ERN-EuroBloodNet aims to improve healthcare and quality of life of patients with Rare Hematological Diseases.
Funded by the European Union.
The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
An alliance of non-profit organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe.
🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education
📌 Visit us: www.vascern.eu
Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
🔗 erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
News and information from the European Commission. Social media and data protection policy: http://europa.eu/!MnfFmT
The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us 🔗 https://metab.ern-net.eu/
To improve the accessibility of the ERNs for patients across Europe, the EU has funded a pioneering 3-year project involving all member states (MS) plus Norway and Ukraine, the Joint Action on Integration of ERNs into National Healthcare Systems (‘JARDIN’)
ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org
official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app
