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Pearl Avery

@pearlavery.bsky.social

Grandmother mother wife and PhD candidate @BU #IBD #GASTRO #ANP #Medsmanagement #DigitalHealth views my own #NHSCEP @CrohnsColitisuk Nurse @BJNursing GI/IBDNurse 2018 #NHS 🌈

218 Followers  |  339 Following  |  54 Posts  |  Joined: 25.11.2024  |  1.759

Latest posts by pearlavery.bsky.social on Bluesky

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The working group ☎️ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all πŸ™ 92 already πŸ’₯ keep them coming βœ”οΈ
Deadline 31st October 2025. πŸ“†
Don’t put it off do it now πŸ‘‡
forms.cloud.microsoft/r/peWjupJjr5o

04.10.2025 12:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!!
forms.cloud.microsoft/r/peWjupJjr5

03.10.2025 06:16 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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World IBD Day On 19 May, we come together for World IBD Day. It is an opportunity to shine a light on Crohn’s and Colitis and the impact these lifelong conditions have on people’s lives.

#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage

19.05.2025 05:31 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Mental health wait times in A&E a β€˜scandal in plain sight’, says RCN | News | Royal College of Nursing We're calling for significant investment in mental health nursing, as an RCN Freedom of Information request shows at least 1.3 million people have presented to A&E in a mental health crisis in the las...

Read more ⬇️ #RCN25

13.05.2025 13:48 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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New data shows that A&E waits for those in a mental health crisis have risen substantially.

Additionally, the mental health workforce has not grown enough to keep up with demand for services.

Hear from members at #RCN25 on how this impacts them and those they care for.

#MentalHealthAwarenessWeek

13.05.2025 13:48 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 1    πŸ“Œ 0

#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk

12.05.2025 17:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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a close up of a white dog wearing a flower crown . ALT: a close up of a white dog wearing a flower crown .

Well I’ve kept it to myself for a while but I’m now very happy to share that I’m taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so it’s fantastic to be able to support other #IBDnurses

22.04.2025 17:34 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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@D_ECCO_IBD Education #IBD #Nurses at #ECCO following excellent talks from @Y_ECCO_IBD showing the value of collaboration and #MDT working

19.02.2025 15:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#ECCO25 good sessions at #NECCO school this morning some good reminders from us all. increasing research into the importance of vitamin D replacement and a reminder of the Importance of managing fatigue note of value of nutritional optimisation and fatigue improvement

19.02.2025 10:01 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

#HappyNewYear2025 the years fly by

31.12.2024 19:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
2024 IBD UK Report: The State of IBD Care in the UK | IBD UK

This report speaks for itself highlights the challenges faced by patients it’s clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes
ibduk.org/reports/2024...

12.12.2024 19:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The path to a correct diagnosis | What's up with my gut? Worried about symptoms? Find support through diagnostic pathways for lower gastrointestinal (GI) symptoms. For adults, parents, and healthcare professionals.

listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of what’s up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK

www.whatsupwithmygut.org.uk

12.12.2024 18:34 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

#IBD people can you help

11.12.2024 20:43 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk

11.12.2024 14:41 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 2

Can you help !!!

11.12.2024 20:42 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions
#Society makes it hard to function @bottomlineibd.bsky.social how can we help change this

11.12.2024 06:52 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

Thank you Helen xx

06.12.2024 21:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Your experience is why the campaign to improve and speed up diagnosis matters so much. !!!

06.12.2024 19:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I hope that you recover soon !

06.12.2024 19:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Such a horrible feeling not being able to do the things we expect of ourselves and that society expects of us !

06.12.2024 19:22 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

So important to share the truth that some people live with!!! #IBD #Crohn’sdisease

06.12.2024 19:12 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

So sorry to hear your journey has been so difficult

06.12.2024 19:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one.

Waiting to hear what's next.

#CrohnsColitis

06.12.2024 18:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible.

Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis

06.12.2024 18:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 2    πŸ“Œ 0

Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes

Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares.

Left England, relocated to Scotland. Was assigned my first #IBDNurse

06.12.2024 18:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note I’m delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.

06.12.2024 18:54 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 3    πŸ“Œ 0
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Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work … The elf well not sure what he’s up to !!

04.12.2024 22:06 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hello FNF

04.12.2024 19:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Meet Sheila, the very first IBD Nurse who paved the way for better Crohn's and Colitis care Sheila Phillips was the very first IBD Nurse specialist. She set up her clinic in Weymouth in 1993 and changed the face of IBD care forever. Sheila tells us her story.

crohnsandcolitis.org.uk/news-stories...

02.12.2024 21:50 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Next week sees the start of #CrohnsandColitisawarenessweek

It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening πŸ‘‚

27.11.2024 20:04 β€” πŸ‘ 13    πŸ” 2    πŸ’¬ 3    πŸ“Œ 0

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