The North American AED Pregnancy Registry's Avatar

The North American AED Pregnancy Registry

@aedregistry.bsky.social

Empowering Pregnant Women with Information About Anticonvulsants through Research

189 Followers  |  1,749 Following  |  37 Posts  |  Joined: 19.11.2025  |  1.5836

Latest posts by aedregistry.bsky.social on Bluesky

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Our research relies on referrals from health care providers in the US and Canada.

This teamwork helps to find answers about the safest AEDs during pregnancy.

Thank you for all you do for us!

#OBGYN #Pharmacists
#Nursepractioners #Psychiatrists #Psychologists

19.01.2026 18:01 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Wishing you a cozy and safe New Year’s Eve!

If you are pregnant consider joining our registry. No change to your routine just 3 phone interviews!

https://ow.ly/RTKC50XGY97

#AEDRegistry #FindingAnswers #Epilepsy #Research #Volunteer

31.12.2025 20:55 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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The women volunteering to enroll in our Registry are turning their experience into real answers about the safety of anticonvulsants during pregnancy.


#AEDs #Womenhelpingwomen #Epilepsy #Research #Volunteer @followers


https://ow.ly/Y4eJ50XGXJ7

30.12.2025 20:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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If you are pregnant, please consider joining our voluntary pregnancy registry. A few phone calls is all it takes. No changes to your routines. Bring a friend!

https://ow.ly/Eqoe50XGXAi

#AEDRegistry
#Pregnancy
#anticonvulsants
#epilepsyawareness
#managingchronicpain
#BabyBlogs

28.12.2025 16:45 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Happy first night of Kwanzaa celebrating Umoja (unity) from the NA AED Pregnancy Registry!

Our participants are united in their commitment to the health of mothers and babies.

Join our registry...Just 3 phone interviews

https://ow.ly/Uh7Y50XGXsB

#kwanzaa #Pregnancy #Neurologists #OBGYN

26.12.2025 20:40 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Wishes of peace, hope and joy from the NA AED Pregnancy Registry!

25.12.2025 16:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Wishing you a peaceful and hopeful Christmas Eve!

At the NA AED Pregnancy Registry we anxiously await births every single day.

Our participants turn that waiting into data to help protect future mothers and babies.

Join Us!
https://ow.ly/CZq750XGWSX

#AEDRegistry #Pregnancy #BumpDay

24.12.2025 19:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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β€œThe registry process was extremely easy and everyone I talked to was extremely kind and helpful. I will definitely do it again for any future pregnancies I have and will also ask any pregnant friends to also join the registry. β€œ https://redcap.partners.org/redcap/surveys/?s=3WA9ECEMWX
#Pregnancy

23.12.2025 15:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sending wishes for peace and hope on this first night of Hanukkah!

22.12.2025 16:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sending warmth & hope on this longest night. Happy Winter Solstice from the NA AED Pregnancy Registry!

If you are pregnant on this solstice please consider joining our voluntary pregnancy registry. A few phone calls is all it takes.

https://ow.ly/WwLT50XGUy9

#AEDRegistry
#Pregnancy
#solstice

21.12.2025 20:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join our research during your pregnancy. All research done over the phone with no changes to your routine. Help make pregnancy healthier for mothers and babies.


https://ow.ly/aLwW50XGTZg


#OBGYN
#CNM
#AES
#AED
#BabyBlogs

18.12.2025 15:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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So grateful for the healthcare providers that support our research!

The more data we have the better the results.

The research involves telephone interviews and no changes to your routine.

https://ow.ly/Zqcx50XGTJ1

#research #Neurologists
#OBGYN #pregnancy

17.12.2025 00:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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So grateful for the healthcare providers that support our research!

Every enrollment improves the quality of our data and helps ensure the healthiest pregnancies.

https://ow.ly/68kx50XxHki

#research #Neurologists
#OBGYN #pregnancystudy
#MotherAndBaby #HealthyPregnancy #ResearchMatters

16.12.2025 17:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Your health and the health of your baby are equally important during pregnancy. Read more about weighing the pros and cons of taking #AEDs while pregnant.

https://ow.ly/ignn50XGTC2

#AEDRegistry #OBGYN #epilepsyawareness #Neurologists
#pregnancy #BabyBlogs

@followers

15.12.2025 22:25 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sending wishes for peace and hope on this first night of Hanukkah! #Hanukkah #LightAndPeace

14.12.2025 20:30 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Sending wishes for peace and hope on this first night of Hanukkah!

14.12.2025 19:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#YearInReview

πŸŽ„βœ¨On day 5 of our 12 Days of Krembil, we want to highlight our #EpilepsyAwarenessMonth campaign we did with Epilepsy Canada to raise public awareness about the chronic brain disorder!

