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Royal Free 1955

@rfh1955.bsky.social

ME/CFS archive, especially RFH 1955. For education, not profit. Relocated from Twitter. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. No twee campaigns. https://rfh1955.blogspot.com/

1,041 Followers  |  835 Following  |  1,963 Posts  |  Joined: 03.10.2023  |  2.0043

Latest posts by rfh1955.bsky.social on Bluesky

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Persistent Attenuation of Lymphocyte Subsets After Mass SARS-CoV-2 Infection Growing evidence suggests that lymphocyte subsets are declined in COVID-19 patients, but it is unclear if these alterations persist after widespread e…

www.sciencedirect.com/science/arti...

"Our findings redefine SARS-CoV-2 infection as a condition of long-lasting immune compromise."

But sure, keep basing your life on the idea that it's fine to get reinfected annually.

06.12.2025 23:26 β€” πŸ‘ 105    πŸ” 53    πŸ’¬ 5    πŸ“Œ 3
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The Calgary Herald, Canada.
7th December 1994.

A follow up to a story that had been published four days earlier.

#fibromyalgia #myalgicencephalomyelitis #cfsme #myalgice #mecfs

07.12.2025 08:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Edmonton Journal, Canada.
7th December 1987 - thirty-eight years ago today.

#myalgicencephalomyelitis #cfsme #epsteinbarr #ebv #cebv #myalgice #mecfs

07.12.2025 08:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Lennox Herald, Scotland.
7th December 1984 - forty-one years ago today.

#coxsackie #myalgicencephalomyelitis #myalgice #cfsme #mecfs

07.12.2025 00:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Independent, UK. 7th December 1996.
Yvette Cooper MP.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

07.12.2025 00:10 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

The love of an acronym is always a giveaway.

06.12.2025 22:18 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Screenshot from video where Alain Moreau talks to an interviewer

Screenshot from video where Alain Moreau talks to an interviewer

7-minute English-language interview on FRANCE 24 English with Alain Moreau PhD (funded by @openmedf.bsky.social ) who talks about his research findings & their possible implications

www.youtube.com/watch?v=EZOH...

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

06.12.2025 16:21 β€” πŸ‘ 9    πŸ” 5    πŸ’¬ 2    πŸ“Œ 0
Hyperstimulated Innate Immune System Can Drive ME/CFS-Associated Fatigue and Post-Exertional Malaise - Solve ME/CFS Initiative A new study by Dr. Ian Lipkin describes how a hyperactive innate immune system can drive ME/CFS-associated fatigue and post-exertional malaise.

Lipkin's team have found evidence that the innate immune system in people with ME/CFS is hyperstimulated with different levels of metabolites & proteins. Drugs that dampen the innate immune response (e.g. interleukin-37, metformin, rapamycin) may reduce fatigue & PEM.
tinyurl.com/mr2a7uyv

10.11.2025 11:53 β€” πŸ‘ 6    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

You mention Celia Wookey. Just in case anyone is tuning in to this thread and is unaware, Wookey's father, Eric, worked at the Eastman Dental Hospital in 1955. It was right beside the Royal Free.

Eric did attend at least one meeting at the RFH at the time, if my memory is correct.

06.12.2025 11:46 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

'Sabotaged' is not too strong a word at all. I'm sure there are people out there whose mission was to do that.

06.12.2025 11:40 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Every single window of opportunity and line of scientific inquiry to dig deeper in the field of ME/cfs has been squandered, suppressed or sabotaged. I wish saying this was an exaggeration, but unfortunately for us pwME, it is not.

04.11.2025 13:48 β€” πŸ‘ 14    πŸ” 5    πŸ’¬ 2    πŸ“Œ 0
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The Chicago Tribune, US.
6th December 2002 - twenty-three years ago today.

"Chronic fatigue patients need more treatment".

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

06.12.2025 08:05 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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The Valley News, New Hampshire, US.
6th December 2023.

#longcovid #myalgicencephalomyelitis #myalgice #cfsme #mecfs

06.12.2025 08:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Daily Telegraph, UK.
6th December 1996.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

06.12.2025 07:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Hertfordshire Mercury, England.
6th December 1991.

