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Madeleine

@xsilverdaisyx.bsky.social

111 Followers  |  365 Following  |  12 Posts  |  Joined: 19.09.2023  |  1.8869

Latest posts by xsilverdaisyx.bsky.social on Bluesky

Screenshot of research paper title and authors. Header says Health Expectations Open Access An International Journal of Public Participation in Health Care and Health Policy. Below this it says Original Article Open Access. The title of the paper is Understanding the Clinical Characteristics and Timeliness of Diagnosis for Patients Diagnosed With Long Covid: A Retrospective Observational Cohort Study From North West London. The list of authors reads Denys Prociuk, Jonathan Clarke, Nikki Smith, Ruairidh Milne, Cassie Lee, Simon de Lusignan, Ghazala Mir, Johannes De Kock, Erik Mayer, Brendan C. Delaney, LOCOMOTION Consortium. It is dated as First Published on 25 September 2025. The reference is https://doi.org/10.1111/hex.70429.

Screenshot of research paper title and authors. Header says Health Expectations Open Access An International Journal of Public Participation in Health Care and Health Policy. Below this it says Original Article Open Access. The title of the paper is Understanding the Clinical Characteristics and Timeliness of Diagnosis for Patients Diagnosed With Long Covid: A Retrospective Observational Cohort Study From North West London. The list of authors reads Denys Prociuk, Jonathan Clarke, Nikki Smith, Ruairidh Milne, Cassie Lee, Simon de Lusignan, Ghazala Mir, Johannes De Kock, Erik Mayer, Brendan C. Delaney, LOCOMOTION Consortium. It is dated as First Published on 25 September 2025. The reference is https://doi.org/10.1111/hex.70429.

๐Ÿ“ฃ 1/4. Paper out from the UKโ€™s LOCOMOTION study on incidence of #LongCovid diagnosis.
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๐Ÿšฉ Huge under-recording of Long Covid in primary healthcare records!
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Big thank you to our Members & co-authors @nikki-s.bsky.social & @ruairidhm.bsky.social for their hard work๐Ÿ™

Link to paper on below ๐Ÿงต โฌ‡๏ธ

30.09.2025 12:10 โ€” ๐Ÿ‘ 37    ๐Ÿ” 19    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 3

Listen to this young lady, protect yourselves. Donโ€™t wait for the messaging, itโ€™s already been over 5 years! We have an estimated 409 million with long Covid now. Over 28 million have died. We need to help each other #WeShareTheAir

25.09.2025 10:06 โ€” ๐Ÿ‘ 75    ๐Ÿ” 30    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0
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โ€œWe are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.โ€

Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

23.09.2025 21:53 โ€” ๐Ÿ‘ 5197    ๐Ÿ” 1871    ๐Ÿ’ฌ 72    ๐Ÿ“Œ 169
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Petition: Fund NHS COVID boosters for Clinically Vulnerable people โ€“ keep covid boosters 'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care hom...

When we donโ€™t stand up for other peopleโ€™s rights, the Overton window slides and then it can be us who need help. Please donโ€™t let this happen. petition.parliament.uk/petitions/73...

07.09.2025 09:37 โ€” ๐Ÿ‘ 13    ๐Ÿ” 12    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

We have a fight on our hands to keep vaccines in the UK. So please start by signing up to help the 13 million vulnerable who have had these cut. If we donโ€™t start being loudly vocal then the US is our future and its incoming fast.

07.09.2025 09:35 โ€” ๐Ÿ‘ 30    ๐Ÿ” 13    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0
Petition: Ensure plurality of political coverage across UK broadcast media at all times We want to ensure that a plurality of views from all political parties in Westminster are represented and the nations parliaments are heard all year round, not just election times. The rules for coverage during elections should apply at all times.

Petition:
A plurality of views from all political parties in Westminster & nations' parliaments to be heard all year round, not just election times.
Rules for coverage during elections to always apply.
A review to ensure coverage never verges on propaganda.
petition.parliament.uk/petitions/71...

