Ellen 't Hoen's Avatar

Ellen 't Hoen

@ellenthoen.bsky.social

X-Twitter refugee looking for a safer place. I spend most of my time working on access to medicines and intellectual property at www.medicineslawandpolicy.org. If not, I cook.

2,678 Followers  |  140 Following  |  115 Posts  |  Joined: 01.10.2024
Posts Following

Posts by Ellen 't Hoen (@ellenthoen.bsky.social)

Een afbeelding met een foto van Ellen 't Hoen, expert patentrecht en directeur van Medicines Law & Policy, met daarnaast deze quote van haar: "Het is hoog tijd dat de regering uitvoering geeft aan de door Nederland gesteunde WHO-resolutie voor grotere transparantie in de farma-sector. Transparantie van onderzoekskosten en prijzen is essentieel om tot eerlijke medicijnprijzen te komen."

Een afbeelding met een foto van Ellen 't Hoen, expert patentrecht en directeur van Medicines Law & Policy, met daarnaast deze quote van haar: "Het is hoog tijd dat de regering uitvoering geeft aan de door Nederland gesteunde WHO-resolutie voor grotere transparantie in de farma-sector. Transparantie van onderzoekskosten en prijzen is essentieel om tot eerlijke medicijnprijzen te komen."

πŸ“’ Maak #geengeheim van mijn medicijn.

@ellenthoen.bsky.social is expert patentrecht en directeur van @medslawpolicy.bsky.social. Zij ondertekende de open brief aan de regering en Tweede Kamer voor meer transparantie in de farma-sector.

✍ Lees en onderteken de brief op www.wemos.org/geengeheim.

19.02.2026 13:49 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image Post image

When the @who.int Executive Board discusses agenda item 14 on the draft updated global action plan on antimicrobial resistance (perhaps tomorrow), VMAT may crop up as a point of contention. @who.int #EB158

03.02.2026 13:18 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
Preview
TRIPS flexibilities help change policy and practice to increase access to medicines: evidence from 2001 to 2024 Introduction Millions of people lack access to safe and effective pharmaceuticals because they are unaffordable or unavailable, particularly in β€˜developing’ and β€˜least-developed’ countries (DCs, LDCs)...

Just out: our overview of over two decades of the use of TRIPS flexibilities to access medicines in BMJ Global Health gh.bmj.com/content/11/1...

28.01.2026 13:30 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

Met dank aan @wemos.org om mij hierbij te betrekken. Transparantie is de basis van een democratische samenleving en het vertrouwen in de instituties en bedrijven die er actief zijn. Dat geldt ook voor de farmaceutische industrie.

28.01.2026 10:07 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
US withdraws from the World Health Organization The United States officially left the World Health Organization on Thursday after a year of warnings that doing so would hurt public health in the U.S. and globally, saying its decision reflected fail...

Meanwhile: US has now left the @who.int β€œThe U.S. flag had been removed from outside the WHO headquarters in Geneva on Thursday, according to witnesses.” www.reuters.com/business/hea...

23.01.2026 07:59 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Only in the weekend? You’re not there yet. ;-)

19.01.2026 07:13 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

New Oxfam Inequality report just dropped:

Billionaire wealth has grown by 80% since 2020.

The world’s 12 richest billionaires have more wealth than the poorest half of humanity.

Elon Musk is the first ever person to have over half a trillion dollars wealth.

19.01.2026 06:01 β€” πŸ‘ 21    πŸ” 18    πŸ’¬ 1    πŸ“Œ 1
Preview
US drugmakers threaten to withhold products from Europe over prices Pharmaceutical companies seek to make up any lost revenue after striking deals with Donald Trump to lower costs in US

US pharma threaten to withhold products from Europe over prices
giftarticle.ft.com/giftarticle/...

19.01.2026 07:10 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
With political savvy and outrage over drug prices, advocate David Mitchell was ahead of his time David Mitchell, who helped launch Patients for Affordable Drugs to raise awareness of high drug prices and seek to bring them down, died at age 75.

Nice tribute to David Mitchell, a US drug pricing advocate who recently passed away. @statnews.com www.statnews.com/2026/01/05/d...

06.01.2026 08:15 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Apparently non-State actors in official relations and relevant stakeholders are not welcome (physically) at the resumed session of #IGWG4 in January 2026: "Please also note that Relevant Stakeholders are invited to participate in the meeting virtually."

24.12.2025 05:23 β€” πŸ‘ 0    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Wrapping up 2025: A tumultuous year for global public health law & policy | Medicines Law & Policy

Here is my end of the year blog with a highly biased listing of noteworthy medicines law and policy events of 2025: medicineslawandpolicy.org/2025/12/wrap...

16.12.2025 17:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Draft Program - Centre Launch 3 Dec Centre on Knowledge Governance Launch Event and Reception Wednesday 3 December 2025, 6.00pm - 9.30pm, including reception Auditorium A-2, Petal 2, Graduate Institute, Chem. Eugène-Rigot 2, 1202 Genèv...

