NEC Society

Support the NEC Family Summit: anfubpkl.donorsupport.co/page/Patient...

We’re raising funds to host the world’s first in-person Family NEC Summit — a dedicated space for families to connect, learn, and move our mission forward together.

🩵 Support the NEC Family Summit and help us reach the full potential of the generous $10,000 match this #GivingTuesday!

We work tirelessly to give our community the tools, platforms, and resources needed to build a world without necrotizing enterocolitis (NEC).

Now, we are working to bring families together in a new way.

🩵 Donations made to the NEC Society on #GivingTuesday will be matched, up to $10,000, by a pediatric surgeon who wishes to remain anonymous.

Join us in building a world without necrotizing enterocolitis (NEC), and join the NEC Registry at NECsociety.org/NEC-Registry

The NEC Registry brings the NEC community together and collects patient-driven data to help clinicians, scientists, and patient-families better understand and hashtag#preventNEC

This is a powerful opportunity for individuals and families affected by NEC to contribute directly to research that will help us understand this devastating disease.

Let’s drive NEC research with the NEC Registry!🩵

The NEC Registry is a platform for patient-families to share their experiences with the disease.

Grateful to the UC Irvine team for an inspiring day at the SoCal Small Baby Consortium! Our founder/executive director, Jennifer Canvasser, presented on how to engage families in NICU care, optimize the use of breastmilk to help #preventNEC, and improve long-term outcomes.

Join us: NECsociety.org

The Executive Summary highlights:

➡️ Key insights, action items, and takeaways from every session and breakout track
➡️ Advocacy, Care, and Research Awards
➡️ Faculty list and poster session details

Download the report and learn more at NECsociety.org/NEC-Symposium

Check out the Executive Summary from #NECchicago!

The NEC Symposium in Chicago was the world’s largest meeting dedicated to NEC. More than 250 clinicians, scientists, and patient-family leaders from around the globe came together to accelerate ways to treat and #preventNEC.

The NEC Registry brings the NEC community together and collects patient-driven data to advance better care and research.

Whether you are an adult survivor of NEC or the parent/caregiver of a child diagnosed with NEC, we encourage you to join the NEC Registry at NECsociety.org/nec-registry/

Patient-families affected by NEC are invited to join the NEC Registry!

Created by the NEC Society with NORD’s IAMRARE®, the NEC Registry is a platform for patient-families to share their experiences with NEC, from diagnosis to the long-term physical, social, and emotional impacts of the disease.

Join us in wishing Dr. Besner congratulations. With her guidance and support, the NEC Society is working tirelessly to #preventNEC and optimize care for all babies.

Get involved at NECsociety.org

NAM recognizes Dr. Besner for her dedication to improving the lives of babies affected by necrotizing enterocolitis (NEC). Her dream is to never again have to operate on a baby with NEC.

Election to the National Academy of Medicine is one of the top honors in health and medicine and recognizes individuals who have demonstrated outstanding professional achievement and commitment to service.

Dr. Gail Besner, Chief of Pediatric Surgery at @nationwidekids.bsky.social and scientific advisor to the NEC Society, has been elected to the prestigious National Academy of Medicine (NAM)!

From participating in the Patient Ambassador Workshop to listening to sessions on incorporating patient-centered outcomes in research, we’re leaving inspired and energized.

Join us in building a world without necrotizing enterocolitis (NEC) at NECsociety.org

The NEC Society has received three PCORI Engagement Awards, which helped fund the 2017 and 2019 NEC Symposia and supported the two-year project that led to the NEC Research Priorities — 20 research topics that matter most to families and clinician-scientists.

We're in DC for the Patient-Centered Outcomes Research Institute’s annual meeting!

PCORI funds research that meaningfully includes patients, families, and caregivers as partners throughout the research process. #PCORI2025

NEC Symposium, Chicago, September 7-10, 2025 The NEC Symposium in Chicago was the largest meeting dedicated to necrotizing enterocolitis (NEC) to date. It brought together more than 250 multidisciplinary participants…

We’re filled with hope and gratitude for every person who has joined us in building a world without NEC.

Let's keep the momentum going!

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Together, researchers, clinicians, patient-families, and advocates united to advance innovative strategies to better understand, diagnose, treat, and #preventNEC.

With 20 educational sessions, #NECchicago created a transformative space for learning, connection, and collaboration.

✨🩵 The NEC Symposium in Chicago was the largest gathering ever dedicated to necrotizing enterocolitis (NEC) — bringing together 250+ multidisciplinary participants from 10 countries and 35+ U.S. states!

Together, we’ve built an incredible, global community that is united in our vision of a world without NEC!

✨Get involved at NECsociety.com

Each smile, connection, and conversation reflects the heart of this meeting: collaboration, belonging, and a shared commitment to creating a future where no baby or family experiences the devastation of NEC.

🩵 These powerful photos from #NECchicago show the why behind our tireless work — clinicians, scientists, and patient-families coming together, sharing strategies, stories, and hope that fuel our mission to #preventNEC

What is NEC - NEC Society What is NEC? Necrotizing enterocolitis (NEC) is a devastating neonatal intestinal disease that can affect premature and medically fragile infants. Teddy Understanding Necrotizing Enterocolitis Necroti...

We are working tirelessly to #preventNEC and build a world without this devastating disease.

Learn more & join us at NECsociety.org/what-is-NEC

Parents are their baby’s voice in the NICU and need to be empowered with information to advocate for their child.

Help us encourage all NICUs to share these resources so families never experience the trauma of NEC alone.

The NEC Society is proud to collaborate with the @neoconsortium.bsky.social NEC Focus Group to share resources on NEC for NICU families and families impacted by NEC. These resources empower families with information to help #preventNEC and guide families who experience the trauma of a NEC diagnosis.

The NEC Symposium in Chicago was the world’s largest and most impactful gathering dedicated to NEC—because of YOU 🩵

✨ Let’s keep the momentum going: NECsociety.org/get-involved

#NECchicago #NECawareness #preventNEC