31.08.2025 11:13 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A graphic of a beating heart surrounded by a shield stating:
HEART PATIENTS AT RISK
#KeepCovidBoosters
SAVE LIVES
followed by the Clinically Vulnerable Families Organisation's logo

A graphic of a beating heart surrounded by a shield stating: HEART PATIENTS AT RISK #KeepCovidBoosters SAVE LIVES followed by the Clinically Vulnerable Families Organisation's logo

A poster with both the UK Government and the Clinically Vulnerable Families Organisation logos stating:
SIGN OUR UK GOVERNMENT PETITION
KEEP COVID BOOSTERS FOR CLINICALLY VULNERABLE PEOPLE
SAVE LIVES

A poster with both the UK Government and the Clinically Vulnerable Families Organisation logos stating: SIGN OUR UK GOVERNMENT PETITION KEEP COVID BOOSTERS FOR CLINICALLY VULNERABLE PEOPLE SAVE LIVES

#KeepCovidBoosters and Save Lives
Please sign the petition:
petition.parliament.uk/petitions/73...

30.08.2025 11:24 โ€” ๐Ÿ‘ 17    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I want to explain a few things and then it might be clearer why UK trans people are upset.
In 2001 I married my wife, Sylvia.
In 2005 I started medical transition. (1/13)

29.08.2025 11:56 โ€” ๐Ÿ‘ 5506    ๐Ÿ” 3312    ๐Ÿ’ฌ 65    ๐Ÿ“Œ 489
Petition: Fund NHS COVID boosters for Clinically Vulnerable people โ€“ keep covid boosters 'Protect the NHS' and 'Save Lives' by continuing to fund NHS COVID boosters for Clinically Vulnerable people, including most previously shielded as CEV, rather than limiting them to over-75s, care home residents and those with severely weakened immune systems.

petition.parliament.uk/petitions/73...

28.08.2025 09:39 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Sarah holds up a brightly colored eel calendar with a moray, ribbon eel, splendid garden eels, and American and European eels, in front of some plants on the sidewalk

Sarah holds up a brightly colored eel calendar with a moray, ribbon eel, splendid garden eels, and American and European eels, in front of some plants on the sidewalk

Last year we sold 5x more advent calendars than we have this August. Advent calendars are the biggest thing that keep the lights on at Skype a Scientist so this makes me a bit nervous!

These calendars are bright and cute and are full of really fun information about eels!

Get one here: EelFacts.net

21.08.2025 17:32 โ€” ๐Ÿ‘ 89    ๐Ÿ” 55    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 8
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๐ŸšจACTION OF THE DAY๐Ÿšจ
@standupforscience.bsky.social

Day 21! QUACK-O-GRAM THURSDAY!

For $3 we will hand deliver an "IMPEACH THE QUACK" rubber ducky to your House Representative! (By one of our team members in a duck suit!)

DO IT (AND TELL YOUR FRIENDS)

act.standupforscience.net/fundraising/...

21.08.2025 13:47 โ€” ๐Ÿ‘ 495    ๐Ÿ” 293    ๐Ÿ’ฌ 33    ๐Ÿ“Œ 59
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Petition: Direct the UKHSA to monitor COVID infections that occur in particular settings Ensure that the UK Health Security Agency (UKHSA) monitors, and reports on, the numbers of COVID infections that occur in healthcare settings through its routine surveillance programmes, and advises o...

petition.parliament.uk/petitions/73...

20.08.2025 13:22 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Beaker on the cover of Born to Run by Bruce Springsteen.

Beaker on the cover of Born to Run by Bruce Springsteen.

album covers but with muppets: thread

19.08.2025 01:17 โ€” ๐Ÿ‘ 2859    ๐Ÿ” 521    ๐Ÿ’ฌ 112    ๐Ÿ“Œ 63
The Disaster Preparedness Bundle main flier. Play games, save lives!

The charity games bundle runs from August 9th - 24th, and features 22 games from 12 creators!  Check the link in the post to get it now!

