me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦

Scientists find link between genes and ME/ chronic fatigue syndrome Large study suggests people's genetics could 'tip the balance' on whether they would develop the illness.

Early findings from the world's largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. The discovery suggests that several variants of genes commonly found in the population raise the risk of developing the illness, though many people will carry the variants and never acquire it. Over 150,000 more people in England have ME than previously thought, study finds Read more Prof Chris Ponting, an investigator on the DecodeME study at the University of Edinburgh, called the results "a wake-up call" that showed a person's genetics could "tip the balance" on whether they would develop ME/CFS. "These provide the first robust evidence for genetic contributions to ME," Ponting said. "There are many genetic variants that apply across the genome that predispose

"This really adds validity and credibility for people with ME," said Sonya Chowdhury, chief executive of Action for ME and a DecodeME co-investigator. "We know that many people have experienced comments like 'ME is not real'. They've been to doctors and they've been disbelieved or told that it's not a real illness." Despite its long history, scientists understand very little about the causes of ME/CFS, though most patients report an infection before symptoms first appear. Typical symptoms include extreme tiredness, sleep problems, brain fog and a worsening of symptoms after physical or mental activities, known as post-exertional malaise, which can take weeks to recover from. It is estimated that 67 million people are affected by ME/CFS at an annual cost to the global economy of tens of billions of pounds. In the UK, the annual economic

Prof Anne McArdle, who studies ME/CFS at the University of Liverpool, said the results, which have not yet been published in a peer-reviewed journal, provided "a solid basis" for future work that would hopefully help accelerate the development of a treatment for the devastating illness. Di Beata Godlewska, who studies ME/CFS at the University of Oxford, recently used magnetic resonance spectroscopy to scan the brains of people with ME/CFS and long Covid. Those with ME/CFS but not long Covid had high levels of lactate in the anterior cingulate cortex, a brain region that integrates information about effort and emotion. This points to disrupted energy metabolism in the brain, and impaired mitochondria, the battery-like structures that provide energy inside cells. Godlewska said "It's a very sad fact that people with ME/CFS are still disbelieved and the disease has been so neglected, especially when it comes to research funding. Hopefully this study will come with a benefit of both fighting the stigma, and convincing research funders that this is a truly biological condition."

I couldn’t get the whole article screenshot and on here.

Yet more research proving #pwME/CFS have been right all this time and the medical, political and media worlds have been neglectful, now borderline abusing pwMECFS. ME/CFS is real, time stop the lies! apple.news/AZmeGOQTOQJi...

Without the cleaners, the CEO wouldn’t have a business.

Without unpaid carers, the Social Care system would collapse.

Without refuse collectors, your neighbourhood goes to shit.

Without nurses, HCAs, and porters, your surgeon can’t operate.

When children are starving to death, you do everything in your power to feed them.

It’s not complicated.

Feed starving kids. No matter what.

Is that with or without lube?

This really doesn’t surprise me. Saddens me and makes me roll my eyes, but no surprise.

* Mainly

My parents always used the old saying of ‘sticks and stone may break my bones, but words can never hurt me’. What an utter load of bs that is! I don’t have the scares from the physical injuries, but I sure as hell have them from the psychological ones. Manly from people who meant well.

@longcovidadvoc.com just wondering if you know whether there’s been an update from the ME association regarding Neil Riley? I left FB and IG a while ago and haven’t been able to find any updates.

And yes, this is a question I ask myself most days. Oh the joys of getting old.

She's not on your side.

If you're a student, a carer, a pensioner, a disabled person, a refugee, or a child
- or if you're sick, unemployed, or single

Don't expect any help from the Rachel Reeves.

She'd prefer you died.

Do I need the loo or is it just wind… ok I should have gone to the loo.

I’m really trying to put my shocked face on, but I just don’t seem to be able to manage it.

One Million Rising: Strategic Non-Cooperation to Fight Authoritarianism · No Kings Across the country, authoritarian forces are getting bolder and more dangerous. Trump and his allies are not hiding their agenda: mass deportations, rollbacks of civil rights, weaponized courts, and f...

Today I went to a reunion & told some of my old friends about #OneMillionRising. They hadn’t heard yet and were very interested.

