https://TheRDDR.org
RDDR is an invaluable resource dedicated to the storage, organization, and dissemination of rare disease research datasets.
RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions.
https://tinyurl.com/rdndkcl
An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
SRF, est 2018, exists to improve the quality of life of SynGAP patients through the research and development.
Official Blue Sky account of Jane Coffin Childs Memorial Fund. Follow for updates on JCC fellows, alumni, and scientific board members.
jccfund.org
We’re the world's leading independent cancer charity dedicated to saving lives through research, influence and information.
linktr.ee/cr_uk
Supporting people to live, love, thrive and belong for 225 years.
https://www.seeability.org/
#WeSeeAbility
We create digital services that break down barriers to democratic participation, equipping people to take action and drive meaningful change. Subscribe to our updates at http://eepurl.com/gOEVFj
UK charity. Supporting charities and social impact organisations to harness the full power of digital - and working with funders & partners to create an environment of support. www.wearecast.org.uk
We’re the Royal National Institute of Blind People.
Profile pic: Our logo, bold black capital letters spelling RNIB, with a bold pink underline.
Digital Impact Consultant. Helps charities with digital comms, content strategy and other things that follow. One half of @RadioLento.
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