It shows a pug chilling on a beach playing a Switch in a folding chair under a beach umbrella, with a shipping container an a pallet of aid in the background.  There's a few cute crabs scuttering about, a drink in a coconut with a lil drink umbrella, and an innertube and beach volleyball on the shoreline.  Tropical plants frame the scene.

The Disaster Preparedness Bundle main flier. Play games, save lives! The charity games bundle runs from August 9th - 24th, and features 22 games from 12 creators! Check the link in the post to get it now! It shows a pug chilling on a beach playing a Switch in a folding chair under a beach umbrella, with a shipping container an a pallet of aid in the background. There's a few cute crabs scuttering about, a drink in a coconut with a lil drink umbrella, and an innertube and beach volleyball on the shoreline. Tropical plants frame the scene.

It's only a matter of time before the next major disaster. Except this time, FEMA might not show up at all.

The @distributeaid.org team has your back. Do you have ours?

Get your game bundle and get our 6 aid hubs in the US filled up before disaster strikes!

distributeaid.org/usa-disaster...

10.08.2025 00:19 โ€” ๐Ÿ‘ 187    ๐Ÿ” 131    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 26
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Synthetic sugar-coated nanoparticle blocks Covid-19 from infecting human cells Groundbreaking research led by a Swansea University academic has revealed a synthetic glycosystem - a sugar-coated polymer nanoparticle - that can block Covid-19 from infecting human cells, reducing i...

Well done to @swanseauni.bsky.social for this brilliant discovery! www.news-medical.net/news/2025081...

13.08.2025 10:56 โ€” ๐Ÿ‘ 96    ๐Ÿ” 40    ๐Ÿ’ฌ 6    ๐Ÿ“Œ 3
small 50mm model of a woman with blue hair holding a placard with the slogan 'f**k ai. It's f**king s**te'. The model has been handmade and painted and is alongside a peacock

small 50mm model of a woman with blue hair holding a placard with the slogan 'f**k ai. It's f**king s**te'. The model has been handmade and painted and is alongside a peacock

I have been making these little models with placards. The models are made in #nomadsculpt and then #3dprinted and painted. I love making these and very happy to do commissions or provide for auctions, fund raisers etc #notoai

13.08.2025 11:15 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
small 50mm model of a person wearing an ffp3 facemask and beanie cat (in trans rights colors) with a blahaj shark holding a placard with the slogan 'protect trans lives'. The model has been handmade and painted

small 50mm model of a person wearing an ffp3 facemask and beanie cat (in trans rights colors) with a blahaj shark holding a placard with the slogan 'protect trans lives'. The model has been handmade and painted

I have been making these little models with placards. The models are made in #nomadsculpt and then #3dprinted and painted. I love making these and very happy to do commissions or provide for auctions, fund raisers etc #transrights #transrightsarehumanrights

13.08.2025 11:23 โ€” ๐Ÿ‘ 8    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Covid is still out there.

Itโ€™s still killing & disabling people.

I know you were told it was over.

I know you were told to stop masking.

Please get your booster & wear a mask.

Normalize masking (N95 or better!) as a public health tool.

We can save each other.

12.08.2025 08:58 โ€” ๐Ÿ‘ 393    ๐Ÿ” 119    ๐Ÿ’ฌ 13    ๐Ÿ“Œ 3

If youโ€™re still wearing a mask, thank you

Thank you for standing in solidarity with disabled & high risk people

Thank you for practicing community care

Thank you for following the science & seeing the value in breaking chains of transmission

Thank you protecting your health

Thank you.

11.08.2025 08:50 โ€” ๐Ÿ‘ 995    ๐Ÿ” 244    ๐Ÿ’ฌ 20    ๐Ÿ“Œ 11

These children might still be here now if we hadnโ€™t been told to sing โ€˜Happy Birthdayโ€™ for a predominantly airborne virus and five years on schools are still unmitigated. @privateeyenews.bsky.social

10.08.2025 10:44 โ€” ๐Ÿ‘ 14    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 1

trans and bisexual people are far more likely to suffer from longcovid than cis and straight counterparts. preventing the spread of SARS2 is an act of allyship.

