Amy Ginsburg

No kings

There had to be 1000 people at my suburban Maryland No Kings protest, 3 times as many people in June. Maybe our democracy still has a chance to survive.

You know, having ovarian cancer would be easier (though not easy) if there weren't petty problems with paperwork, like a CT scan order being sent and received and processed properly. #cancer #cansky

From Star Trek The Drumhead

I don't post often these days, but it's Ovarian Cancer Awareness Month. (I was diagnosed with Stage 1 Ovarian Cancer 3 years ago & it recurred a year ago. Thanks to chemo & Lynparza, my nodules are now "too small to measure" so I'm doing well.) If you have these symptoms, see your doctor. #cansky

Clinical trials and research training stalled as billions in NIH funds sit idle Billions in NIH research funds remain unspent, stalling clinical trials, halting grants, and disrupting training for future scientists.

New report from AAMC about clinical trials, other grants, and training

www.aamc.org/about-us/mis...

I'm good. Hope you are well and that the writing goes equally well.

My CA125 (a ovarian cancer marker) has risen 50% - whether due to disease progression or intestinal inflammation from Lynparza side effects is the big question. Until blood work and a CT scan in 2 weeks, like Schrodingers cat, I both do and do not have disease progression. Waiting sucks. #cancer

No kings protesters

No kings protesters

#nokings in North Bethesda, Md

As someone with an ovarian cancer recurrence, I want to thank you for speaking the truth about Trump's devastating cuts to science and research. Goodbye cure, hello death.

Live Updates: Trump to Send National Guard to L.A. to Quell Immigration Protests

And so starts the civil war. Or at least a war on our civil rights. www.nytimes.com/live/2025/06...

National Cancer Survivors Day, June 1, 2025

Roughly 1 in 20 Americans living today is a cancer survivor, and roughly 40% of us will get a cancer diagnosis at some point.
Today, June 1, is National Cancer Survivors Day #NCSD2025, a reminder of how essential it is that we continue and extend the work of #CancerResearch!

Not good. Not good at all

Behind the Curtain: Top AI CEO foresees white-collar bloodbath Hardly anyone is paying attention.

"Cancer is cured, the economy grows at 10% a year, the budget is balanced — and 20% of people don't have jobs."

Interesting. @axios.com www.axios.com/2025/05/28/a...

Ovarian Cancer Market Projected to Reach USD 35.00 Billion by 2034, Growing at a CAGR of 24.1% Market Overview Polaris Market Research’s latest research report, titled Ovarian Cancer Market, offers a comprehensive and data-driven analysis of the mar

As someone with advanced ovarian cancer, it is slightly horrifying to have one's lethal disease quantified as a market. Then again, a larger market probably equals more chances of a cure.
#cansky #cancersky #cancer #ovariancancee

linkewire.com/2025/05/26/o...

Woman’s life-saving treatment delayed by Trump cuts to NIH: ‘Cancer shouldn’t be political’ Natalie Phelps, who has stage 4 colorectal cancer, has raised the alarm over how patients in the agency’s clinical trials are facing setbacks in treatment

Woman’s life-saving treatment delayed by Trump cuts to NIH: ‘Cancer shouldn’t be political’

A 43-year-old woman and mother of two with advanced cancer is experiencing life-or-death delays in treatment because of the Trump administration’s cuts to the National Institutes of Health (NIH).

The New Wilderness

The New Wilderness is an interesting take on a bleak future where living off the land is one of the few viable options left in a polluted, dire America.

#booksky #bookreview #novels #dystopianfiction

‼️ ATTENTION SENIORS

REPUBLICANS are gonna CUT $500 billion from MEDICARE

Yup, Republicans' "Big Bill" has a hidden poison pill in it that triggers half a trillion dollars in CUTS TO MEDICARE

Call your Representative and Senators and demand they remove the Medicare poison pill (202) 224-3121

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Well, that sucks. I would have loved a next-generation treatment for my ovarian cancer.

NIH funding cuts put current and future cancer patients at risk Cancer remains the second-leading cause of death in the U.S.

The Democratic staff's analysis also reported a 31% decline in cancer research grant funding in the first three months of 2025, compared to the same timeframe in the previous year.

www.axios.com/2025/05/19/n...

The Frozen River

In The Frozen River, a strong, tenacious woman provides fascinating insights into life in early American history. Highly recommend.

#booksky #bookreview #readingcommunitt

Here’s what a GOP plan could mean for different Americans next year:

People making under $17,000 a year: lose an average of around $1,000.

People making between ~$17,000 and $51,000: lose an average of around $700.

People in the top 0.1%: gain an average of over $389,000.

Decided (with my doctor) to decrease my dose of Lynparza due to side effects that were compromising my ability to fully enjoy my life.

Of course, now I worry the dosage reduction might mean the drug's not as effective at preventing a second recurrence of my #ovariancancer. UGH!

#cancersky #cancer

Truth

Democrats need to be much better marketers. We're not the tax and spend party, Republicans are. They don't care about deficit, but Dems actually do something about it.

Democrats need to get so much better at marketing.

Beautyland

Beautyland - what a gorgeous story. It's the rare author who can turn mundane observations into heart-wrenching and profound revelations.

#booksky #bookreview #readingcommunity #fiction

They are such idiots .

Today we recognize World Ovarian Cancer Day – @ovariancanceruk.bsky.social @ovacome.bsky.social

A time to raise awareness of one of the most challenging cancers to detect early.

💚 Let's talk about risks, symptoms, diagnosis, and myths – because knowledge saves lives.