Royal Free 1955

Forty-nine years ago today - 8th October 1976. The minutes from the third meeting of the Epidemic Neuromyasthenia (Myalgic Encephalomyelitis) Study Group. #myalgicencephalomyelitis #myalgice #mecfs

Simon Wessely's reply, two days later - 8th October 2003. #myalgicencephalomyelitis #mecfs #myalgice

COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years - npj Dementia npj Dementia - COVID-19 infection associated with increased risk of new-onset vascular dementia in adults ≥50 years

SARS-CoV-2 infection is associated with increased risk of new-onset vascular dementia in adults ≥50 years

#LongCovid

www.nature.com/articles/s44...

Today, thirty-four years ago. The Hull Daily Mail, England. 7th October 1991. #mecfs #myalgicencephalomyelitis #cfsme #myalgice

"GPs give ME lecture a miss".

The Nursing Mirror, October 7th 1981 - forty-four years ago today. Melvin Ramsay. #myalgicencephalomyelitis #myalgice

Twenty-two years ago today. The Scotsman, 6th October 2003. Apparently the piece that got Margaret Cook allegedly sacked from the paper after Simon Wessely complained. #myalgicencephalomyelitis #myalgice

A report from the medical staff. of the Royal Free Group of Hospitals on the recent epidemic of glandular fever, which affected more than 100 nurses, patients, and hospital staff, was considered by the group's board of governors yesterday. The following statement was issued: - " The board of governors, having considered the report, are pleased to announce that the epidemic has now subsided sufficiently to permit the readmittance of patients to the wards at the Gray's Inn Road Hospital which have been closed since July 24. Accordingly, four wards—having a total of 87 beds-will be opened immediately. Further beds will be opened as staff becomes available.

The Times, UK. 5th October 1955.

A black and white photo of Armani Guerra wearing a suit and tie. Behind him is a blue-ish tinted photo of the University of Michigan’s Ross School of Business with yellow business doodles on top of it. The text reads, “The Sick Times. Long COVID inspired me to start an IACC case competition at my business school. Here’s how you can get involved. By Armani Guerra.”

I set out to recruit fellow MBA candidates at my business school to develop the first international case competition focused on IACCs like Long COVID, postural orthostatic tachycardia syndrome (POTS), myalgic encephalomyelitis (ME), and more. A task I initially thought would be difficult proved easy, as my peers empathized with my story and saw the daily toll this illness had on me, when I barely made it to class each day.

Since developing Long COVID, Armani Guerra has battled debilitating symptoms, even as he applied for and began his MBA at the University of Michigan’s Ross School of Business. Now, he is organizing the first-ever IACC Case Competition. bit.ly/46Bv0iy

Twenty-nine years ago today.
The Independent, UK. 4th October 1996.
Article by Yvette Cooper.
#myalgicencephalomyelitis #myalgice #cfsme #mecfs

The covid con is the con that keeps on conning - The Conservative Woman The covid con is the con that keeps on conning

The covid con is the con that keeps on conning.

www.conservativewoman.co.uk/the-covid-co...

Transcript of Module 8 Public Hearing on 01 October 2025. UK Covid-19 Inquiry Archives Transcript of Module 8 Public Hearing on 01 October 2025.

Just back a page, SMcF says, "She still lives with those symptoms, although better managed but only because we've accessed private care."

...because there is no NHS care.

Did Hallett fail to understand that?

#LongCovid

No-one should be having to access private care!

transcript:

The London Evening Standard, 3rd October 1996. #mecfs #myalgicencephalomyelitis #cfsme #cfs #myalgice

The Guardian, UK. 3rd October 1996. #mecfs #cfsme #cfs #myalgice #myalgicencephalomyelitis

The Daily Telegraph, UK. 3rd October 1996 - twenty-nine years ago today.
#cfsme #mecfs #myalgicencephalomyelitis #myalgice

Mitochondria in the Spotlight When the National Institutes of Health (NIH) released its recent Research in Context feature on mitochondria, it did something that may have gone unnoticed by many but was profoundly significant for…

NIH’s Perspective on #ME/CFS and Mitochondrial Dysfunction
In its Research in Context feature, NIH explicitly described ME/CFS as a post-viral syndrome where mitochondrial breakdown may be central. They noted that people with ME/CFS often experience exhaustion, exercise intolerance, cognitive

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog Researchers employed a specialized brain imaging technique to identify a potential biomarker and therapeutic target for Long COVID. More than four years after the onset of the COVID-19 pandemic, scien...

Scientists Finally Reveal Biological Basis of Long COVID Brain Fog.

Patients with brain fog may have disrupted AMPA receptor (AMPAR) expression—key molecules for memory and learning. Imaging of Long COVID patients showed elevated AMPAR density tied to more severe cognitive impairment.

