Emily Shah

1/Great to be on Bluesky- to get started here’s a mega thread on what I know about #FND and how to have the best chance of beating it. It's just my personal view- so not set in stone - I hope people will find it helpful.

It Doesn’t Define Us, but It’s a Part of Us MeSsy with Christina Applegate & Jamie-Lynn Sigler · Episode

What a provocative and powerful phrase to flip that narrative and invite some curiosity about what it would be like to show love for those parts of yourself.

31:51 for the full letter open.spotify.com/episode/6GoowqxtpKuOZorfuu5XQ5?si=ntbSfDZtQkW6vxov9x22sQ&t=1852

"I made this pact a while ago that because #MS is a part of me I will love it, because I have to love myself"

Sandra in Australia, I can't get your words out of my mind 🧡

I see so many ppl struggle with the "warrior" mentality...pushing through, feeling a burden, highly self-critical...

'Brain rot' named Oxford Word of the Year 2024 - Oxford University Press After more than 37,000 votes on our shortlist, we're pleased to announce that the Oxford Word of the Year for 2024 is 'brain rot'.

"Subjective cognitive impairment: When the Brain Rot sets in" 😂 Who's going to write it?

corp.oup.com/news/brain-r...

Word of the day is a favourite, from old Scots.

To ‘tartle’ is to hesitate while introducing someone because you have completely forgotten their name.

Absolutely - such an important goal for many people!

A procedure for predicting, illustrating, communicating, and optimizing patient-centered outcomes of epilepsy surgery using nomograms and Bayes’ theorem Clinicians have an ethical obligation to obtain and convey relevant information about possible treatment outcomes in a manner that can be comprehended…

Lots to be done in expanding this work to cover the issues that matter most to people with epilepsy!

www.sciencedirect.com/science/article/pii/S1525505023000069#b0275

- Better work situation
- Driving
- Independence
- Socialising
- Not needing supervision
- Self-confidence
- Not feeling washed out
- Feeling safer etc

I love that this paper points us to using those same principles to help answer questions like "Will I be able to work after surgery?".

Predictive models are a great tool for advising people with #epilepsy about their individualised risks around surgery BUT we tend to approach this from a clinician-centred perspective, focusing on cognition.

What patients say matters most (outside of seizure freedom/reduction):

Question for my #neuropsychology colleagues. Do you prefer using regression-based demographic norms over traditional (e.g., age-stratified) norms? What are your reasons for favoring one over the other?

I love this paper. Lots of exciting food for thought!

Thanks for sharing. This is something which I've been wanting to incorporate more into my practice and this lays the options out so clearly.

Thanks for the perfect #neuronerd Thanksgiving lesson! Don’t forget to sing along with this “intensive” musical adventure www.youtube.com/watch?v=sAFa... @daiwaiolson.bsky.social

As disabled people, we are worth more than our economic productivity. Access to therapy and healthcare should never depend differentially on our participation in work programmes or being deemed 'work-ready.' Care is a right, not a reward. #WhitePaper #GetBritainWorking

Home · Navigating Neuropsychology Welcome to NavNeuro, the podcast where we present cutting-edge scientific findings, discuss important topic areas, and interview experts in the field.

This one's pretty in-depth so probably more for those working clinically already. Love the opportunity to do deep dive into an area I'm less familiar with and brush up my knowledge.

www.navneuro.com/

Movers and Shakers | A podcast about life with Parkinson's Movers and Shakers finds six friends – Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman – gathered in a Notting Hill pub to discuss the...

A group of friends, in the pub, chatting about their life with #Parkinson's. It's definitely taught me lots about the everyday realities of the condition.

www.moversandshakerspodcast.com/

The Neuro Clinic Voices of the Clinical Neuropsychology Community

This is a great one that I recommend to any assistant or trainee psychologists. A really accessible introduction to a wide range of topics that gives a great peak into the many varied roles of a neuropsychologist.

theneuroclinic.buzzsprout.com

MeSsy

Two friends discussing their different journeys with #MS. Yep, it's a bit 'woo-woo' at times but I'm also just blown away by their courage in being so down-to-earth, real, and honest. So many useful reflections for anyone living with a chronic illness.

www.messythepodcast.com/

Here's a few #neuropsychology podcasts that I've been enjoying. Let me know if you have any more recommendations (neuropsych or otherwise)!

Thanks for that work. A really helpful paper.

I've found getting avulux glasses really helpful for taking the edge off my photosensitivity. They're not cheap though. FL-41s were also good and not quite as costly. Both were much better than standard sunglasses for me.

Wow, what a fantastic resource! I think the most engaging neuroanatomy tool from my student days was The Human Brain Colouring book...doesn't quite match the production value on offer here! 😅

Brill thanks for getting that going. I'd love an add 👍🏼

Looking forward to digging into this later. There's so much momentum building in clinical and research worlds to improving what we can offer people living with #FND. Very much needed.