched by Sen. Cory Booker’s emotional, record-setting speech to the U.S. Senate on March 31.

Great op-ed to cap off #parkinsons awareness month by @drisubramanian.bsky.social healthydebate.ca/2025/04/topi...

30.04.2025 16:33 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

A great FREE offering from @worldpdcongress.bsky.social coming up TOMORROW!

23.04.2025 15:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This is a great opportunity to attend the WPC 2026! And the volunteer team is such an amazing group of people. @worldpdcongress.bsky.social

23.04.2025 15:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
What is Parkinson's Disease? | Parkinson's Foundation
For more information on this topic, visit: https://www.parkinson.org/understanding-parkinsons There is a lot to know about Parkinson's disease (PD). Learn ab... What is Parkinson's Disease? | Parkinson's Foundation

πŸŽ₯ Today for Parkinson’s Awareness Month, watch this short video to learn the basics of Parkinson’s disease:

05.04.2025 19:00 β€” πŸ‘ 8    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

Thanks for reading the article!

02.04.2025 23:30 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Yes - I closed it and am in the process of analyzing the data. I’ll delete the link in a few but wanted to respond to you first. I’ll post the results when they are published.

02.04.2025 23:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It is so challenging - I definitely thought I wouldn't have the same problems, being educated, and advocating, and yet still these problems happened to me...it is a very helpless feeling. We need more systemic change!

02.04.2025 18:03 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Hospitals Should Be a Place of Healing β€” Women's Parkinson's Project Hospitals and DBS surgery

Hospital care for people with #parkinsons is a dangerous thing. Read about it here, published by a great org, #womensparkinsonsproject #yopd #hospital #dbs:
www.womensparkinsonsproject.com/stories/hosp...

02.04.2025 15:32 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 2    πŸ“Œ 1
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Write to Cory | U.S. Senator Cory Booker of New Jersey The Official U.S. Senate website of Senator Cory Booker of New Jersey

Take a minute to write a thank you to @booker.senate.gov for his bravery in the face of the new administration. I’m especially grateful for him speaking out about Parkinson’s disease, which his father died of. www.booker.senate.gov/contact/writ...

02.04.2025 15:08 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Sen. Cory Booker gets emotional talking about his late father's experience with Parkinson's
YouTube video by NBC News Sen. Cory Booker gets emotional talking about his late father's experience with Parkinson's

Senator Booker talking about #parkinsons disease during his marathon 25 hour speech yesterday. His dad had #pd Thank you Senator. www.youtube.com/watch?v=BPZj...

02.04.2025 11:47 β€” πŸ‘ 10    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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What it feels like: Paying it forward with Parkinson’s disease

Here's an article I was interviewed for: 'Paying it forward with Parkinson's Disease'.
www.healthing.ca/parkinsons-d...

01.04.2025 20:33 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

@parkinsoncanada.bsky.social added you to the pack!

01.04.2025 15:42 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Life with Parkinson’s: A cupcake, a pillow, and a table β€” WPC Blog by Rebecca Miller, PhD

Today is the first day of April, aka #Parkinsonsdisease awareness month. Ever wondered what it's like to live with #parkinsons? Here's my take, although the experience is constantly changing #yopd #chronicillness
www.worldpdcongress.org/home/2025/1/...

01.04.2025 14:15 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The hidden medication putting Parkinson's patients at risk People with Parkinson's disease should list Haldol as an allergy in their medical records to avoid severe complications from this contraindicated medication.

On this first day of #Parkinsonsdisease awareness month, posting an article about an important risk for people with #PD to be aware of - contraindicated medications, and one hack to try and avoid them #yopd #parkinsons
kevinmd.com/2024/10/the-...

01.04.2025 14:12 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Down with PD awareness! Up up with a cure! I almost thought of that as an April fool's joke (that the cure was here) but seemed excessively cruel...At least April is also Poetry Month here in the US.

01.04.2025 14:10 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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It's not brain surgery: People with Parkinson's need better care in the hospital My brain surgery was a success; I am grateful to be apple-picking with my daughter this year. And yet, I think of others with PD in the hospital and know we must do better.

It's #Parkinsonsdisease awareness month, no foolin'. Here's an important article talking about #Pd care in the #hospital. Sadly still relevant. #yopd @pfresearchteam.bsky.social kevinmd.com/2022/10/its-...

01.04.2025 14:07 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Not your Grandfather’s Parkinson’s Disease by Rebecca Miller - VISIBLE Magazine The discovery of a biomarker that is 90% accurate in the diagnosis of Parkinson’s Disease makes this a transformative Parkinson’s Awareness month. Awareness months for diseases are a chance for the ge...

Happy Unhappy Parkinson's awareness month. One month lasts 12 for me, for the last 12 years since my diagnosis at age 39. April is the cruelest month. visiblemagazine.com/not-your-gra...

01.04.2025 14:04 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Team Snail by team-snail Fast snail with goggles

Team snail merch - mugs stickers and magnets available Join the slow lifestyle and (bonus) support research to cure #parkinsons Original logo designed by Mala Iqbal www.teepublic.com/t-shirt/2905...

19.11.2024 09:55 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
2025 Parkinson's Unity Walk {{MetaTags.description}}

Join Team Snail in NYC on April 26th at the Unity Walk to raise money for Parkinson’s Disease! Join my team and contribute if you can here: give.michaeljfox.org/team/630596 and get snail swag here: www.teepublic.com/t-shirt/2905... - a portion of the sales go to Parkinson’s Research!

16.01.2025 15:32 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

<<checking signal to see if I was added to any group chats>>

27.03.2025 12:04 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Parkinson's disease: Still waiting for a cure

This is a great article by Kevin Kwok pmc.ncbi.nlm.nih.gov/articles/PMC...

24.03.2025 15:16 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Added!

15.03.2025 21:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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