08.08.2025 18:53 โ€” ๐Ÿ‘ 23    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Here's another Covid scandal that is just starting to emerge into the public domain from today's Private Eye. I think this will turn into a big one.

@mrjamesob.bsky.social

06.08.2025 10:18 โ€” ๐Ÿ‘ 47    ๐Ÿ” 25    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 4

Iโ€™ve said it before and Iโ€™ll say it again: our punk and drag shows have more covid mitigation than disease foundation summits and physicians conferences. Why can we do what people whose careers supposedly depend on the knowledgeโ€”with far more resourcesโ€” canโ€™t? #WeKeepUsSafe

13.05.2025 16:36 โ€” ๐Ÿ‘ 531    ๐Ÿ” 160    ๐Ÿ’ฌ 6    ๐Ÿ“Œ 31

itโ€™s actually wild that, as far as i know, thereโ€™s nothing about anticovid activism on wikipedia. no mask blocs, no clean air clubs, very little mention of organized guerilla pro-social public health at all thus far.

23.07.2025 08:03 โ€” ๐Ÿ‘ 163    ๐Ÿ” 31    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 6
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The Pandemic Has Been a Portal (for a few of us) It's true that most people keep choosing "normalcy". But the COVID conscious community is showing us a radical new way forward, that centers care

In 2020, Arundhati Roy wrote a gorgeous, prescient essay called โ€œThe Pandemic is a Portalโ€. In this piece, I discuss who actually walked through it: the COVID conscious community, and why Iโ€™m proud to be a part of it.

www.thegauntlet.news/p/the-pandem...

22.07.2025 02:45 โ€” ๐Ÿ‘ 362    ๐Ÿ” 147    ๐Ÿ’ฌ 19    ๐Ÿ“Œ 27

"By May 2023, the UK had recorded 3,330 deaths per
million people compared to 670 deaths per million in South Korea and 600 deaths per million in Japan"

22.07.2025 17:33 โ€” ๐Ÿ‘ 57    ๐Ÿ” 22    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 1

Hi, folks headed to WorldCon or GenCon or any other convention:

Please, for the love of god, wear a mask. The whole time. Donโ€™t take it off for selfies or food in the convention center. The summer surge of COVID is already violent, measles is doing her thing, and god knows what else is out there.

20.07.2025 05:21 โ€” ๐Ÿ‘ 802    ๐Ÿ” 249    ๐Ÿ’ฌ 16    ๐Ÿ“Œ 18
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Nurseries in England bring in Covid-style protocols as measles cases rise Staff deploy infection controls and step up cleaning as cases pass 500 for year to date and after one child dies

While infection control and cleaning is always a good thing, itโ€™s not going to cut it for measles. Measles is airborne and highly contagious. The best approach is vaccination, and local infection control should focus on ventilation and air cleaning www.theguardian.com/society/2025...

19.07.2025 07:14 โ€” ๐Ÿ‘ 302    ๐Ÿ” 157    ๐Ÿ’ฌ 12    ๐Ÿ“Œ 19
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Earlier this month, the government blocked an inquiry into its complicity in the Gaza genocide.

We donโ€™t need their permission to uncover the truth.

Thatโ€™s why, today, we are announcing The Gaza Tribunal.

Sign up at thegazatribunal.uk.

17.07.2025 08:37 โ€” ๐Ÿ‘ 1036    ๐Ÿ” 395    ๐Ÿ’ฌ 32    ๐Ÿ“Œ 12
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Petition: Change law: OFWAT to block dividends & executive bonuses when rationing water Change the Water (Special Measures) Act to require OFWAT to block executive bonuses and payment of shareholder dividends in the event of water companies declaring water rationing measures.

petition.parliament.uk/petitions/73...

16.07.2025 18:42 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@xsilverdaisyx is following 20 prominent accounts