Alexandra Power-Hays, MD

A novel mouse model of hemoglobin SC disease reveals mechanisms underlying beneficial effects of hydroxyurea - PubMed Sickle cell hemoglobin C (HbSC) disease results from compound heterozygosity of hemoglobin S (HbS) and hemoglobin C (HbC), comprising 30% of sickle cell disease (SCD). HbC induces red blood cell (RBC)...

75 years after the discovery of HbSC type #SickleCellDisease, the field finally has a mouse model to advance care for millions of people with this disease around the world

Very proud to be a part of the @cincychildrenscbdi.bsky.social #sicklecell center

pubmed.ncbi.nlm.nih.gov/40324066/

Great study!

Does anyone out there have any recommendations on a good course for the mandatory 8 hour DEA training for license renewal? Ideally a course that will help me to take better care of people in pain #meded #chronicpain #sicklecell

One step forward, no steps backwards

Now more than ever, we need good institutional and interpersonal leadership to avoid back sliding for #sicklecellwarriors and equitable care for all patients

This is a pep talk to myself as much as to the rest of us

#notgoingback www.nejm.org/doi/full/10....

Take care of my family, friends, patients, and colleagues. Focusing on my microcosm

I'd also like to ensure my spending is going towards companies I agree with, so open to any lists/suggestions

Cincinnati Children’s National Academy of Medicine Contributions Change the Outcome - Research Horizons Leaders at Cincinnati Children’s have been involved with the National Academies since 1951, and their contributions continue to change the outcome.

scienceblog.cincinnatichildrens.org/cincinnati-c...

Sickle Cell Disease in Social Security Disability Evaluations | National Academies Learn more from the National Academies of Sciences, Engineering, and Medicine

Heading to Washington DC today for our 1st in-person committee meeting at the National Academies of Science to evaluate #SickleCellDisease & Social Security Disability

Ready to advocate for fairness and transparency #MLKDay2025

www.nationalacademies.org/our-work/sic...

So real!

I’ve cared for infants who stopped breathing w/ pertussis.

School aged kids who died of flu or COVID.

And many of my patients can’t be vaccinated because they’re on chemotherapy or are immune compromised.

Vaccinations save lives of those who get them & those who cannot.

It’s that simple.

Oh no! Do you need help wrapping it?? (Learned over many years as a gymnast and then gymnastics coach)

Bleeding and Clotting
Platelets and Proteins Swirling
Hemostasis Dance
#ASH24 #ASHaiku #HemeSky

You're my SHEro

This is great! Hopefully will be like the early days of med twitter where people would share their work and have exciting discussions in the comments. Let's go #medsky #hemesky

CMS is considering the adoption of ASH’s quality measure assessing timely pain treatment in the ED for patients w/ #SickleCell. Comment to support inclusion in the Hospital Outpatient & Rural Emergency Hospital Quality Reporting Programs.

🔗 p4qm.org/media/3166

#Hematology #ConquerSCD #HemeSky

Let's add @ash-hematology.bsky.social if you can!

So glad to see you here, @ash-hematology.bsky.social! #hemesky

When high schoolers and college kids reach out, I say medicine is incredibly rewarding and a lot of work.

I also make sure they know there are many ways to work in the medical field besides doctor and nurse. A lot of people don't know about other jobs like PA, therapists, pharmacists, etc.

3rd principle #Kwanzaa: Ujima, we take care of our own

Grateful that our amazing community of leaders has decided to raise money and collect coats for our #sicklecellwarriors this year! 🙏🏽

Thank you! So glad to see you here. I hope you had a nice Thanksgiving and are staying warm!!!

👀

So glad you're over here!!

So important! I was nominated to join the #sicklecell committee, asking a similar question. I'm very interested to see what the NASEM process will be like and looking forward to contributing fairly and advocating for our warriors. I'll look out for your posts!

I haven't deleted yet... lingering.

You were one of the first accounts I interacted with when I first joined at the end of residency!! Glad we can reconnect here

Oops, looks like you did. Thank you!

Excellent! Please add me

Thank you @DorisDukeFdn for this beautifully written article and for supporting the care of children with #sicklecell globally

I'm honored to be a part of the team. Let's do this!
ddcf.org/news--insigh... #sicklecellmatters #conquerSCD #hydroxyurea #ADAPT🩸 #globalhealth

"The child who is not embraced by the village will burn it down to feel its warmth"

We had a great talk at our weekly #sicklecell meeting by one of our #socialworkers on trauma-informed care. I love this powerful African proverb she shared. Support and stability are crucial

My mom- a lovely Black woman in her goldengirl years- is volunteering today as a poll worker in Florida

I'm so proud of her, but sadly I'm also pretty nervous for her safety. This is America.

Send good vibes, and thank a poll worker if you're voting in-person today!

My first #NIHLRP payment just came through! Pediatric hematology isn't a field you go into for the money. We get toddler drawings, teen fist bumps, and parent hugs 🥰

So I'm grateful for this loan repayment support while I research ways to help more #sicklecellwarriors

This article is also a little extra special because my mom, Doctor of #PhysicalTherapy, gave us some feedback and insight 🥰