Royal Free 1955

Royal Free 1955

@rfh1955.bsky.social

ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc. https://rfh1955.blogspot.com/

1,086 Followers 853 Following 2,572 Posts Joined Oct 2023
1 year ago
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The Daily Telegraph, UK. 2nd March 2006. #mecfs #cfsme #myalgice #myalgicencephalomyelitis

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1 year ago
"Campaigners believe dozens of children are being wrongly diagnosed because the illness is largely ignored by the medical profession, which could lead to tragic consequences."

"Parents are being told their child is school phobic or just plain misbehaving and they are being treated for psychiatric disorders."

The Black Country Evening Mail, England. 2nd March 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

Psychiatrists and children again.

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1 year ago
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The Irish Independent. 2nd March 1993. About 'TATT' but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice

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1 week ago

Was ever the case with post/persistent illness patients.

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1 week ago

Medicine's ongoing failure to deal with Long Covid did not begin in 2020.

It happened decades before that. Nothing has changed since, all of this has been and continues to be intentional.

There is something deeply wrong with parts of this industry, in how they deal with their own failures.

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1 week ago

Video of presentation on #longcovid.

She immediately rules out any discussion on the overlap between long Covid and #myalgicencephalomyelitis.

The medical profession’s complete mishandling of ME is, in part, why there’s nothing available for long Covid.

@crick.ac.uk

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1 year ago
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Florida Today. 1st March 1991. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

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1 year ago
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Ten years ago today. The Plain Dealer, Ohio, US. 1st March 2015. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

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1 year ago
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The Leader-Post, Saskatchewan, Canada. 1st March 2021. #longcovid #cfsme #myalgicencephalomyelitis #myalgice #mecfs

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1 year ago
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The Saginaw News, US. 1st March 1996. Not about #myalgicencephalomyelitis as such but it is mentioned.

#lymedisease #chroniclyme #myalgice #mecfs #cfsme

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1 year ago
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The Daily Republican-Register, Illinois, US. 1st March 1989. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

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1 year ago
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The Daily Herald, Utah, US. 1st March 1990. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

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1 year ago
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About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice

The Daily Post, Liverpool, England. 1st March 1999.

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1 year ago
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The Evening Telegraph, Derby, England. 1st March 1997. #mecfs #myalgicencephalomyelitis #myalgice #cfsme

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11 months ago

The Daily Telegraph, UK. 1st April 1994.

Rodney Silver (a.k.a. Anthony Daniels) gets a reply to his diatribe.

#myalgicencephalomyelitis #cfsme #myalgice #mecfs

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1 year ago
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The Hoddesdon and Broxbourne Mercury, England. 1st March 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice

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1 year ago
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Thirty years ago today. The Guardian, UK. 1st March 1995. #cfsme #mecfs #myalgice #myalgicencephalomyelitis

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1 week ago
Spence in heather, out to pasture.

Pension letter today, short because there aren't many numbers and they are small. I retired on 9-Feb-2026 age 59 (due to disability, the #LongCovid life-upside-down mess). Very strange feeling. Cash runs out in 7 years, state pension age in 2033, but hey ho for now. Housebound & fractured pelvis.

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1 week ago

@ashleydaltonmp.bsky.social one for you to ask your department. If you will.

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1 week ago
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Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome - Nature Communications Post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a disabling disorder, yet the clinical phenotype is poorly defined and the pathophysiology unknown. Here, the authors ...

www.nature.com/articles/s41...

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1 week ago

Do you have a link to the published paper?
Is it a new analysis of the original NIH study describing PEM as "effort avoidance"?
@davetuller1.bsky.social are you aware?

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1 week ago

Not immediately.

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1 week ago
Ein Herz, daneben ein Pfeil, der zu einem Text zeigt.

Text:

LONG COVID:

EVERY HEARTBEAT COUNTS

FIBROSIS

NECROSIS

PERICARDITIS

MYOCARDITIS

HYPERTENSION

HEART FAILURE

FIBRILLATION

HEART ATTACK

THROMBOSIS

VESSEL DAMAGE

ARRHYΤΗΜΙΑ

And more...

Every COVID infection can cause damage.

High quality masks can help protect you.

#LongCovid

#Long CovidHeartbeats

#LongCovidAwareness

International Long COVID Awareness im März

International Long COVID Awareness Day am 15. März 2026

Thema 2026: Impacts of COVID & Long Covid on the cardiovascular system

www.longcovidawareness.life

#LongCOVID #COVID #COVID19

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1 week ago
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Commentary: How loneliness became a pandemic You don’t have to be sitting by yourself on an island to be lonely. Loneliness is everywhere.

Llewellyn King again and a passing mention of #myalgicencephalomyelitis.

www.davisenterprise.com/forum/commen...

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1 week ago
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From Chronic Fatigue to 90 Minutes of Daily Yoga - indonesiakini From Debilitation to Deep Healing: A Journey Through Chronic Fatigue and the Power of Movement For over two decades, Caroline Ings-Chambers has dedicated her career to guiding others through the trans...

From Chronic Fatigue to 90 Minutes of Daily Yoga.

indonesiakini.id/2026/02/28/f...

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1 week ago
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New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment A groundbreaking study from the National Institutes of Health (NIH) has revealed critical insights into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/C

New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment.

ekhbary.com/news/new-stu...

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1 week ago
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Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"…pharmaceutical firms want to await a concrete biomarker that could serve as a clinical trial end point before putting any resources toward long COVID studies, but it’s not possible to find such a metric without more studies."

They need proof. We need hope. #Medsky #LongCOVID

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1 week ago
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Our paper on Symptom Patterns, Recovery, and Impact of
#LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern.
academic.oup.com/ofid/article...

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1 year ago
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The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice

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1 year ago
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The Chronicle, Crewe, England. 28th February 1996. #cfsme #mecfs #myalgicencephalomyelitis #myalgice

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