Hospice Community Carer Support Nurse / Clinical Nurse Specialist - St Elizabeth Hospice
Great to see @stelizabethhospice.bsky.social advertising for a new dedicated Carer Support Nurse role (building on our successful pilot supported by @arceastofengland.bsky.social) www.stelizabethhospice.org.uk/about-us/job...
22.10.2025 15:03 β π 0 π 0 π¬ 0 π 0
What is it like to experience exacerbations? How should clinicians talk to people about exacerbations? Read our article to find out... @wolfsonpallcare.bsky.social
18.09.2025 13:26 β π 2 π 2 π¬ 0 π 0
πLatest #research shows Norfolk Community Foundation's social supermarkets improves health and communities.
π·For every Β£1 invested, they generate Β£6.54 in social value by improving health, reducing stress, and strengthening community tiesβοΈ
πRead the findingsβ‘οΈ arc-eoe.nihr.ac.uk/news-blogs/n...
18.09.2025 13:49 β π 3 π 2 π¬ 0 π 0
Wow! Where was it?
18.09.2025 20:30 β π 0 π 0 π¬ 1 π 0
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
Interested in supporting young carers? See our new review paper... reviews the support needs of Young Carers and identifies adaptions needed to questions on the Carer Support Needs Assessment Tool to ensure covers young carers' support needs...
doi.org/10.1177/0269...
26.08.2025 08:01 β π 0 π 0 π¬ 0 π 0
Reframing resilience in community healthcare. Our latest piece in BJCN
magonlinelibrary.com/doi/abs/10.1...
03.08.2025 18:05 β π 4 π 4 π¬ 0 π 0
βΌοΈ Community nurse in CPFT? Please consider this amazing opportunity to be more research active and support evidence based practice
05.08.2025 17:04 β π 4 π 1 π¬ 0 π 0
Join us for our cross-ARC webinar on Timely Access to end of life meds. Three insightful research projects shared and Iβm chairing discussions
24.07.2025 18:56 β π 6 π 2 π¬ 0 π 0
Community
If you are interested in improving healthcare in prisons, work in a prison setting, or are involved in prison healthcare research then this East of England 25th Sept FREE event at UEA may be of interest: rcgp.my.site.com/s/lt-event?i...
@arceastofengland.bsky.social
24.07.2025 09:27 β π 0 π 0 π¬ 0 π 0
Exciting part-time Research Associate on the Marie Curie funded SNAP in Prisons study at University of East Anglia. Further details available at vacancies.uea.ac.uk/vacancies/16...
22.07.2025 15:56 β π 0 π 0 π¬ 0 π 0
Still time to join our webinar on Tuesday 8 July, 11-12 to hear leading experts discuss the health and caregiving experiences of parents of children with a life-limiting condition. #PeoLC #palliativecare Book your place: events.teams.microsoft.com/event/bbbd0f...
30.06.2025 08:01 β π 1 π 3 π¬ 0 π 0
NOTICE Survey
NOTICE Survey
Community nurses based in the UK? Please help us evidence how much of your work involves end of life care.
Take part in our 10-min max survey study here:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social
18.05.2025 18:04 β π 11 π 13 π¬ 0 π 0
Taking lower paid roles.
Take this survey powered by surveymonkey.com. Create your own surveys for free.
Are you registered nurse, NSW/HCA/NA/SNA who has had to accept a lower paid role/band in the last 5 years we are keen to know why. Lack of flexible working? No opportunity? Poor working conditions?
Any role, any setting, any employer, anywhere in the UK
www.surveymonkey.com/r/AFCRN
03.05.2025 07:46 β π 2 π 3 π¬ 0 π 0
Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred?
Please help with our short anonymous survey
& share widely with colleagues π
Take part here:
cambridge.eu.qualtrics.com/jfe/form/SV_...
