COSMOS MS

It's so great to be working with such a great group of people with lived experience to help shape our digital solutions for psychological distress in MS! 🎉 Thank you @sdkm.bsky.social!!

20.06.2025 10:10 — 👍 1    🔁 0    💬 0    📌 0

Our researcher Jeni will be sharing her latest work on mHealth app use in adults with long-term conditions at the Midlands Health Psych Conference on May 20th.

Don’t miss it—grab your tickets below!
🎟️ f.mtr.cool/tbvntqqauj
#HealthPsych #mHealth

08.05.2025 14:26 — 👍 3    🔁 0    💬 0    📌 0

Participants needed 📣✨

We're developing a digital support tool for people living with MS experiencing sexual difficulties.

Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers!

shorturl.at/bMjEz

Your input makes a difference 💜

04.05.2025 14:20 — 👍 1    🔁 1    💬 0    📌 0

Intimacy changes after an MS diagnosis - and it's time we talked about it. 🗣️

Listen to Tony's experience with MS and intimacy below 💜

04.05.2025 14:19 — 👍 1    🔁 0    💬 0    📌 0

This MS Awareness Week, we're opening up about something rarely discussed - sexual difficulties.

MS can affect intimacy in ways that are physical, emotional, and deeply personal.

But silence only adds to struggle. It's time to talk openly and support each other 💜

04.05.2025 14:18 — 👍 2    🔁 0    💬 0    📌 0

01.05.2025 10:53 — 👍 4    🔁 0    💬 0    📌 0

Claire shares a powerful reminder:
“When we understand what can’t be seen, the more empathy we can create and support people living with MS.”

MS pain and other invisible symptoms are real—even if you can’t see them. Let’s listen, learn, and support. 💙 #MultipleSclerosis #MSAwareness

01.05.2025 10:53 — 👍 4    🔁 0    💬 1    📌 0

MS pain is real — even if you can’t see it. Join the conversation and help us make invisible symptoms visible! 🧡
#MSAwarenessWeek #MSPain #InvisibleSymptoms #MSResearch

30.04.2025 09:17 — 👍 4    🔁 0    💬 0    📌 0

Coming to terms with an MS diagnosis can be challenging. Fiona shares her experiences with anxiety and MS, especially at the beginning of her diagnosis. #MSAwareness

29.04.2025 08:38 — 👍 2    🔁 0    💬 0    📌 0

MS doesn’t just affect the body — it can impact mental health too. This MS Awareness Week, we’re talking about it.

Watch the video and join the conversation. #MSAwareness"

28.04.2025 10:32 — 👍 4    🔁 1    💬 0    📌 0

Participants needed 📣✨

We're developing a digital support tool for people living with MS experiencing sexual difficulties.

Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers!

shorturl.at/bMjEz

Your input makes a difference 💙

15.04.2025 13:18 — 👍 4    🔁 1    💬 0    📌 0

Sexual difficulties can be part of life with MS, impacting intimacy and emotional well-being.

Our upcoming app aims to help you navigate these challenges and reclaim confidence on your terms.

Stay tuned! 🧡 #multiplesclerosis

14.04.2025 16:05 — 👍 4    🔁 1    💬 0    📌 0

🚀 Introducing Our Apps! 📱✨ 2/3

Understanding pain is the first step toward managing it.

See how our app could help you change your relationship with pain, and move toward a meaningful life.

Stay tuned! 🧡

28.03.2025 17:20 — 👍 10    🔁 3    💬 1    📌 0

Meet our apps! The first is for psychological distress. I'm Alex. I have MS and I'll share how this app may help us.

I have been experiencing low mood and anxiety related to my MS. Therapy is very helpful but I waited a long time to be seen and my MS means I can't always travel long distances.

I learnt that 1 in 3 people living with MS also experience psychological distress. That's why an app to support adjusting to living with MS can be helpful! It has on-demand access, no time limit and it's developed with feedback from people living with MS

🚀 Introducing Our Apps! 📱✨ 1/3

Alex experiences psychological distress related to his MS symptoms, and this new app is here to help.

See how it could make a difference for you too! 💙

26.03.2025 10:43 — 👍 4    🔁 2    💬 0    📌 1

📢 Meet the Research Team! 🚀

Behind every great project is a team of passionate minds making a difference! 💡💙

Meet the researchers developing app-based interventions for Multiple Sclerosis (MS)

Stay tuned for updates, insights, and impact! 👩‍🔬👨‍💻🧑🏾‍⚕️

#MSResearch #DigitalHealth

21.03.2025 12:00 — 👍 6    🔁 2    💬 1    📌 1

🔔 Stay Tuned 🔔

We’re developing a mobile health app for people living with Multiple Sclerosis—built on real experiences, real needs, and real impact. 💡🧡

Follow us for updates as we move from research to reality! 📱✨

@kingsioppn.bsky.social @mssocietyuk.bsky.social

#MultipleSclerosis #Research

19.03.2025 09:58 — 👍 7    🔁 2    💬 0    📌 2