You first.
25.02.2025 20:53 โ ๐ 112298 ๐ 14238 ๐ฌ 5672 ๐ 1149@griffax.bsky.social
Been living with Multiple Sclerosis since 1996. Now SPMS. Retired in 2005 due to it.
You first.
25.02.2025 20:53 โ ๐ 112298 ๐ 14238 ๐ฌ 5672 ๐ 1149So sorry for your loss Brian.
25.01.2025 18:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Perfect.
22.01.2025 18:34 โ ๐ 1087 ๐ 201 ๐ฌ 47 ๐ 6First pre-season game..going to be chilly...
Long John's, hat,scarf & gloves needed!
Flicking through the channels & this came on. I remember 1st work trip with Halifax Insurance back in 1988 to the famous Batley Frontier Club to see him.
First & last time I've drank Southern Comfort (bloody horrible) & only fights were between women!
Definitely. Even hour by hour on some days. Just learn to listen to our bodies and down what we can and adapt x
11.01.2025 19:22 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0No meds. When they did my MRI to start Siponimod it didn't show any active lesions so didn't meet the criteria. It's why I'm on the ChariotMS trial..try anything to try and slow down progression. Hope you can start Siponimod soon.
11.01.2025 18:50 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Sorry to hear how things are for you now. I'm still able to get around using a walking stick,but do have my problems using hands/fingers when dressing.
11.01.2025 18:02 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0For me,I put it down to the damage caused by previous lesions/relapses. Whilst I may have "recovered" from them at the time...the long term damage has happened. I guess it's the new term of smouldering MS. No new lesions,but progression.
11.01.2025 18:01 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Facebook memories..
This would have been my last "individual relapse"...since then just been one long one.
#multiplesclerosis
This all but ensures that Jews will be blamed.
10.01.2025 11:56 โ ๐ 3320 ๐ 297 ๐ฌ 432 ๐ 39Hope all my friends and followers on here in LA are keeping safe.๐ซ
09.01.2025 20:13 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Not a single Reform MP has bothered to turn up to today's House of Commons debate on tackling violence against women and girls
09.01.2025 14:21 โ ๐ 4977 ๐ 2145 ๐ฌ 261 ๐ 158All done & back home. Didn't sting as much as other times thankfully.
#multiplesclerosis
Here for another round of Botox for my bladder 3mths early as the last lot didn't really work. The Urologist did say they sometimes get a duff batch!๐คฃ
#multiplesclerosis
Come on you Redmen!!
#YNWA
Blue on blue slapping continues. At some point, I'm going to get bored of this, but not yet.
06.01.2025 14:54 โ ๐ 663 ๐ 63 ๐ฌ 35 ๐ 4Mine came to ยฃ385 but thankfully the sunglasses them came free
04.01.2025 17:26 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0Yeah, I'm the same..although when he was racking up the price on the till, was over ยฃ800....then thankfully he started to add the discounts! Still way too expensive
04.01.2025 17:10 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Yep! And of course I didn't realise that I'd chosen the premium varifocals last time, so going for the basic cheaper option this time would have meant I'd not see as much! Bugger!
04.01.2025 15:31 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0I thought it hid it well...plus having my mother in law around didn't help ๐คฃ
04.01.2025 14:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I tried the specsavers online fitting, but wasn't sure if they'd fit my fat head, so it was easier to go in. They have a deal on at the moment,buy one get one free... better deal than at Boots. I need varifocals, so adds to the expense sadly.
04.01.2025 14:48 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Sunglasses too.
04.01.2025 14:45 โ ๐ 2 ๐ 0 ๐ฌ 3 ๐ 0New glasses ordered. Getting old & living with #multiplesclerosis that affects your eyes is expensive!
๐คฃ
Look how happy I am spending so much! ๐คฃ๐คฃ
First Saturday of the new year and usual supermarket car park with a coffee.
Hope you're all enjoying your weekend and if you live with ##multiplesclerosis, that it's behaving.
Few from Castle Howard yesterday. The place was an Alice in Wonderland theme.
04.01.2025 11:20 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0Happy New Year Dale.
01.01.2025 20:48 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Completely true... followed by walking around the house, trying to measure up the bruises against the furniture! #multiplesclerosis
01.01.2025 09:09 โ ๐ 7 ๐ 0 ๐ฌ 1 ๐ 0Happy New Year to all our family and friends.
31.12.2024 16:06 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0