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Julie Gould

@grumpyoldgould.bsky.social

Corrie fan, cat lover, Atheist, more radical with age, often grumpy particularly about Tory corruption. #MS #RLS. No DMs.

580 Followers  |  516 Following  |  323 Posts  |  Joined: 14.09.2023  |  2.3355

Latest posts by grumpyoldgould.bsky.social on Bluesky

Nonsense. It's old,outdated infrastructure that has caused this. The usual takeover of a national asset by investors & no investments/updates. #Embarrassing

21.03.2025 17:59 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

You might have to consider a private iv iron infusion at #TheIronClinic. Costs around ยฃ800. You send full iron panel blood tests & they'll take it from there. Expensive though!

12.03.2025 18:28 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

OMG. That is negligent. Cold turkey from #Pramipexole is dangerous. Experts recommend 6 months & opioids to help! Iron infusions are not painful. They take 15 minutes. Join #RLS-UK & have a look at their help forum.

12.03.2025 18:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

You should have had an iron infusion! The UK is so far behind best treatment & practice on #RLS. But at least #Dopamineagonists have now been relegated to last resort by new #NICE cks guidance.

12.03.2025 09:29 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Serum ferritin should ideally be above 200ลณg/L for RLS patients to push iron through the blood/brain barrier. See RLS-UK website. NICE cks guidance changed overnight- without any press release/announcement recently.

12.03.2025 09:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
Finland ends homelessness and provides shelter for all in need - scoop.me In Finland, the number of homeless people has fallen sharply. Why? The country applies the "Housing First" concept agains homelessness.

thebetter.news/housing-firs...

08.03.2025 13:22 โ€” ๐Ÿ‘ 102    ๐Ÿ” 27    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

That is fantastic. Fingers crossed it continues.

23.02.2025 14:26 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Yes. It's the same one that has been linked to RLS. I just hope a Neurology dept somewhere decides to do trials. I'm so glad it's helping you. My #RLS is completely controlled by Buprenorphine. But other people can't get hold of it or have really bad side effects. So another drug option is great.

23.02.2025 14:25 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

'Several whistleblowers had come forward to voice their concerns, but these were ignored'.
Sadly, that sums up the culture in most NHS trusts. There needs to be a truly independent, impartial review body to investigate patient & staff concerns.

23.02.2025 12:16 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Weird coincidence. I am a trustee of RLS-UK & get updates of all research studies. Emgality just came up in my alerts. It has been used for patients with migraine AND RLS. And it reduced #RLS symptoms significantly. Now to find UK #Neurologists interested in doing proper trials!

23.02.2025 12:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

Our car front number plate is cracked & MOT advisory issued. I just ordered & bought a replacement from #Ebay with zero proof of ownership! Very worrying. No wonder criminals find it so easy to 'clone' cars to avoid #Ulez or parking tickets.

20.02.2025 15:09 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Bloomin eck Ursula, Cluster headaches are absolutely brutal. My FIL had them & I know how devastating they are. I'm so glad the meds are helping.

16.02.2025 16:48 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

This is the first UK banknote I've received that has King Charles on it. I might keep it as a souvenir. I still haven't seen any King Charles lll coins yet.

11.02.2025 19:53 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
Petition: Nationalise the UK water industry I would like to see the government make plans to gradually nationalise the UK water industry.

Petition: Nationalise the UK water industry! petition.parliament.uk/petitions/70...

05.02.2025 16:19 โ€” ๐Ÿ‘ 17    ๐Ÿ” 14    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Judge slams Ofwat and government for not attending Thames Water hearing Court will decide whether to approve emergency ยฃ3bn loan for UKโ€™s biggest water utility

Judge slams Ofwat and govt for not attending Thames Water hearing.

No one representing people/customers as lenders carve the company.

Thames has ยฃ19bn debt, wants to borrow another ยฃ3bn, only ยฃ1bn will be useable, customer bills will rocket, won't resolve the crisis.

Nationalise.
archive.ph/NVzcP

08.02.2025 09:10 โ€” ๐Ÿ‘ 697    ๐Ÿ” 327    ๐Ÿ’ฌ 30    ๐Ÿ“Œ 19
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The benefits system is broken โ€“ and disabled people pay the price for the DWP's 'poor service' Sense provided evidence for a report which said the DWP was providing 'unacceptably poor service' to disability benefits claimants

The benefits system is broken โ€“ and disabled people pay the price for the DWP's 'poor service' www.bigissue.com/opinion/dwp-...

01.02.2025 13:12 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Fingers crossed you get a good neuro. ๐Ÿ‘

01.02.2025 13:11 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Only stopped by to tell you to get a new neurologist. In the UK, they know MS causes excruciating pain - Trigeminal/occipital neuralgia, MS 'hug'. Medical cannabis is prescribed for it. Hope the pain settles.

01.02.2025 12:25 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

It was yummy. We have already eaten a piece each.

20.01.2025 23:40 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Just made a #Parkin cake using my Mum's old handwritten recipe. I had to convert ounces to grams & guessing the weight of black treacle/getting it out of tin was fun! The gingery smell is yummy.
#Baking

20.01.2025 20:00 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

My Law professor gave me #HumanaeVitae to read in 1978. I'd been brainwashed from birth & sent to catholic religious schools from 5. It was truly eye-opening. I quickly realised I'd been lied to my whole life. Atheism was the logical conclusion.

12.01.2025 18:13 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

My search continues. I could obviously get them reupholstered but that is extortionately expensive & environmentally bad!

12.01.2025 18:08 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

#GavinGiovannoni has always said #Oestrogen is neuro protective in MS patients.

12.01.2025 18:06 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I've spent over a year trying to find a new sofa. I found the perfect design- but they only make it in pale grey, dark grey or navy velvet. All hand made to order. I've asked the company if they can make it in Teal velvet. From the same velvet supply company they use. Computer says No.
Sigh...

12.01.2025 18:03 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Preview
World Central Kitchen | Meal Distribution Sites: California Fires In response to the Palisades Fires WCK is distributing free hot meals to the public at the following locations in southern California. For more information please check our social pages.


World Central Kitchen is now set up in California for those affected by the fires occurring now.

If you feel you can contribute, click the three bars on the top of the page to do so.

They do great work!!!!

wck.org/news/meal-lo...

12.01.2025 16:52 โ€” ๐Ÿ‘ 298    ๐Ÿ” 145    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 6

Yes. The days of an ambulance arriving within 20 minutes are long gone

08.01.2025 14:15 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Not at all! They are indeed lovely. Keep them. Especially good for this cold weather & the ice.

08.01.2025 13:51 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Video thumbnail

Nashtifan, a village in Iran, is renowned for its 1,000-year-old windmills, among the oldest in the world, used for centuries to harness wind power and grind grain.

24.12.2024 23:53 โ€” ๐Ÿ‘ 269    ๐Ÿ” 75    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 4

My brother did complain. But it seems to be a blanket new rule that people should NOT be lifted off the floor. But with ambulances taking several hours to arrive, that's very worrying.

08.01.2025 13:45 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

๐Ÿ‘

07.01.2025 23:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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