Appreciate former Sugreon General Jerome Adams pushing back on anti-mask sentiment on Twitter/X
👭 On #InternationalWomensDay we honour the women with Long Covid and ME and allies who keep pushing for truth, research, and care.
♀️Listen to women. Fund the science.
Organising a protest this year was regrettably just not feasible due to a lack of time and resources. However, we thought it would be nice to have the first meetup of 2026 (as long as the weather doesn’t make us cancel last minute 🥲) and be around community on a day that’s difficult for many of us.
#LongCovid folks, if anyone has an extra 1-3 metrix tests you’d be willing to sell me + send in the mail this weekend, you’d be doing me a big favor
I forgot about my account for like a year hahaha, but trying to check in now to keep up with research updates. :)
I hate that doctors know we rely on them so much. As a result, some of them take advantage of that to subject us to their bullshit ramblings.
“Traveling is bad, it’s better to stay in your village.” So there you have it, I’m just an anxious girl who did this to myself by daring to travel beyond the “village” of Melbourne.
I tried telling him about my suspicion that I could potentially have leaky gut, judging by my symptoms, their persistence and that in the year prior to them starting, I had been put on 4 different antibiotics when I was living in China for a UTI, and had several bouts of bad food poisoning.
He then began rambling about how much he hates Google, said I must avoid it and explained that cancer is a disease for “older people, fifty plus”. I mean, so what that colon cancer is increasing in millenials right? We’re all just bloody paranoid!
He again insisted that it was important for him to see my face for diagnostic purposes; he had to assess how serious my complaints were. Apparently, he could tell just by looking at me that I can’t be seriously unwell. 🙄
After a brief discussion of my symptoms, he asked where I was from, “Romania?”, he guessed. I told him I grew up in Australia, but have Greek parents. He then asked me to remove my mask so he could see my face, and I obviously refused. “Why not?” he pushed. I told him I’d rather protect my health.
The coughing doctor, naturally, did not. He did sit behind a comical-looking glass panel, though: likely a useless remnant from the clumsy earlier days of this pandemic.
It reminded me why I’ve been avoiding the medical system as much as I can, even though I have ME, POTS, Endometriosis, autoimmune thyroid issues and reactive hypoglycemia. I obviously had my aura mask on during the appointment to protect myself.
I’ve had genuinely concerning gastrointestinal symptoms, persistently, since 2019, and it’s been such a struggle to be taken seriously enough by any doctor in Berlin to get a referral for a colonoscopy and endoscopy. I finally had an assessment with a gastroenterologist today.
It’s cool how we just live in a death cult world and we’re supposed to act like it’s okay. Like yeah man apparently it’s cool to burn children alive 24/7 so that billionaire parasites out of touch with reality can get more money. Why are you being weird about it?
Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏
Hope for people with #MECFS and #LongCOVID starts with research.
When you become a monthly donor — a Hope Builder — you provide steady support that helps sustain critical research programs and move discoveries forward.
👉 Become a Hope Builder today: https://ow.ly/V98M50YpHsm
Your periodic reminder that in times of geopolitical instability - domestic, international, or both - an important element of building and maintaining both individual and societal resilience is to stay as healthy as possible. Protect your body and your brain: wear a respirator.
Omg you are the cutest BBC rep ever 😭
SARS2 and many other airborne pathogens worth avoiding because your health is worth it 🥰
@sophie-cd.bsky.social A mask a day keeps the infections away
FOR OVER THREE YEARS NOW!
I used to get a viral infection 3-4x per year before 2020 😅
@sophie-cd.bsky.social I think part of the reason it’s difficult to convince people in “the west” to mask is that we’ve been conditioned to glamourise self-destructive behaviour and to find proactive safeguarding of health “uncool”, unless it’s related to adhering to conventional beauty standards.
We are giving away 5 AirSpots!
To enter, share a video of you using map.airspothealth.com!
How to win:
- The first 2 to post a video using the AirSpot Map and tag @airspothealth.bsky.social
- The 3 videos that tag @airspothealth.bsky.social and generate the most engagement by March 23rd
I kind of forgot I had this account for like a year… oops. 🫠 Where are my airborne hazard aware people? 🥹
Feeling the same 🥲
Is anyone else kinda struggling/over trying to keep up with so many social media platforms? 😵💫
we might be starting to talk more about how long covid is decimating people’s health, ability to work and exercise etc. but there’s almost no discussion in mainstream media about how it’s affecting relationships.
tldr: it’s ripping them apart
www.abc.net.au/news/2023-12...
When oh when are we getting a treatment for PEM & a preventative for SARS2? I’m sorry, I cannot spend the rest of my life like this. 🥲
Did you develop Long Covid after dropping precautions bc you believed the Great Barrington Declaration that young people will be fine if they get Covid-19? Please be in touch at jmetraux@motherjones.com for a potential @motherjones.com article and reposts are appreciated.
Wir sind zu krank für den Küchentisch youtu.be/EnCGbgj75Eg?... #LongCovid #MECFS