Alice, our oracle, was a cheerleader, mentor, & friend. Selfishly, I'm sad that she won't get to read the book that she encouraged me to write. I hope that my work does her justice & that us disabled artists will let her words push us forward.
Rest easy, Alice.
At Ucross & reflecting on the fact that I would not be here if not for Alice Wong. I found my way back to writing through a group for young adult cancer survivors. A piece that I started in that group turned into an essay that Alice published in Disability Visibility.
Here is an obituary for Alice Wong from The Sick Times, a publication aligned with disability rights and disability activism, if you are looking for an alternative to reading the nyt one: thesicktimes.org/2025/11/15/a...
I never met Alice Wong in person, but like so many great writers I felt like I knew her - and unlike many, when I emailed she emailed right back. ❤️
Peds neurologist @dianacejasmd.bsky.social has a beautiful essay in Wong's Disability Visibility collection - I recommend it to physicians. #neurosky
Honoring Alice Wong's life and legacy with gratitude, in solidarity and sorrow, this morning. I was a fan; thinking of all who loved and knew her personally.
Alice's words speak to us still. As a chronically ill person, I will keep listening. What a beautiful, bold, *brilliant* life well lived.
If you're just stumbling across everyone's posts about Alice Wong ( @sfdirewolf.bsky.social ) today, she was an active writer and editor, in addition to her work as a disability visibility advocate with disabilityvisibilityproject.com
Alice Wong was one of the most effective people challenging the Whiteness of disability communities and its many flaws, but who believed fiercely in us as a community, in disabled people as oracles.
Alice brought so much to so many of us, it’s hard to measure the kind of gratitude I have for that.
One way I have found to mourn someone is to set up a monthly sustaining donation to a mutual aid effort they cared about. If you can join me in honoring Alice Wong, @sfdirewolf.bsky.social with a sustaining donation today, please do. Thank you Alice, and I will not let the bastards grind me down.
I’m heartsick to hear that the incomparable Alice Wong has passed. Her loss will be felt keenly, by many, and for a long time. She is a force, a generous leader and storyteller, and an oracle for disabled futures. Much love to Alice and to all our crip kin and comrades. ❤️🩹
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
What a privilege it is to be a younger disabled person in a community shaped by Alice Wong. Rest in peace, Alice.
Our beloved Alice Wong has joined the ancestors. It was one of the great honors of my life to call Alice my friend, co-author & co-conspirator. She was a true genius, a force of nature the likes of which the world has never seen before. I love you, Alice, and am equal parts grateful and devastated
AMWA Announces the 2025 INSPIRE Awardees!
This Women in Medicine Month, AMWA proudly recognizes 47 extraordinary women physicians whose vision, integrity, service, and leadership continue to shape the culture of medicine.
vist.ly/48ekh
#AMWA #WomenInMedicine #INSPIREAward
Look at all these amazing neurologist women!
-researcher Erika Augustine
-writer & disability advocate @dianacejasmd.bsky.social
-digital educator Jacki Martindale
-epileptologist & advocate Sucheta Joshi
-vascular neurologist & DEI advocate Alexis Simpkins
-& me!
www.amwa-doc.org/news/announc...
Honored to share that I am a American Medical Women’s Association (AMWA) Inspire Award Recipient!
Congratulations to this incredible group of physicians!
www.amwa-doc.org/news/announc...
Incredibly excited to share that I am a Fall 2025 Ucross Fellow!
Thanks to @ucrossfoundation.bsky.social for providing me with the time and space to work on my art. See you soon!
AAP’s latest immunization schedule is rooted in pediatric science and clinical care, and includes recommendations that will help children build the strongest immune defense against respiratory illnesses, like the flu, COVID-19 and RSV. Learn more by visiting our website.
www.aap.org
The “problem” with vaccines? They so effective at preventing deaths that they create generations of people that question whether disease was a problem in the first place because they have never experienced the horrors of a world without vaccines.
Disabled people are 11 times more likely to die during labor/in the postpartum period than non-disabled people. Better education and smashing ableism is how we get out of this horrible stat.
For the past year, I’ve been looking into the topic of disability and pregnancy for @motherjones.com 🧵
When I see people online, even in jest, suggest that people living in Republican-controlled states should be abandoned because of their politicians, I feel a deep heartache. New York CREATED Donald Trump and none of y’all are ever talk about it the way you disparage Alabama or Mississippi.
“A respected network of hospitals and cancer centers is halting enrollment in clinical trials for children with brain cancer after the federal government said it would no longer provide funding to the group”
Mental health conditions, like suicides & overdoses, are the leading underlying causes of maternal deaths in the US.
Antidepressants save women's lives—& they're safe.
So why is RFKJr's FDA hell-bent on undermining their use among pregnant & postpartum moms?
www.motherjones.com/politics/202...
An absolute must read from @drbhooma.bsky.social @dianacejasmd.bsky.social
www.neurology.org/doi/10.1212/...
Me and my scar 1 day out of the hospital, 1 week after my stroke, 1 month after my cancer diagnosis
Me and my scar 13 years and 1 day out of the hospital, 13 years and 1 week after my stroke, 13 years and 1 month after my cancer diagnosis
I am still here.
Children depend on their adults and the adults who have power over their communities to keep them safe. I hate when the adults don’t do that.
I need y’all to see the disconnect between your very real concern about gerrymandering and all the forms of voter suppression and your ire against southern and red states and your belief that all those people get what they deserve.
You don’t actually care about the first if you believe the second.
thirteen years after cancer, thirteen years after a stroke, I am still here
It's more important than ever for neurologists & all in healthcare to advocate for equitable care for disabled people
So proud to be an author on this position statement & proud to see @aanmember.bsky.social standing up for disability equity, access, & inclusion
www.neurology.org/doi/10.1212/...
This NY Times podcast discusses 1,700 NIH grants that were cancelled mid-stream. They largely fell into two categories: (a) studies of underrepresented populations (e.g., black women, gay men); and (b) studies by researchers from underrepresented groups.
www.nytimes.com/2025/06/26/p...
Duke appears to have lost NIH grants because they used the prefix "trans" in reference to disease transmission, transgenic genetic material, translational studies, or signal transduction www.dukechronicle.com/article/2025...
