Pain and Intellectual and Developmental Disabilities Group

Postsurgical tactile-evoked pain: a role for brain-derived... : PAIN Reports and central pain circuits have been studied, but the peripheral tactile drive has not been explored. Objective: Investigate the innervation of the skin in the rat plantar hindpaw skin–muscle incision model. Results: Incision increased epidermal thickness and cell layers and reduced intraepidermal nerve fibre density, identified with PGP9.5 immunostaining. Strikingly, Collagen IV immunostaining revealed the development of dermal protrusions, oriented towards the incision site, that w...

🧠 Surgery can trigger new tactile corpuscles near incision—linked to postsurgical pain via BDNF-TrkB signaling.
⚠️ This matters, people with dev disabilities often face multiple surgeries in their life.

#PainResearch #DisabilityHealth #Allodynia
https://loom.ly/Sl31New

🚨 New review: Malnutrition drives complications in pediatric hip & spine surgery.
ERAS protocols + nutrition may improve outcomes.
BMI > lab tests for risk prediction.
#PedsOrtho #Nutrition #ERAS #CerebralPalsy #Scoliosis
https://loom.ly/Cww780Q

We hope to see you in Bangkok this year!

International Association for the Study of Pain: Pain in Intellectual and Developmental Disabilities Special Interest Group Student & Early Career Presenters – Data Blitz and Business Meeting Link to register for the webinar and business meeting

🎓✨ Join us for a Student Data Blitz
📊 Rapid-fire presentations by emerging scholars, followed by our SIG business meeting.
Don’t miss this chance to connect, learn, and shape future research
#PainIDD #StudentResearch #Neurodiversity #DataBlitz

https://loom.ly/YTriY04

What puts children at risk for intellectual disability?
Research summerizing 58 studies highlights low SES, minority ethnicity, teenage motherhood, maternal mental illness & alcohol use. Early interventions could make a difference. #ChildDevelopment
https://loom.ly/-06u7xY

New Core Outcome Set for Chronic Pain in CP: 20 validated tools to assess pain interference and emotional impact in children with cerebral palsy.

#CerebralPalsy #PainAssessment #ClinicalResearch #PatientCenteredCare #ICFFramework
https://loom.ly/bihVhxY

Chronic Physical Pain in Children With and Without Autism Spectrum Disorder in the United States: Findings from the 2016 – 2021 National Survey of Children’s Health - Journal of Autism and Developmental Disorders Individuals with autism spectrum disorder (ASD) have long been reported to exhibit atypical pain experiences. Chronic physical pain is a significant comorbidity in ASD, leading to substantial burdens on daily functioning and quality of life. This study aims to examine the potential associations between ASD and chronic physical pain, including its specific types. The study used data on chronic physical pain and headaches from the 2016 – 2021 National Survey of Children’s Health. Participants w...

Chronic pain is a significant issue for children with autism spectrum disorder (ASD). Research shows that, among over 177,000 children, those with ASD experience more pain, particularly headaches, compared to their peers.
https://loom.ly/fg-0fB8

Are you or someone you know using a feeding tube? Share your thoughts in a short survey to influence important research! You can help kids recover faster after surgery! Join us at https://redcap.link/tubefeed to take part. No surgical experience required! #FeedingTube #HealthResearch #KidsHealth

Pain Management in the Most Vulnerable Intellectual Disability: A Review - Pain and Therapy This review is made up of two parts; the first part discussing intellectual disability (ID) in general, while the second part covers the pain associated with intellectual disability and the challenges and practical tips for the management of pain associated with (ID). Intellectual disability is characterized by deficits in general mental abilities, such as reasoning, problem solving, planning, abstract thinking, judgment, academic learning, and learning from experience. ID is a disorder with ...

@SalahElTallawy authored a great review of the state of the field of pain in individuals with intellectual disabilities if you're looking for an update! #Pain #DisabilityAwareness https://loom.ly/RYQ27Eg.

“Hanging on by a Thread”: The Lived Experience of Parents of Children with Medical Complexity Background: Families with children with medical complexity endure high levels of chronic and toxic stress, impacting the overall health and wellbeing of all family members and the system as a whole. The purpose of this study was to examine the lived ...

"Hanging on by a Thread" Parenting kids with complex medical needs brings extraordinary challenges and remarkable strength. Healthcare professionals can make a difference by understanding the holistic needs of every family member. #FamilyCare
https://loom.ly/BKqOpiU.

Our PIDDSIG leadership was honored to connect with community members at the University of Glasgow, such as nurses, parents, and therapists, addressing crucial subjects like #PainAwareness, assessment, and treatment for those with Neurodevelopmental Disabilities. #CommunityEngagement #HealthCare

#ISPP2025 in Glasgow provided great opportunities to advance collaborations and share science in #Pain and #neurodivergence.