@crystaloldman.bsky.social @theqicn.bsky.social
04.05.2025 12:28 β π 16 π 17 π¬ 1 π 0
Person-Centred Care, Progressive Disease Intervention
The Support Needs Approach for Patients (SNAP) is a health care intervention which seeks to enable person-centred care for patients with progressive conditions.
Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk
25.04.2025 09:28 β π 2 π 2 π¬ 0 π 0
Calling all UK registered #nurses & HCAs NSW NAs TNAs
have you had to seek or take a lower paid role (AFC or hourly rate) to get the kind of work you need? Not just any NHS but any role, any setting, any employer, any UK country for any reason www.surveymonkey.com/r/AFCRN
24.04.2025 07:32 β π 3 π 5 π¬ 1 π 0
New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data
bmcpalliatcare.biomedcentral.com/articles/10....
Congratulations Maja!
04.04.2025 19:18 β π 8 π 8 π¬ 0 π 0
π¨Our new BJGP paper - community nurses providing palliative care find collaborating with GPs harder, where practices have been moved towards remote dialogue & workforce diversification @bjgp.bsky.social
Pls Share. Our paper: bjgp.org/content/earl...
@theqicn.bsky.social @crystaloldman.bsky.social
29.03.2025 17:51 β π 5 π 7 π¬ 0 π 0
Person-Centred Care, Progressive Disease Intervention
The Support Needs Approach for Patients (SNAP) is a health care intervention which seeks to enable person-centred care for patients with progressive conditions.
Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk
20.03.2025 10:43 β π 4 π 2 π¬ 0 π 0
UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!
18.03.2025 09:33 β π 1 π 5 π¬ 0 π 0
Person-Centred Care, Progressive Disease Intervention
The Support Needs Approach for Patients (SNAP) is a health care intervention which seeks to enable person-centred care for patients with progressive conditions.
Are you a clinician interested in #person-centred care for people with chronic progressive conditions? Our next "SNAP in Practice" webinar/drop-in is on 7th May 1pm-2pm - contact me to be added to the mailing list thesnap.org.uk
20.03.2025 10:43 β π 4 π 2 π¬ 0 π 0
Carer resource ... 'supporting someone with breathlessness'
Please click on the link
02.12.2024 19:13 β π 3 π 2 π¬ 0 π 0
Great to see this paper published on the translation of the SNAP Tool (thesnap.org.uk) into Swedish - congratulations to Prof Carina Lundh Hagelin & team at Marie CederschiΓΆld University in Stockholm!
18.03.2025 13:51 β π 0 π 0 π¬ 0 π 0
UK clinicians - do you support unpaid/family carers of patients with breathlessness in advanced disease? This resource could help: supporting-breathlessness.org.uk. Plus we have a new batch of "mock prescription pads" in to help you signpost carers to it - just message me with your postal address!
18.03.2025 09:33 β π 1 π 5 π¬ 0 π 0
Graphic with photo of young carer with quote "All the stress at home is affecting my performance at school"
It's Young Carers Action Day 2025.
The theme, βGive Me A Breakβ, highlights the need for young carers to have time to rest and recharge, while also calling on schools and employers to provide better support, helping them achieve their full potential. @carerstrust.bsky.social
12.03.2025 10:38 β π 6 π 2 π¬ 0 π 0
NIHR National Institute for Health and Care Research
#ARCseminar
(background picture: silhouette of an adult and a child singing and dancing)
The 2025 national #ARCseminar series on:
The healing power of creative arts
ππΎπ·π΅
7 May: Improving #MentalHealth & wellbeing with creative arts
ππ€ποΈ
11 June: Exploring lived experience with creative arts
π΅πΊπ
9 July: Creative arts for #dementia
eventbrite.com/cc/nihr-arcs...
12.03.2025 13:51 β π 60 π 43 π¬ 1 π 5
Super proud to be supporting Jess Blake from @nchctrust.bsky.social at @arceastofengland.bsky.social Early Career Researcher Symposium presenting her work on misaligned expectations on recovery in brain injury rehab
06.03.2025 14:57 β π 3 π 0 π¬ 0 π 0
In just a few days almost 2000 people have used this form to ask their MP to address a serious patient safety issue. It takes less than a minute-can you help #protectnurse?
