Presenting the Bleeding Disorders: Care & Practice top 10 articles for February. Patient experience & quality of life continue to feature prominently.
Why not explore our archives here: https://loom.ly/uIXcNF8
#BDCP #bleedingdisorders #research #livedexperience #haemophilia
#HemeSky #MedSky
The new season of #Haemcast has started! In episode 1, members of Local families with bleeding disorders discuss how poetry helped them explore their experiences, hopes, expectations and worries.
🎧 https://loom.ly/d6YUipg
#LFWBD #bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
Thank you, @kirstygrainger.bsky.social
On #InternationalWomensDay 2026, we want to give visibility and a voice to women and girls affected by a #BleedingDisorder. Read our #IWD blog here: https://loom.ly/lujMOIw
#GiveToGain #March8 #BleedingDisorders #GenderEquality #ParityOfCare #HemeSky #MedSky
Out today: the first new #Haemcast, in collaboration with Local families with bleeding disorders! Hear about the poetry workshops that helped #LFWBD members explore their experiences, hopes and fears:
🎧 https://loom.ly/d6YUipg
#bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
The new season of #Haemcast is about to launch! We'll be exploring the ups, downs, ins and outs of family life with a rare bleeding disorder in collaboration with Local families with bleeding disorders.
https://loom.ly/ADEZ6qQ
#podcast #LFWBD #bleedingdisorders #families
#HemeSky #MedSky
1 March is #GlanzmannThrombasthenia Awareness Day. Our GT360 study explored the experience of almost 120 people living with or caring for people with Glanzmann's. Our short video explains more: https://loom.ly/WDVzGRk
If you live with Glanzmann's, what do you want people to know?
#HemeSky #MedSky
On #RareDiseaseDay 2026, we're shining a light on #UltraRare #BleedingDisorders — factor deficiencies, #GlanzmannThrombasthenia, #BernardSoulierSyndrom, #Afibrinogenemia... Our #RDD blog highlights the experience of Helen, who lives with #FactorV deficiency: https://loom.ly/hcPNBXE
#HemeSky #MedSky
The top 10 #BDCP articles for January 2026 explore aspects of treatment experience, women & haemophilia, parent experiences, and nursing. Read more in Bleeding Disorders: Care & Practice: https://loom.ly/uIXcNF8
#bleedingdisorders #research #haemophilia #Haemnet #HemeSky #MedSky
Introducing the new editor of Bleeding Disorders: Care & Practice, Maria Santaella, Vice President of Research Strategy at the National Bleeding Disorders Foundation (NBDF)
https://loom.ly/Z_wuqf8
#BDCP #research #Haemnet #NBDF #HemeSky #MedSky
Ready for another day at #EAHAD2026!
#EAHADCongress #bleedingdisorders #research #Haemnet #HemeSky #MedSky
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm
#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet #HemeSky #MedSky
Day 2 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.
#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
#HemeSky #MedSky
We've arrived!
#EAHAD2026 #EAHADCongress #bleedingdisorders #Haemnet
Haemnet team is at the #EAHAD2026 Congress in Dublin this week, with posters on #FactorVII deficiency, #vonWillebrandDisease & #bleedingdisorders in women. Come & say hello!
#EAHADCongress #Haemnet #bleedingdisorders #vonWillebrandDisease #FactorVII #research #MedSky #HemeSky
Only a week until EAHAD 2026! We're looking forward to catching up with clients, colleagues and friends, and hearing about the latest developments in #bleedingdisorders #research. See you there?
#EAHAD2026 #EAHADCongress #Haemnet #HemeSky #MedSky
For Haemcast's 2026 series, we're collaborating with Local Families with Bleeding Disorders to talk about family life with a rare bleeding disorder. Stay tuned — it's coming soon! https://loom.ly/ADEZ6qQ
#podcast #Haemcast #LFWBD #bleedingdisorders #families #HemeSky #MedSky
Our journal's top 10 online articles for December 2025 have been revealed! You can read these and more on the new Bleeding Disorders: Care & Practice platform: https://loom.ly/Z_wuqf8
#bdcpjournal #bleedingdisorders #hemophilia #research #MedSky #HemeSky
Our journal is dedicated to the full spectrum of #bleedingdisorders – and we’re changing our name to reflect that. Introducing Bleeding Disorders: Care & Practice – the new name for The Journal of Haemophilia Practice
www.bdcpjournal.com
#BDCPjournal #haemophilia #VWD
#HemeSky #MedSky #BloodSky
We're winding down for the holidays and looking forward to the new year to come. Wishing a very Merry Christmas and Happy Holidays to all our clients, colleagues and friends in the bleeding disorders community. See you in 2026!
#bleedingdisorders #research #livedexperience #Haemnet #HemeSky #MedSky
AI touches our lives in many ways, but sometimes there's nothing like human insight to find the right words. In our end-of-year #blog, we share our experience of what happens when AI transcription misses the mark.
https://loom.ly/8hciI04
#Haemnet #research #bleedingdisorders #AI
#HemeSky #MedSky
Thank you to all readers, authors & reviewers who have shown continued trust in JHP this year. Our mission is to share expertise & experience in the bleeding disorder community. Watch out for our exciting new chapter!
#bleedingdisorders #research #haemophilia #VWD
#HemeSky #BloodSky #MedSky
It's that time of year again… What's in your #SpotifyWrapped? Haemcast is a 2025 Marathon, Talked About, & Most Shared Show! We call that recommended holiday listening. Tune in via your favourite platform or visit https://loom.ly/A4UWu6M
#bleedingdisorders #podcast
#HemeSky #BloodSky #MedSky
New in The Journal of Haemophilia Practice: results from a clinic-based questionnaire aimed at improving treatment of heavy menstrual bleeding in women with bleeding disorders
https://doi.org/10.2478/jhp-2025-0018
#HMB #periods #women #bleedingdisorders #research
#HemeSky #MedSky #BloodSky
#WorldAIDSDay2025
Support - Remember - Raise awareness - Fight stigma - End new cases of HIV by 2030
Wishing Happy Thanksgiving to all our American friends, families and followers 🧡
What do recent changes to the WHO #EssentialMedicines List mean for #haemophilia on the ground? We asked the Haemophilia Foundation of Uganda's Agnes Kiskaye. Read her thoughts and hopes on the Haemnet blog: https://loom.ly/AB3rNJI
#HemeSky #MedSky #BloodSky
Being heard and understood? Getting advice and support? Meeting people like you? If you live with a bleeding disorder, what does community mean to you?
#bleedingdisorders #community #livedexperience #research #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia
#HemeSky #BloodSky
Intergenerational impacts of the #ContaminatedBloodScandal, stakeholder roles in #patientorganisations in India, acquired haemophilia A, and #haemophilia clinical practice are the focus of the latest papers published in JHP. Find out more: https://loom.ly/mXzYdu4
#HemeSky #BloodSky #MedSky