Got 2.5 minutes? Yes you do! This thought provoking silent video will change the way you think about pain in those that cannot tell you about the pain they feel. #PainAwareness #DisabilityAwareness
https://loom.ly/ygpBXak

#ISPP2025 will have great representation of pain in children and young people with #neurodevelopmental disabilities. Let us know if you'll be there! #InclusionMatters @iasp.bsky.social

28 May Webinar

Register for the 28 May PIDDSIG webinar: Advances in the Understanding and Assessment of Chronic Pain in Children and Young People with Cerebral Palsy for updated information on this chronic pain condition. bit.ly/4d95Mtr

Register now for our May 28th webinar: “Advances in the Understanding and Assessment of Chronic Pain in Children and Young People with Cerebral Palsy.” bit.ly/4d95Mtr

Development of clinical guidelines for neonates with #neuroirritability developed at Connecticut Children’s and shared at #USASP2025

Incredible work going on @ University of Florida in brain structure, function, pain, and Autism! #USASP2025

PIDDSIG officer @CCBurkitt presented poster on novel surgical #pain profiles and rates of chronic postsurgical pain in #CerebralPalsy at #USASP2025

#PainInterference moderates pain #catastrophizing and #nutrition in this surgery study. Stay tuned for more great things from this student and this lab!
#USASP2025

We enjoyed seeing a busy lunch crowd today at #USASP2025 and lots of great science being shared in beautiful Chicago!

Prevalence and Early Identification of Autism Spectrum ... This report describes autism spectrum disorder prevalence and early identifications patterns among children aged 4 and 8 years old.

Increased prevalence of Autism just released by CDC underscores increased need for diagnostic, treatment, and support services.

www.cdc.gov/mmwr/volumes...

Apr 2025 Cover

The April 2025 issue of #PAIN is out now! Catch up on the latest pain research at bit.ly/4frygyC

Preterm Sex Differences in Neurodevelopment and Brain Development from Early Life to 8 Years of Age To examine sex differences in neurodevelopmental outcomes and brain development from early life to 8 years in males and females born preterm.This was …

Early brain injury & #PAIN can effect boys and girls differently, highlighting the need for sex-specific care in the #NICU and beyond.
#Neonatology #BrainDevelopment #Pediatrics #PretermBirth #Neurodevelopment #ChildHealth
www.sciencedirect.com/science/arti...

The effects of autistic traits in adolescents on the efficacy of paediatric Intensive Interdisciplinary Pain Treatment (IIPT) Autistic adolescents are at greater risk of chronic pain, but it is unclear how autistic features may relate to individual aspects of chronic pain. As…

This study highlights that pain rehabilitation programs can be effective for all adolescents, regardless of autistic traits! #chronicpain #autismawareness www.sciencedirect.com/science/arti...

Applications for the 2025 USASP-MAYDAY Award are open. Please see below for application information! #Science #ChronicPain

The Healthcare Experience of Autistic Patients in Orthopaedic Surgery: A Survey Study of Autistic Patients’ Parents, Caregivers, and Orthopaedic Providers Autistic patients can have different communication and sensory needs, potentially making orthopaedic visits stressful. This study evaluated which fact…

🧩 Improving Orthopaedic Visits for Autistic Patients 🧩
A recent study highlights how sensory challenges like loud noises and blood draws can make orthopaedic visits stressful for autistic patients.🌟 #AutismAwareness #PatientCare #InclusiveHealthcare
www.sciencedirect.com/science/arti...

Pain in adults with cerebral palsy: A systematic review Aim To describe the prevalence and incidence of pain, identify prognostic factors for pain, determine psychometric properties of tools to assess pain, and evaluate effectiveness of interventions for...

Just published by Ryan et al. Pain was present for 24% to 89% of adults with cerebral palsy (across studies) with prevalence of chronic pain ranging from 75 to 78%. Communication function, sex, and age were prognostic factors for pain prevalence.
onlinelibrary.wiley.com/doi/full/10....

A second dimension of somatosensory system injury? Thalamic volume loss and neuropathic pain in adults with cerebral palsy and periventricular white matter injury - PubMed Association with thalamic volume loss suggests that neuropathic pain in adults with CP may frequently be central neuropathic pain. Complementing assessments of white matter microstructure, regional br...

Neuropathic pain in adults with CP may frequently be central neuropathic pain. Participants with CP (n=6) had smaller posterior thalamic volumes and greater neuropathic pain. pubmed.ncbi.nlm.nih.gov/38746788/

NeuroPAIN app: Usefulness of a mobile pain application evaluation system for children with cerebral palsy Children with cerebral palsy (CP) can experience a substantial amount of pain. Effective pain management hinges on precise and prompt assessment. We d…

New study Feb 2025 Mobile pain app worked well for parents monitoring pain in their child with cerebral palsy --> possibly some reporting fatigue when children had a lot of pain.
www.sciencedirect.com/science/arti...