03.03.2025 16:15 β π 11 π 10 π¬ 0 π 1
Tell your MP to #ProtectNurse
I've told my MP to protect the title nurse in law. Will you? Together we need their support to see the bill up before government given time for debate. Only registered nurses should be able to use the...
Did you know anyone in the UK can call themselves a #Nurse? Even if they have no qualifications, have been struck off or convicted of a crime?
Support @DawnButlerBrent campaign to @protectnurse
Write to your MP here. Pls share! action.rcn.org.uk/page/166204/...
28.02.2025 16:31 β π 16 π 14 π¬ 2 π 5
π¨ Join the @ARC_EoE team!
Become a Senior Research Assistant in our Support for Ageing and Living with Long-Term Conditions Theme!
π Location: University of Hertfordshire
π
Apply by: Friday 14 March 2025
Click the link to learn more and apply today!π my.corehr.com/pls/uhrecrui...
25.02.2025 11:06 β π 2 π 2 π¬ 0 π 0
Supporting development of researchers in palliative and end of life care through events, networking and collaborations.
Professor of Palliative Care, University of Sheffield.
Palliative Care | Family Caregiving | Mesothelioma | Equity
Get more impact. Get your time back. Get inspired. Make a difference!
www.fasttrackimpact.com
Weβre the UKβs leading end of life charity. Hospice care and support, research and campaigns. Whatever the illness, weβre with you to the end π
The International Observatory on End of Life Care undertakes research and education to improve palliative and end of life care. Home of the PhD in Palliative Care. Lancaster University, UK. https://www.lancaster.ac.uk/health-and-medicine/research/ioelc/
We promote research into all aspects of palliative care and to facilitate its dissemination. This is a clear vision for Palliative Care Research Society activity which is increasingly important within the palliative care research context.
Fighting for mental health β for support, for respect, for you β
PhD student Wolfson Palliative Care Research Centre using Realist methodology to explore mind-body practices & breathlessness. HCPC registered music therapist, MSc palliative care, yoga & mindfulness teacher, singer, anything breath-related β€οΈπ« Views own
Senior Clinical Lecturer / Consultant in Palliative Medicine @University of Sheffield https://www.sheffield.ac.uk/smph/people/clinical-medicine/catriona-mayland
Palliative care; Bereavement; Improving quality; Addressing inequities
Director of Care at Rainbow Trust Childrenβs Charity π providing childrenβs palliative social care
Professor of Intellectual Disability and Palliative Care (Kingston University, London). Letβs talk about dying, death, bereavement and intellectual/learning disability.
Group of Bristol University professionals conducting palliative and end-of-life care research. Coordinated by Charlotte Chamberlain, Lucy Selman and Lucy Pocock
https://www.bristol.ac.uk/population-health-sciences/projects/palliative-end-of-life-care
Independent researcher in health and social care. Extensive senior leadership experience in academia, research, quality improvement, practice development and innovation. Interests health care policy, workforce development, person centered care, safety.
Professor of Palliative Care and Child Health
Kingβs College London
The King's Fund is an independent charity working to improve people's health. Our vision is a world where everyone can live a healthy life. https://www.kingsfund.org.uk/
Paediatric Palliative Care Consultant
Medical Director of Helen & Douglas House
Research Lead for the APPM
CYP PEoLc Lead for BOB ICB
Honorary Senior Clinical Lecturer, University of Oxford
Research manager. Talking about caring, research, palliative and end of life care, grief & bereavement, being a sib of an adult with LD and other stuff in between.
Opinions are my own. (She/her)
The Association for Palliative Medicine of Great Britain and Ireland (APM) host the Palliative Care Congress on an annual basis. PCC events attract over 500 delegates from around the world from a diverse multidisciplinary background.