Ismália De Sousa, MSc RN

Opportunities such as these are essential to building partnerships and develop a research agenda that is informed by the strengths, needs, and insights of those most affected.

#CerebralVenousThrombosis #CVT #stroke

This week, the @vancouverstroke.bsky.social hosted a meaningful conversation on research priorities in Cerebral Venous Thrombosis (CVT), bringing together individuals with living/lived experience and researchers.

@dianawr.bsky.social
#CerebralVenousThrombosis #CVT #stroke

This is a forum in which researchers and clinicians are given the opportunity to talk to each other about questions they have on aspects of neurorehabilitation and may inspire more clinicians to get involved in research.
FREE REGISTRATION - ALL WELCOME onlinestore.ucl.ac.uk/conferences-...

Headline from The Guardian says NHS repeatedly failing in care of stroke patients, watchdog says

Yesterday, the Government announced a new 10 Year Health Plan for England, while a recent headline from The Guardian reinforces why we need it: bit.ly/3IbEGGw

🧵1/4

Great things happen when working with Clinical Nurse Specialists 😉

Congrats Calvin!! 👏🏽👏🏽

@jennycrow.bsky.social i keep forgetting to tag you in my responses 🤦🏽‍♀️

Congrats Michael! 👏🏽👏🏽

Exciting News!

🚨 Save the Date for the 2026 Canadian Stroke Congress

🗻 Banff, Alberta

📅 May 23-26, 2026

More details coming soon at www.CanadianStroke.ca

#CSC2026 #StrokeCongress26 #SavetheDate #StrokeRecovery #StrokeResearch

2/2 Mines depart very slightly from these, mostly in the way some questions are asked and/or answered.

As I look at your example, I would probably want to substitute the term "responsible individuals" with "researchers" and reword #4. Does your ethics committee give you some leeway to do this?

1/ The term 'legal rights' seems to be used in many consent forms. Ours don't have 'regulatory authorities' (who are they, by the way?). Our generic consent form for minimal risk studies can be accessed here researchethics.ubc.ca/clinical-res....

This was a question to @jennycrow.bsky.social 😉

Pregnancy Module 2025 Pregnancy and Neurological Illness A 7-Part Live Webinar Series Moderated by Dr. Mimma Anello, Dr. Ginette Moores and Dr. Janet Waters Register here. CME Credits: Attendance of the live sessions...

📣 Excited to announce the launch of the "Integrating Neurological Sex and Gender Issues in Global Health Training" (INSIGHT) network and the Pregnancy and Neurological Illness A 7-Part Live Webinar Series by the INSIGHT Network starting May 9th

www.womensneurology.education/e-learning/p...

The world’s first multisector advocacy movement dedicated to stroke,the Global Stroke Action Coalition, has issued an urgent call to action to address growing inequities in stroke. Without intervention; the burden of stroke is projected to rise by a further 50% by 2025. lnkd.in/e_zz3YGs

There is definitely a tension between procedural ethics and ethics-in-practice/situated ethics. I think those of us who conduct qualitative research or use community-based/participatory research approaches often have to be quite creative. Do you use lay information sheets?

The @worldstrokeorg.bsky.social Future Stroke Leaders Programme is a one of a kind program. I'm grateful to have met brilliant minds and passionate individuals from around the world, each committed to advance #stroke care, during our time in Perugia last week

📢 Webinar Alert 📢

🌟 Advancing Gender Perspectives in Neurorehabilitation
Presented by the Women in Neurorehabilitation SIG of WFNR 🌟 🧠
❕ REGISTER HERE: events.zoom.us/ev/AuvCQ6pqd...

@ubc-vnursing.bsky.social we have been waiting for you! 👏🏽

🚨 Call for Abstracts #OPSYRIS2025 ! 🚨
Conducting research into psychological aspects of #stroke? Submit your abstract & present at the OPSYRIS Conference @officialuom.bsky.social on 11th July! 🧠✨
🔗Submit abstracts: docs.google.com/forms/d/e/1F...
🔗Registration: www.eventbrite.co.uk/e/opsyris-20...

This looks like such a rich session!

Patient-Reported Nonmotor Outcomes After Stroke This systematic review and meta-analysis evaluates the prevalence, natural history, and factors associated with multidomain nonmotor outcome burden in patients with stroke.

It’s certainly the most comprehensive meta-analysis I’ve ever been involved with 🤓

TLDR: non-motor symptoms after stroke are common across domains and guess what? Not a great deal has changed in the last decade. A real wake up call to the field to address this huge unmet need

ja.ma/3EMdegV

We are pleased to let you know that the recording of Alastair's seminar is now available to watch on our website
www.ucl.ac.uk/centre-neuro...

Young Adults Rehabilitation experiences and Needs following Stroke (YARNS): A scoping review of the rehabilitation care experiences and outcomes of young adults post-stroke Background Stroke is one of the leading disabling conditions in the United Kingdom. While an increasing focus on the rehabilitation care for stroke survivors has been noted, practice guidelines, targe...

Our #ScopingReview paper is now published 🌟🥳

Young Adults Rehabilitation experiences and Needs following Stroke (YARNS): A scoping review of the rehabilitation care experiences and outcomes of young adults post-stroke

#OpenAccess 👉🏼 dx.plos.org/10.1371/jour...

#stroke #YoungAdult #rehabilitation

To see posts from everyone in the list, open the list and 'pin' it. This will automatically add it as a feed to your BlueSky account

🎁 As we wrap up 2024, let's review the most significant stroke research breakthroughs in each month, from practice changing updates to glimpses of the future.

After discovering The Precarious Painter and "chopperlysis," stroke care will never be the same 👇

This 👇🏽

text image from linked article

Thoughtful reflections on the how AI may undermine health equity goals. Appreciate the authors writing this piece.

gh.bmj.com/content/8/11...

Bluesky Starter Packs - Bluesky Directory Browse a list of Bluesky Starter Packs. Discover and connect with your community on Bluesky

There's at least one called 'patient engagement' on the BlueSky starter pack directory: blueskydirectory.com/starter-pack...

A screenshot taken during the first Zoom call of the World Stroke Organization Future Stroke Leaders Programme Cohort 3 showing the organizers and some of the participants

What a great start to the WSO #FutureStrokeLeaders Programme Cohort 3 last week.

Looking forward to our journey ahead and the many collaborations to continue to improve #stroke care.
A few are missing in the photo so check us out at:
www.world-stroke.org/world-stroke...

Thanks for sharing! Would love to hear more about your plans.