📺 Important clip from the Covid Inquiry from @cvcev.bsky.social about the issues for children & families in education:

🚸 Safety - gov did not recognise airborne transmission
🚸 Flexibility
🚸 Politicisation of masks - that has led to stigma & even safeguarding

English translation - Two social courts have ruled that social security offices may not classify #LongCovid and #MECFS as mental illnesses - those affected have been granted the opportunity to have their disability recognized.

ITN (ITV News -UK), 2nd October 1996. The name #myalgicencephalomyelitis is dropped in favour of #chronicfatiguesyndrome.

Includes someone whose name is an anagram of 'Some sly swine'.

Switzerland The Council of States has approved a motion calling for a national strategy to improve the health situation of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long Covid. The patient organisations Long Covid Switzerland, ME/CFS Switzerland, and the Swiss Society for ME & CFS welcome the decision.

Switzerland:
The Council of States has approved a motion calling for a national strategy to improve the health situation of people with ME/CFS & Long Covid

@europeanmealliance.bsky.social :
www.europeanmealliance.org/news-Q32025-...

Screenshot from Science for ME weekly update

#MEcfs #LongCovid

Image of a gable ended painted with an LNER advert

A bit of #railwayarchaeology at Hampstead Heath with some nice #brutalism of the Royal Free Hospital behind!

#architecture #C20 #LNER #modernism #london

Text reads: "Dr Ladhani noted that more than 98% of children recover from COVID-19. Other studies show that most children's symptoms improve within a week. A tiny proportion go onto report symptoms longer term. Those who do not recover fully tend to be those with underlying conditions (for example, ME). These symptoms focus on chronic fatigue."

Zooming in on the bit underneath that extract...

Bias, prejudice, and assumptions already rife.

Extract reads: "Cases in children do not give us an indication of the general population. The pandemic has taken a huge toll on children and families, irrespective of whether they have had the virus or if it is due to lockdowns or school closures. Dr Ladhani was clear that children should not be labelled with long COVID (i.e., a medical condition) as this has potential to cause longer-term, psychological harm."

At the end of Sammie McFarland's evidence session, we are shown this extract from a government meeting of 9 June 2020.

Dr Shamez Ladhani from PHE advises against using the label "long covid" on children.

#UKCovidInquiry

Screenshot shows a government document that reads: PHE and DHSC Guidance. 15. PHE and DHSC have raised concerns about the potential spread of misinformation on long COVID in children. 16. The advocacy group 'Long COVID Kids' have produced a 'School Awareness Pack'. The Scottish Government has received correspondence asking whether it would be distributing the pack to schools. There is a concern that this misinformation could be directly distributed to schools. PHE and DHSC are concerned that the information pack risks overstating the prevalence of long COVID in children. Whilst some children may suffer from post-COVID symptoms, these may not hugely differ from other post-viral symptoms. 17. Long COVID Kids are also calling for robust aerosol transmission mitigation measures in schools and policies on school attendence and return to school as well as greater public awareness of long COVID in children. 18. We are discussing options with PHE and DHSC. One route is for PHE and DHSC to provide key messages and guidance on long COVID in children, which DfE could help to distribute via our comms channels and links with schools.

Just catching up with the #UKCovidInquiry, who today are hearing from @longcovidkids.bsky.social and @cvcev.bsky.social amongst others.

Live feed: www.youtube.com/watch?v=hOYc...

Not far in, we hear how gvmt agencies were briefing against LCK 😳

Long COVID is here to stay—even in children Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex, multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact the daily life of those...

The Lancet: “Long COVID is here to stay—even in children”

By Danilo Buonsenso

www.thelancet.com/journals/lan...

newsGP - New network to support ‘often misunderstood’ conditions The RACGP’s Specific Interests group aims to ensure frontline GPs shape the management of post-infection and energy-limiting conditions.

New network to support ‘often misunderstood’ conditions. #myalgicencephalomyelitis #longcovid

www1.racgp.org.au/newsgp/racgp...

Today, thirty-eight years ago. The Guardian, UK. 1st October 1987. From a name that's cropped up a number of times on here - Celia Wookey. #myalgicencephalomyelitis #cfsme #myalgice #mecfs

On this day thirty-three years ago.
The Manchester Evening News, England. 1st October 1992. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

The Department of Health "failed to give any guidance", "declined to fund any research" and "failed to even count the number of children and adults"

See, #leftfordead.

Tess Finch-Lees: Forever-Covid hurts young people’s health – and their futures Two years ago, I reported on a study finding that the corona­virus contributed to the 2022 surge of paediatric RSV cases “through the large build-up of Covid-19-infected children and the potential lon...

Irish Independent: "Forever COVID hurts young people’s health and their futures"

'Many facets of normal development could be impaired by lingering and long-lasting effects of coronavirus'

m.independent.ie/opinion/comm...