πŸ”—: linktr.ee/krembil

#NoResearchNoCure

12.12.2025 18:47 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Have questions about our voluntary AED Pregnancy Registry and why you should get involved?

We have answers!

https://ow.ly/XHf750XGTcV

#AEDRegistry #FindingAnswers #MySMFM #OBGYN #CNM #BabyBlogs #BumpDay

@followers

12.12.2025 15:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are currently looking for pregnant women to enroll in our observational study to learn about #antiepileptic drugs during #pregnancy.

3 phone interviews are all it takes; no changes to treatment required.

Visit our website https://ow.ly/TaxJ50X2qgn


#BabyBlogs
#OBGYN

10.12.2025 13:00 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our new director, Dr. Frances High, posing with Sabrina Chan, Dr. Esther Bui & Dr. Paula Voinescu at the poster session of #AES2025.

Sabrina's poster-

β€œLongitudinal Patterns of Obstetrical and Neurological Care for Canadian Women with Epilepsy (1997-2023): Insights from the NAAPR

#Neurosky

09.12.2025 16:13 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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We are headed to the 2025 AES Conference in Atlanta, GA December 5-9.

Stop by our booth (#1116) and say hello!

Learn more: https://ow.ly/nZnY50X2pFL

#AEDRegistry
#AES
#Neurologists
#Epilepsy
#pregnancystudy
#pregnantwithepilepsy
#neurologists

09.12.2025 13:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are headed to the 2025 AES Conference in Atlanta, GA December 5-9.

Stop by our booth (#1116) and say hello!

Learn more: www.aedpregnancyregistry.org

#AEDRegistry
#AES
#Neurologists
#Epilepsy
#pregnancystudy
#pregnantwithepilepsy
#neurologists

08.12.2025 17:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are at the 2025 AES Conference in Atlanta, GA December 5-9.

Stop by our booth (#1116) and say hello!

Learn more: https://ow.ly/VW3r50X2poz

#AEDRegistry
#AES
#Neurologists
#Epilepsy
#pregnancystudy
#pregnantwithepilepsy
#neurologists

07.12.2025 16:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Say hello to the new director of the NA AED Pregnancy Registry, Frances A. High, M.D., Ph.D.

Dr. High is an active clinician in general medical and reproductive genetics and is an Assistant Prof. of Pediatrics at Harvard Medical School.

#AES
#Neurologists
#Epilepsy
#pregnantwithepilepsy

07.12.2025 01:01 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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AES 2025! We are here. Come visit and see our most recent results! Booth 1116

#AES #neurosky

06.12.2025 16:57 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Stop by the NAAED Pregnancy Registry booth (#1116) at the AES Annual Meeting in Atlanta, GA December 5-9


Grab a copy of our latest results and help spread the word about us!


#Epilepsy #Neurologists
#AmericanEpilepsySociety
#AEDRegistry
#pregnantwithepilepsy
#neurologists

06.12.2025 13:05 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are headed to the 2025 AES Conference in Atlanta, GA December 5-9.

Stop by our booth (#1116) and say hello!

Learn more: https://ow.ly/Y39l50X2oEc

#AEDRegistry
#AES
#Neurologists
#Epilepsy
#pregnancystudy
#pregnantwithepilepsy
#neurologists

05.12.2025 15:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Not so fun fact: CGS is epileptic
Coming across someone having a seizure is a rare event, unlikely you'd see more than one in a lifetime
Most people wouldn't know what to do if they witnessed one so cheatsheetπŸ‘‡
Unless seizure goes on for 5mins don't call 999 until after patient wakes
#epilepsy

04.12.2025 11:18 β€” πŸ‘ 13    πŸ” 4    πŸ’¬ 2    πŸ“Œ 0
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Ready for Atlanta? Don’t wander the meeting without your best toolβ€”the AES 2025 mobile app. Maps, schedules, alerts, and all the details you need. Grab it now: aesnet.org/AES-annual-m...

03.12.2025 19:00 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
International Day of Persons with Disabilities -- silhouettes of people with disabilities hold hands above a purple background. One silhouette uses a wheel chair, while others express invisible disabilities.

International Day of Persons with Disabilities -- silhouettes of people with disabilities hold hands above a purple background. One silhouette uses a wheel chair, while others express invisible disabilities.

As part of the global disability movement, the #Epilepsy community we unite in our celebration of International Day of Persons with Disabilities. -- What simple change would make your life with disability easier? #EpilepsyAwareness #IDPD

03.12.2025 16:36 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

@aedregistry is following 18 prominent accounts