#cfsme #mecfs #myalgicencephalomyelitis #myalgice

06.12.2025 07:48 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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The Heartland Evening News, Warwickshire, England.
6th December 1996.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

06.12.2025 07:46 β€” πŸ‘ 3    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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The Herald, Scotland. 6th December 2017.
An obituary of Jimmy Hood.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

06.12.2025 07:44 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Thirty-nine years ago today.
The Grimsby Evening Telegraph, England.
6th December 1986.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

06.12.2025 07:41 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

For information for all Visible users, the clinical trial β€šBalance Acceptance and Commitment Therapy for Long Covidβ€˜ is run by Trudie Chalder.

So, is the question now: is #LongCovid a state of mind??

06.12.2025 06:07 β€” πŸ‘ 39    πŸ” 15    πŸ’¬ 10    πŸ“Œ 3
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The Evening Post, Bristol, England.
5th December 1989.

#mecfs #cfsme #myalgicencephalomyelitis #myalgice

05.12.2025 14:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Today, thirty-three years ago.
The Burlington Spectator, Canada. 5th December 1992.

A letter in reply to an article from a month earlier. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

"The advice given by Dr. Wessely, a psychiatrist, is positively harmful".

05.12.2025 14:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Evening Standard, London. 5th December 1989.
#cfsme #mecfs #myalgice #myalgicencephalomyelitis

Action For ME unveils a cinema advertisement.

05.12.2025 13:58 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thirty-seven years ago today.
The Evening Herald, Plymouth, England. 5th December 1988. #mecfs #myalgice #myalgicencephalomyelitis #cfsme

"A Devon mother confined to a wheelchair with the viral disease ME has set up a telephone for other sufferers that might feel suicidal".

05.12.2025 13:42 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Twenty-nine years ago today.
The Evening Standard, London. 5th December 1996.

#mecfs #myalgice #mecfs #cfsme

05.12.2025 13:35 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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The Syracuse Herald-Journal, US. 5th December 1996.

#myalgicencephalomyelitis #cfsme #mecfs affects certain groups of people including those with an "annual paycheck below $40,000"

05.12.2025 13:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Melvin Ramsay, 5th December 1986.
"All I want now is to quietly fade out of the picture".

#myalgicencephalomyelitis #myalgice #mecfs

05.12.2025 13:24 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

"The ICB told councillors that "most patients" recover within four to nine months. But a recent review in The Lancet, external said 71% of people with the condition had symptoms for more than a year."

Well the ICB is lying then.

04.12.2025 20:22 β€” πŸ‘ 5    πŸ” 6    πŸ’¬ 0    πŸ“Œ 1
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Closure of Mid Essex long Covid service criticised by charities A charity says the condition is

Dr Lucy Moore, chairperson of the Long Covid SOS charity, said: "If the motivation behind the closure is an ideology that long Covid is a thing of the past or over in months, it sets a concerning precedent.

#LongCovid #Charity #BBC

www.bbc.co.uk/news/article...

04.12.2025 20:18 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 1    πŸ“Œ 2
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Alarm over government’s choices to lead β€˜over-diagnosis’ review that could help ministers cut benefits The government’s decision to commission a review of alleged β€œover-diagnosis” of mental health conditions and neurodivergence has caused alarm among many disabled people, with fears that it will all…

A reminder that Wes Streeting and the Labour government have deliberately chosen two of the worst possible experts to lead the review into overdiagnosis by the way. People already entrenched in that belief who will absolutely manipulate findings to suit their ideological crusade.

04.12.2025 08:41 β€” πŸ‘ 132    πŸ” 76    πŸ’¬ 9    πŸ“Œ 14
Highlighted text from Ashley Dalton MP reads: "I confirm that DHSC has already started conversations with NHS England to explore a specialised service prescribed by the Secretary of State for Health and Scoial Care for severe ME/CFS." 

from: https://hansard.parliament.uk/commons/2025-11-19/debates/2CF5B027-60AF-4031-B6B1-A2909CF6A745/MyalgicEncephalomyelitis

Highlighted text from Ashley Dalton MP reads: "I confirm that DHSC has already started conversations with NHS England to explore a specialised service prescribed by the Secretary of State for Health and Scoial Care for severe ME/CFS." from: https://hansard.parliament.uk/commons/2025-11-19/debates/2CF5B027-60AF-4031-B6B1-A2909CF6A745/MyalgicEncephalomyelitis

"Starting conversations" about "exploring a specialised service" is not *action*.

People with severe ME need care and support NOW.

04.12.2025 14:16 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

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