I am looking forward to being part of the launch event of the Centre on Knowledge Governance tonight at the @gvagrad.bsky.social docs.google.com/document/d/1...

03.12.2025 13:19 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
WHO backs use of GLP-1 therapies for obesity, warns access will remain limited The World Health Organization on Monday issued its first guideline on the use of GLP-1 therapies for obesity, conditionally recommending them as part of long-term treatment for the condition, which af...
01.12.2025 13:58 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Global health aid cuts: WHO urges urgent action to protect vulnerable populations With drastic reductions in health aid threatening essential services and millions of lives, WHO issues new guidance for countries to safeguard health budgets, limit out-of-pocket payments, and mobilis...

β€œTransitioning to self-reliance sounds good but what is happening today is not a transition. It is a shock to the system of which the most vulnerable will carry the brunt”, says @ellenthoen.bsky.social in a new @thelancet.com here:

26.11.2025 09:42 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Thanks. That did not show up on my computer. Will change settings.

01.12.2025 06:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

France is killing it - net price transparency now, ammendment tabled and adopted ! @healthlawadamh.bsky.social @mattherder.bsky.social

10.11.2025 10:02 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

It’s trading PA for PEPFAR

07.11.2025 12:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Fully support this morning’s statement by @theindpanel.bsky.social at the #PABS talks at the WHO. It relates to the news broken by @healthpolicywatch.bsky.social that the US is seeking access to pathogen information in exchange for health funding. healthpolicy-watch.news/exclusive-us...

07.11.2025 12:21 β€” πŸ‘ 7    πŸ” 6    πŸ’¬ 0    πŸ“Œ 0
Preview
War is pushing us to a drug resistance tipping point Failure to prevent the rise and spread of infections in conflict zones imperils health security everywhere

on.ft.com/493t0RL War is pushing us to a drug resistance tipping point by @gardp.bsky.social

07.11.2025 12:16 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
Preview
Medicines justice - Registration

Last chance to register for the Amsterdam Medicines Justice Conference. registration closes tomorrow: www.aanmelder.nl/medicinesjus...

13.10.2025 08:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Meanwhile on the dark side:

18.09.2025 20:52 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0

The @wto.org just published its 2025 World Trade Report on trade and AI to the benefit for all: www.wto.org/english/res_...

17.09.2025 09:49 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
$10 Million in Contraceptives Have Been Destroyed on Orders From Trump Officials

Because β€œcontraception is not life-saving” www.nytimes.com/2025/09/11/h...

12.09.2025 06:21 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
WHO Members meet to finalise the Pathogen Access and Benefit Sharing Instrument | Medicines Law & Policy

Next week, at the @who.int the second meeting of the Intergovernmental Working Group (IGWG) tasked with negotiating the PABS Instrument will take place. We just published this brief on the subject:
medicineslawandpolicy.org/2025/09/who-...

10.09.2025 08:48 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
Alarm as WHO accepts increasing amount of dark money from corporate donors Experts say millions in corporate funding and concealment of donors’ identities raises key conflict-of-interest concerns

The WHO Foundation should clean up its act. And so should member states by supporting the @who.int with core financing.
www.theguardian.com/world/2025/s...

09.09.2025 17:27 β€” πŸ‘ 6    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0

GLP-1 drugs have been on the Medicines Patent Pool priority list for a while. Time for the companies to come forward now @who.int labeled them essential @thirugeneva.bsky.social @medicinespatentpool.org

06.09.2025 05:55 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Treatment for cystic fibrosis added to Essential Medicines List by the World Health Organization: A victory for campaigners, though prices still β€˜toxic’ | Medicines Law & Policy

Here is our blog on the new WHO Essential Medicines List : medicineslawandpolicy.org/2025/09/trea...

05.09.2025 16:36 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Here you can find the new Model lists of Essential Medicines.

05.09.2025 13:54 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
A huge turning point: CF medicine’s Trikafta/Kaftrio added to WHO Essential Medicines List Today marks a historic breakthrough in the fight for global access to lifesaving cystic fibrosis (CF) treatment.The World Health Organization (WHO) has officially addedΒ elexacaftor/tezacaftor/ivacafto...

The WHO just published its new Model List of Essential Medicines list. Pleased to see cystic fibrosis meds included. Thanks to the great work of the Right to Breathe campaign. However, Vertex's high prices will continue to be a barrier. www.righttobreathe.net/post/a-huge-...

05.09.2025 13:52 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
Preview
Pfizer’s CEO defends Covid vaccines, suggests Trump may deserve a Nobel Peace Prize Pfizer CEO Albert Bourla defended the development of Covid vaccines and suggested President Trump may deserve a Nobel Peace Prize because of Operation Warp Speed.

Not sure that this will do a great deal for increasing confidence in vaccines. www.statnews.com/2025/09/03/p...

04.09.2025 08:54 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0