PLEASE SPREAD THE WORD & SHARE.

We MUST organize locally. Learn HOW! Be supported! Build HOPE. I highly recommend this MOVEMENT.

www.mobilize.us/nokings/even...

If Reform ever get power we would be travelling down the Trump road.
I would hate our country to become the worlds target of derision like the USA has. I don't want a lying, racist, egotistical, self-enriching, Clueless, self promoting millionaire in charge of anything
Lets not copy USA

My wife is on strong immunosuppressive injections for RA, I am also immunocompromised due to chronic health issues. If we weren’t already home educating before covid we certainly would have started and kept him away from schools even now.

Infographic showing the responses to the question "Do you think the following should be nationalised and run in the public sector, or privatised and run by private companies?" Headline: Public ownership is popular Water - 82% Energy - 71% Buses - 66% NHS - 87% Rail - 76% Royal Mail - 75% Polling by YouGov, June 2024

Just your regular reminder that public ownership is hugely popular in the UK. ✅

Join the fight to take back control of our public services and run them for people not profit. 😀

Sign up to our newsletter. Link in comments 👇

And totally not surprising.

And will put people like my wife out of work, not help them in.

DWP change to Universal Credit and PIP 'will plunge 50,000 into poverty by 2030' The Department for Work and Pensions are set to plunge tens of thousands of disabled and chronically-ill claimants into poverty by the end of the decade - 2030

DWP change to Universal Credit and PIP could put 50,000 people into poverty.

1% have more wealth than 70% of the population combined.

The bottom 20% pay higher proportion of income in taxes than the richest 20%.

Tax the rich. Poverty is a political choice.

YouTube video by Peter Stefanovic Video emerges of Deputy PM,Defence Secretary & other Ministers BACKING compensation for Nuclear Vets

NOW 376 DAYS since our nuclear test veterans - national heroes in their eighties - requested a meeting with Prime Minister Keir Starmer to discuss how he will honour the commitment Labour made to their campaign for justice & compensation in opposition

youtu.be/hSQNLn2Ocr8?...

When time loses all meaning
& you are stuck in the void
it can be really hard to find your voice
Thanks Tom @tomkindlon.bsky.social for leaving a light on

#SevereME #SevereMEAwareness

2/2
all because arrogant medical professionals and other professionals refuse to acknowledge the wealth of research proving ME/CFS is a genuine medical condition, not lazyitis.

1/2
A mum in the UK has recently been arrested after her eldest daughter died of ME/CFS. Her younger daughter who also has ME/CFS is now in social care who don’t have a clue. ME/CFS patients are dying due to neglect by medical professionals. Many other families are ripped apart by social services,

Read a headline today about savings accounts for people over 50.
Our son looked at me and said “so for really old people!”.
Me: “well thanks!”.
Son: looks confused
Me: “I turned 52 two days ago”
Son: tumbleweed, trying to work out if he was in trouble, or to laugh while processing his dad is old. 😂

Incredible, isn't it. £37 billion goes missing, and nothing happens. £37 gets wrongly claimed on somebody's benefits, and the media are all over it like a nasty rash.

Tragically, he’s right.

We must never forget which politicians and journalists are responsible.

Petition: Ensure plurality of political coverage across UK broadcast media at all times We want to ensure that a plurality of views from all political parties in Westminster are represented and the nations parliaments are heard all year round, not just election times. The rules for cover...

We’re on 5.1k signatures & have six weeks to get it to 10k as a strength of feeling against what has become a propaganda-fest for Reform. If it’s a democracy we need to hear from ALL our parties. If everyone who has signed gets one more to sign we’ll do it. petition.parliament.uk/petitions/71...

Shell just gave £2.6 BILLION to shareholders - as your energy bills go up Fossil Free London took Shell to task in a protest - just as the fossil fuel giant beat profit expectations by around £400m

Shell just gave £2.6 BILLION to shareholders - as your energy bills go up

Fossil Free London took Shell to task in a protest - just as the fossil fuel giant beat profit expectations by around £400m.

Your bills are going up 6% in the next 12 months BTW.
www.thecanary.co/uk/news/2025...