Linda von Neree

Defining Patient and Public Involvement and Engagement Tasks in Health Data Research: A Consensus Study Background Patient and public involvement and engagement (PPIE) is essential throughout the research cycle, but a one-size-fits-all approach does not suit all study types. Health data research prese...

📣 If you are interested in #PatientInvolvement #PublicEngagement 💪 in #data #research 🕵️👥🔬this new #publication might be for you 🤩

➡️ Tasks how patient and public members can be involved in research using health information: A conversation starter
onlinelibrary.wiley.com/doi/10.1111/...

Do share! 🙏

Created using Microsoft Sway A spotlight on outstanding science made accessible — from across the five Blood and Transplant Research Units (BTRUs), in partnership with the National Institute for Health and Care Research (NIHR) an

🚨 Just out: This special edition newsletter celebrates #researchers and #patient and public members working together on Plain English Summaries to make #research more accessible 🎉

👉More at sway.cloud.microsoft/bs01ner3kySZ...

#PlainEnglish #ResearchAccessibility #PatientInvolvement #HealthResearch

Reposting this really helpful thread for new people joining BlueSky.
bsky.app/profile/tris...
Please note esp tip 3: "BE A PERSON. Put up a photo. Put something in your bio. Make the place look friendly. Give people a reason to follow you back".
Also post/engage. Then we know you're not a bot! 🤖

‘Suspended Disbelief’ Suspended Disbelief – Reflections on the Holocaust BOOK IS NOW OUT! Available on Amazon or on 30 Degrees South UK The Holocaust. The darkest chapter in the history of humankind. A pivotal per…

My book 'Suspended Disbelief: Reflections on the Holocaust' is still available to buy, including from me directly if you want a signed copy. julianharrison.wordpress.com/the-author/

Mindful March calendar from Action for Happiness

Happy belated Birthday, Julian! Well done treating yourself and well deserved ☀️

YouTube video by SRF Kultur Sternstunden Anne Applebaum: westliche Demokratien und ihre neuen Feinde | Sternstunde Philosophie | SRF Kultur

Worth watching m.youtube.com/watch?v=0y1n... Feeling #sick about #politics in this #world

10 Actions The Government Can Take To Improve NHS Working Conditions | The King's Fund What actions can the new government take to improve working conditions and lay the foundations for addressing chronic staff shortages and increasing NHS retention and productivity?

Today is #TimeToTalk Day, a day encouraging conversation about mental health. Last year, we outlined 10 early actions the government can take to improve NHS working conditions, and specifically staff wellbeing. Find out more 👉 www.kingsfund.org.uk/insight-and-...

We are looking for instructors to teach courses in the Science Talk community! 📚💡 Share your expertise, retain IP, and earn 50% of the revenue. Help grow our profession!

Apply now: https://www.associationofsciencecommunicators.org/courses-training-opportunities/

Great article from @lynnlaidlaw.bsky.social looking at the gaps between the rhetoric and reality of 'patient and public involvement'. With important questions about the extent to which claims of involvement are meaningful. Page 4 here: pexlib.net?246078 #PatientExperience

Hello, I just joined blue sky. I am hoping to find many old and new contacts to follow on here instead of X.