Paul's Avatar

Paul

@griffax.bsky.social

Been living with Multiple Sclerosis since 1996. Now SPMS. Retired in 2005 due to it.

339 Followers  |  285 Following  |  124 Posts  |  Joined: 04.10.2023  |  2.1569

Latest posts by griffax.bsky.social on Bluesky

Post image

You first.

25.02.2025 20:53 โ€” ๐Ÿ‘ 112298    ๐Ÿ” 14238    ๐Ÿ’ฌ 5672    ๐Ÿ“Œ 1149

So sorry for your loss Brian.

25.01.2025 18:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Perfect.

22.01.2025 18:34 โ€” ๐Ÿ‘ 1087    ๐Ÿ” 201    ๐Ÿ’ฌ 47    ๐Ÿ“Œ 6
Post image Post image

First pre-season game..going to be chilly...

Long John's, hat,scarf & gloves needed!

19.01.2025 11:44 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Flicking through the channels & this came on. I remember 1st work trip with Halifax Insurance back in 1988 to the famous Batley Frontier Club to see him.

First & last time I've drank Southern Comfort (bloody horrible) & only fights were between women!

12.01.2025 20:42 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Definitely. Even hour by hour on some days. Just learn to listen to our bodies and down what we can and adapt x

11.01.2025 19:22 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

No meds. When they did my MRI to start Siponimod it didn't show any active lesions so didn't meet the criteria. It's why I'm on the ChariotMS trial..try anything to try and slow down progression. Hope you can start Siponimod soon.

11.01.2025 18:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Sorry to hear how things are for you now. I'm still able to get around using a walking stick,but do have my problems using hands/fingers when dressing.

11.01.2025 18:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

For me,I put it down to the damage caused by previous lesions/relapses. Whilst I may have "recovered" from them at the time...the long term damage has happened. I guess it's the new term of smouldering MS. No new lesions,but progression.

11.01.2025 18:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image 11.01.2025 04:33 โ€” ๐Ÿ‘ 1882    ๐Ÿ” 748    ๐Ÿ’ฌ 50    ๐Ÿ“Œ 42
Post image

Facebook memories..

This would have been my last "individual relapse"...since then just been one long one.

#multiplesclerosis

11.01.2025 10:19 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

This all but ensures that Jews will be blamed.

10.01.2025 11:56 โ€” ๐Ÿ‘ 3320    ๐Ÿ” 297    ๐Ÿ’ฌ 432    ๐Ÿ“Œ 39

Hope all my friends and followers on here in LA are keeping safe.๐Ÿซ‚

09.01.2025 20:13 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Not a single Reform MP has bothered to turn up to today's House of Commons debate on tackling violence against women and girls

09.01.2025 14:21 โ€” ๐Ÿ‘ 4977    ๐Ÿ” 2145    ๐Ÿ’ฌ 261    ๐Ÿ“Œ 158

All done & back home. Didn't sting as much as other times thankfully.
#multiplesclerosis

09.01.2025 13:26 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image Post image

Here for another round of Botox for my bladder 3mths early as the last lot didn't really work. The Urologist did say they sometimes get a duff batch!๐Ÿคฃ

#multiplesclerosis

09.01.2025 11:44 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

Come on you Redmen!!

#YNWA

08.01.2025 20:10 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Blue on blue slapping continues. At some point, I'm going to get bored of this, but not yet.

06.01.2025 14:54 โ€” ๐Ÿ‘ 663    ๐Ÿ” 63    ๐Ÿ’ฌ 35    ๐Ÿ“Œ 4

Mine came to ยฃ385 but thankfully the sunglasses them came free

04.01.2025 17:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Yeah, I'm the same..although when he was racking up the price on the till, was over ยฃ800....then thankfully he started to add the discounts! Still way too expensive

04.01.2025 17:10 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Yep! And of course I didn't realise that I'd chosen the premium varifocals last time, so going for the basic cheaper option this time would have meant I'd not see as much! Bugger!

04.01.2025 15:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I thought it hid it well...plus having my mother in law around didn't help ๐Ÿคฃ

04.01.2025 14:49 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I tried the specsavers online fitting, but wasn't sure if they'd fit my fat head, so it was easier to go in. They have a deal on at the moment,buy one get one free... better deal than at Boots. I need varifocals, so adds to the expense sadly.

04.01.2025 14:48 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image

Sunglasses too.

04.01.2025 14:45 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0
Post image

New glasses ordered. Getting old & living with #multiplesclerosis that affects your eyes is expensive!
๐Ÿคฃ
Look how happy I am spending so much! ๐Ÿคฃ๐Ÿคฃ

04.01.2025 14:17 โ€” ๐Ÿ‘ 8    ๐Ÿ” 0    ๐Ÿ’ฌ 6    ๐Ÿ“Œ 0
Post image

First Saturday of the new year and usual supermarket car park with a coffee.

Hope you're all enjoying your weekend and if you live with ##multiplesclerosis, that it's behaving.

04.01.2025 14:13 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image Post image Post image Post image

Few from Castle Howard yesterday. The place was an Alice in Wonderland theme.

04.01.2025 11:20 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Happy New Year Dale.

01.01.2025 20:48 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

Completely true... followed by walking around the house, trying to measure up the bruises against the furniture! #multiplesclerosis

01.01.2025 09:09 โ€” ๐Ÿ‘ 7    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Post image

Happy New Year to all our family and friends.

31.12.2024 16:06 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

@griffax is following 19 prominent accounts