@bethmazur.bsky.social
#pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
“1,374 Days: My Life With Long Covid”
This is a stunning and insightful article by an info designer who provides a harrowing account of their journey with long Covid & how it turned their life upside down.
Highlights in thread below, but worth reading in its entirety for the data-driven visuals 🧵
Heading states: Science article writing application form Underneath, it reads: #MEAction is hiring for short-term work in scientific writing. This seasonal position is just for the month of December and part of January. We are looking for people with a background in scientific writing. This application requires a CV and a writing sample. Ready?
Are you a science writer? Are you familiar with ME/CFS? Are you looking to make extra holiday funds?
#MEAction is looking to hire some folks for short-term work to spruce up existing articles and add new sources!
HMU: forms.gle/SmWo3ezaGkdp...
Screenshot of abstract
New from Latvia:
Exploring the Joint Potential of Inflammation, Immunity, and Receptor-Based Biomarkers for Evaluating ME/CFS Progression
Only abstract currently available:
www.frontiersin.org/articles/10....
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
This Giving Tuesday, I hope you will consider #MEAction!
We fight every day for people with ME/CFS & Long COVID. With your help, we can continue our inside-outside advocacy. Join us as we protest, advocate, then roll up our sleeves to directly improve research & clinical care.
meaction.net/donate
Graphic highlighting the multi-systemic nature of post-exertional malaise, that it triggers symptoms in the sensory, autonomic, cognitive, pain, immune, neuromuscular, energy & metabolic systems, and that PEM is not fatigue or deconditioning.
Excellent new #mecfs paper by Mayo Clinic & #MEAction. Includes this brilliant graphic, which clearly shows that PEM is not just fatigue. Well done, Jaime! @exceedhergrasp1.bsky.social
www.mayoclinicproceedings.org/article/S002...
Congratulations Jaime!
04.10.2023 00:23 — 👍 1 🔁 0 💬 0 📌 0Our paper has been published in Mayo Clinic Proceedings! This is a Concise Clinical Review, meaning it MUST be short, with a limited number of pages and citations. Drs. Grach, Ganesh, and Chon and I worked very hard to pare it down to the essentials. www.mayoclinicproceedings.org/article/S002...
03.10.2023 23:07 — 👍 130 🔁 52 💬 15 📌 7
