The working group βοΈ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all π 92 already π₯ keep them coming βοΈ
Deadline 31st October 2025. π
Donβt put it off do it now π
forms.cloud.microsoft/r/peWjupJjr5o
04.10.2025 12:41 β π 0 π 0 π¬ 0 π 0
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5
03.10.2025 06:16 β π 1 π 0 π¬ 0 π 0
World IBD Day
On 19 May, we come together for World IBD Day. It is an opportunity to shine a light on Crohnβs and Colitis and the impact these lifelong conditions have on peopleβs lives.
#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage
19.05.2025 05:31 β π 4 π 2 π¬ 1 π 0
New data shows that A&E waits for those in a mental health crisis have risen substantially.
Additionally, the mental health workforce has not grown enough to keep up with demand for services.
Hear from members at #RCN25 on how this impacts them and those they care for.
#MentalHealthAwarenessWeek
13.05.2025 13:48 β π 9 π 7 π¬ 1 π 0
#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk
12.05.2025 17:30 β π 1 π 0 π¬ 0 π 0
a close up of a white dog wearing a flower crown .
ALT: a close up of a white dog wearing a flower crown .
Well Iβve kept it to myself for a while but Iβm now very happy to share that Iβm taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so itβs fantastic to be able to support other #IBDnurses
22.04.2025 17:34 β π 8 π 0 π¬ 1 π 0
#HappyNewYear2025 the years fly by
31.12.2024 19:48 β π 1 π 0 π¬ 0 π 0
2024 IBD UK Report: The State of IBD Care in the UK | IBD UK
This report speaks for itself highlights the challenges faced by patients itβs clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes
ibduk.org/reports/2024...
12.12.2024 19:48 β π 1 π 0 π¬ 0 π 0
The path to a correct diagnosis | What's up with my gut?
Worried about symptoms? Find support through diagnostic pathways for lower gastrointestinal (GI) symptoms. For adults, parents, and healthcare professionals.
listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of whatβs up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK
www.whatsupwithmygut.org.uk
12.12.2024 18:34 β π 4 π 0 π¬ 1 π 0
#IBD people can you help
11.12.2024 20:43 β π 6 π 3 π¬ 0 π 0
Are you age 16-18yrs living with Crohnβs Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
11.12.2024 14:41 β π 1 π 2 π¬ 0 π 2
Can you help !!!
11.12.2024 20:42 β π 2 π 0 π¬ 0 π 0
Itβs easy to forget the challenges #IBD patientβs face when it comes to the routine things in life we all have aspiration to work live provide for our families itβs not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
11.12.2024 06:52 β π 7 π 1 π¬ 2 π 0
Thank you Helen xx
06.12.2024 21:36 β π 0 π 0 π¬ 0 π 0
Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!
06.12.2024 19:32 β π 1 π 0 π¬ 1 π 0
I hope that you recover soon !
06.12.2024 19:29 β π 1 π 0 π¬ 1 π 0
Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !
06.12.2024 19:22 β π 1 π 0 π¬ 2 π 0
So important to share the truth that some people live with!!! #IBD #Crohnβsdisease
06.12.2024 19:12 β π 1 π 0 π¬ 1 π 0
So sorry to hear your journey has been so difficult
06.12.2024 19:06 β π 1 π 0 π¬ 2 π 0
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.
Waiting to hear what's next.
#CrohnsColitis
06.12.2024 18:58 β π 1 π 1 π¬ 1 π 0
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.
Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
06.12.2024 18:58 β π 1 π 1 π¬ 2 π 0
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes
Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.
Left England, relocated to Scotland. Was assigned my first #IBDNurse
06.12.2024 18:58 β π 1 π 1 π¬ 1 π 0
This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note Iβm delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.
06.12.2024 18:54 β π 6 π 0 π¬ 3 π 0
Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work β¦ The elf well not sure what heβs up to !!
04.12.2024 22:06 β π 2 π 0 π¬ 0 π 0
Hello FNF
04.12.2024 19:11 β π 1 π 0 π¬ 0 π 0
Next week sees the start of #CrohnsandColitisawarenessweek
Itβs a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m Iβll share their message in this nice positive space #TellyourIBDTruth Iβm listening π
27.11.2024 20:04 β π 13 π 2 π¬ 3 π 0
Girl MomπΈ| IBD APN @uchicagoibd | Ostomy Specialist | APP Program Director @UchicagoIBD| DNP/MPH student @JHUNursing @JohnsHopkinsSPH |Distinguished APP2024|π©Ί Posts β med advice
Patient/Caregiver-led non-profit 501c3 focused on #MECFS and #LongCovid β’ https://Renegade-Research.org π Runs project @remissionbiome.bsky.social β’ Donate now βΆοΈ https://tinyurl.com/44azdsxm
We are the Dorset branch of the Royal College of Nursing. Follow us for updates. Find out more about us https://www.rcn.org.uk/southwest/Get-Involved/Branches/Dorset
Advanced Critical Care Practitioner. Registered nurse. Ultrasound nut.
Editors: Josef Trapani & Peter Nydahl
Official Journal of the British Association of Critical Care Nurses
https://onlinelibrary.wiley.com/journal/14785153
Research on women in nursing and workplace gender discrimination |Lecturer WSUI Registered Nurse I Feminist I All views my own
Just a nobody trying to get back some semblance of health despite multiple chronic illnesses.
π· Crohn's Colitis
π· Type II Diabetes
π· Osteoarthritis
π· Depression / Anxiety
Deputy Head of Nursing at Bedfordshire FT NHS Hospitals. Passionate about wellbeing, excellent patient and carer experience. Care experienced adult.
PhD researcher. Interoception (mostly gastrointestinal), body image/representation, eating disorders, computational approaches (she/her). https://sites.google.com/york.ac.uk/lucy-stafford/about-me
ANP West Essex. NHS nurse for 44 years.
All views are my own. ππΉ
Professor and Dean of The Rockefeller University. Cell biologist in NYC. Believer in the power of science education.
Packed up and moved- follow me at naptimernv2.bsky.social for more dreamy waterfalls, cityscapes, music, and helpful community health tips. π
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